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Alice in Wonderland Syndrome. Or, Fat/Big Hands. Anyone have this?

87 replies

Horrace · 20/01/2025 10:00

It's a thing. It's real. I've had it since I was a child. A feeling when I'm relaxed or trying to sleep and the only way I can describe it is that my hands/fingers are huge and everything else is small.
I only experience it with my hands and it's not visual with me, but there are people who have visuals and experience the feeling in other body parts and objects around them.
I've never met anyone else who feels this.
It's really horrible.
I'm laughing typing this, it sounds so bonkers. I suffer with migraines so think it's related.
It's a real thing I promise.

I really want to know if others have this.

OP posts:
Waitingfordoggo · 21/01/2025 12:01

This sounds really familiar. I definitely experienced similar as a child but not as an adult I don't think. Sometimes it was hands feeling too big or too small or sometimes just a feeling that I couldn't 'feel' the boundaries of my body so I lost sense of how big/small I was. I didn't find it an unpleasant sensation. I have never had a migraine so it wasn't related to that for me.

BettySundaes · 21/01/2025 12:39

Same, had it more often as a child. Only get occasionally now if ill/feverish. My daughter has it and says she has experienced it during the day too at school.

Serencwtch · 21/01/2025 13:02

Horrace · 21/01/2025 10:13

@Serencwtch

Can I ask if you get this feeling as a warning to a seizure? I assume that's what you meant by 'prodrome'

Yes sorry, a prodrome is the warning before a seizure. It's actually the start of the seizure - that doesn't mean that everyone having that sensation is having a seizure. In fact the opposite - like deju vu it's completely normal & everyone experiences it at some point.

Interested in this thread?

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SoManyTeeth · 21/01/2025 16:07

Horrace · 21/01/2025 06:51

@SoManyTeeth

Check out the big brains on you 😂

Maybe it is that. The brain is fascinating isn't it.

For info, I never had headaches as a child but dreadful nightmares.
But migraines all my adult life.

Lol big hands you mean? Grin

Nah it's just that when I saw the illustrations representing it, I thought "yes! that's the big hands thing!"

Alice in Wonderland Syndrome. Or, Fat/Big Hands.  Anyone have this?
NotVeryFunny · 21/01/2025 17:30

I had this a lot as a child. As others said usually when ill/falling asleep. Only found out it was called Alice in Wonderland Syndrome a few years ago. It never scared me, just thought it was weird. I don't get headache type migraines but have always had ocular migraines. Usually when dehydrated or tired.. But again didn't know what these were either until a few years ago when I had one just before an opticians appointment so remembered to ask about it.

soupfiend · 21/01/2025 18:16

I never knew it was a thing, I had this as a child just as I was drifting off to sleep, not with hands or parts of my body, but a sense that the floor (and it would always be a road) was stretching out around me at fast speed, but it was comforting and strange at the same time
Now when Im very relaxed, I get a sensation where my hands and feet feel like they have disappeared or not connected to me

I also suffer with migraines.

Horrace · 21/01/2025 20:55

soupfiend · 21/01/2025 18:16

I never knew it was a thing, I had this as a child just as I was drifting off to sleep, not with hands or parts of my body, but a sense that the floor (and it would always be a road) was stretching out around me at fast speed, but it was comforting and strange at the same time
Now when Im very relaxed, I get a sensation where my hands and feet feel like they have disappeared or not connected to me

I also suffer with migraines.

Hands and feet disconnected or disappeared.
That's a new one

OP posts:
Dandylione · 21/01/2025 21:00

I used to get something like this along with a thing where certain textures or resistances made me faint and sick.

WhatTheKey · 21/01/2025 21:02

Yes I get this, and sometimes- more often really- the sensation that my hands are made out of clay! It's really weird, not unpleasant, just odd. Feels like there are no bones or meat or muscle or skin, just solid damp clay.
Am also a migraine sufferer.

LightCameraBitchSmile · 21/01/2025 21:06

I used to get this when orgasming or just before. So makes sense if it's related to seizures/ hormones! It was always accompanied by an odd visual sense of moving black/white/grey shapes. Like static on a tv but soft and in both directions. Weird

Gowlett · 21/01/2025 21:06

So interesting reading everyone’s experience of this.
I’m a migraine person, and I’ve had some of these things going on since childhood. Had Labyrinthitis once, I’ll never forget it. Now, when I’m unwell / headache, my ears always act up.

EineReiseDurchDieZeit · 21/01/2025 21:14

I had this once brought on as a medication side effect. Terrifying.

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