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Struggling with anxiety over DS4

2 replies

lollilou2 · 04/03/2024 14:22

I’ve got nowhere to turn so thought I’d just get my thoughts out here. Son is having blood tests soon due to gross motor delay- unable to get up and down stairs, can’t run very fast, still uses pushchair, can’t keep up with peers- and speech delay.

He has absent tendon reflexes too, aswell as positive gowers sign and hypotonia of upper and lower limbs.

im absolutely terrified it’s Muscular Dystrophy. I just can’t stop worrying, and everyone tells me I’m being stupid.

OP posts:
Ivyy · 04/03/2024 14:39

So sorry op this must be such a worrying time Flowers I don't know much about MD myself, maybe try posting on the Health boards as well? There are bound to be others on there who have been in a similar situation xx

Fmlgirl · 15/10/2024 10:09

Hey OP, just came across this and I’m so sorry you haven’t had many replies. How have you both been since? Has your little one had his tests yet?

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