OP, you've had such a horrible time - you've done incredibly well to get as sorted as you have from such a nasty infection and flare up, plus you've triggered a huge sharing of expertise.
This is such an incredible thread - within the Mumsnet community there's such a wealth of knowledge and experience. Strikes me that if any dermatologists wanted to do a large scale study, they could do worse than start here.
I have never had a satisfactory diagnosis but have been dealing with it since I was about twelve. Probably pompholyx- definitely looks that way.
I get the spots/blisters on my feet as soon as anything presses against them or I get hot - top trigger seems to be wearing my crocs for about ten seconds to put the bins out! I've come to MN for answers so many times and had really helpful advice.
Things that have worked best:
- stop using hydrocortisone because it doesn't work but still gives you symptoms of over-use of steroids
- if in doubt at all and if seemingly exacerbated by sweat, treat as a fungus
- but then stop using lamisil because the symptoms of over-use use are blisters and itching!
- wash with soap to prevent fungus and infection (unless made worse by soap, which mine isn't)
- wear socks in bed during summer to stop feet sticking to each other and making it worse
- use ice packs or very cold water as itch saviour
- use nizoral anti dandruff shampoo as a body wash once or twice a week to keep control of any fungal complications so you only have to deal with the eczema side of things.
At the moment, mine's doing quite well. I've definitely still got a patch that is biding its time and I can feel the tingle as if it is going to start up whenever I get hot or put slippers on, but so far so good for about 6 weeks.
I'm not using anything medicated at the moment, just the nizoral as a wash twice a week, which may or may not be helping - it coincides with a good patch, so we'll see. I've been trying to avoid both OTC steroid and antifungal topical creams because both seem to make it worse and withdrawing from both seems to have improved things.
I've used E45 anti-itch cream which I thjnk is just an antihistamine when it's annoying and that seems to help because I don't scratch and the scratching of the early spots seems to be the trigger for a much worse flare up. It's felt under control for about 6 months.
But then, it's winter. Mine gets bad seasonally from about April. I might be fooling myself!