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nachosandnachis · 25/01/2024 14:36

soupfiend · 25/01/2024 14:23

We think its right that the state manage care, thats because thats what we're used to

We are a minority of countries in the world that has that philosophy.

I believe it too, but Im aware that its what Im used to and what I would rely on personally. It doesnt mean its the only way and there are lots of disadvantages to it

It's not about management, it's about support. Depending on someone's needs it can be a 24/7 job. How are people supposed to do that AND feed themselves? Working families can barely afford food and rent.
Of course, the majority of countries don't give a shit about their residents and the UK seems to be heading that way.

The funny thing is, it would be far cheaper for the state to pay someone the equivalent of their former (and to a certain extent, projected) salary to care for a family member rather than paying several carers a day, all of this care home stuff etc etc. But they won't do that because well the optics aren't great.

soupfiend · 25/01/2024 14:52

nachosandnachis · 25/01/2024 14:36

It's not about management, it's about support. Depending on someone's needs it can be a 24/7 job. How are people supposed to do that AND feed themselves? Working families can barely afford food and rent.
Of course, the majority of countries don't give a shit about their residents and the UK seems to be heading that way.

The funny thing is, it would be far cheaper for the state to pay someone the equivalent of their former (and to a certain extent, projected) salary to care for a family member rather than paying several carers a day, all of this care home stuff etc etc. But they won't do that because well the optics aren't great.

Ive no idea how people do it, either physically, financially or emotionally

But people in other countries do. And I wouldnt say its because they dont give a shit about their communities, most other countries are far more community minded than we are.

BrassOlive · 25/01/2024 14:59

I think some people on this thread think it's okay to speculate on what should happen to disabled people because the disabled are viewed as a burden on the state - well I've got news for you. Unless your household earns £41k or over, the liklihood is that you are also taking out of the system more than you put in over your lifetime.

So instead of warehousing the disabled who already have enough on their plate to contend with, I propose we forcibly move able-bodied retail assistants, delivery drivers, porters, newly qualified nurses, classroom assistants, admin workers, childminders, clerks, cleaners, dog walkers, artists, bar staff, gardeners and library assistants into care homes instead. They can be valuable members of the community from there, right?

If you don't agree with this, then why not? They exist on the exact same sliding scale as disabled people, but if forcibly moving them in to a care home would be an affront to human dignity why is it okay for that gentleman in the OP?

nachosandnachis · 25/01/2024 15:11

BrassOlive · 25/01/2024 14:59

I think some people on this thread think it's okay to speculate on what should happen to disabled people because the disabled are viewed as a burden on the state - well I've got news for you. Unless your household earns £41k or over, the liklihood is that you are also taking out of the system more than you put in over your lifetime.

So instead of warehousing the disabled who already have enough on their plate to contend with, I propose we forcibly move able-bodied retail assistants, delivery drivers, porters, newly qualified nurses, classroom assistants, admin workers, childminders, clerks, cleaners, dog walkers, artists, bar staff, gardeners and library assistants into care homes instead. They can be valuable members of the community from there, right?

If you don't agree with this, then why not? They exist on the exact same sliding scale as disabled people, but if forcibly moving them in to a care home would be an affront to human dignity why is it okay for that gentleman in the OP?

I'm not one of the people who thinks disabled people should be moved to care homes but actually, in 2023. Very few of those people you mentioned can actually afford their own homes, single. Especially in London. Most of them live in shared housing and have to pay through the nose for it. Housing benefit for a single person is calculated based on a room in shared housing.

Does that count?

What about all the people sofa surfing like that gentleman in Glasgow working 50 hours in a chip shop?

Btw I don't agree that any of this should be happening just pointing out conditions are being eroded for everyone. There are many ableist comments on this thread but it's not just the disabled that are being shafted.

BelindaOkra · 25/01/2024 15:11

soupfiend · 25/01/2024 13:38

People are posting answers to this as if people are going to be carted off in black mariahs.

What would happen (if such a plan went ahead) is that the care package wouldnt pay enough for the current interventions of things like a PA or going out etc

So a person might look to friends and family to provide that rather than live residentially.

That runs the risk for people who dont have such a network, but also possible exploitation.

My son requires 24 hour 2:1 care. For the last year he was at home I could barely work (I ran my own business - as it was the only way I could work at all) and my husband had to leave work at 2pm every day to help out. Luckily he was senior enough to get away with it. His younger siblings had to manage themselves because ds1 required 2:1.

i had to sleep in with ds1 and we had multiple meetings - because the situation was so difficult. Social services love the dream world of someone free stepping in. But how? How would that happen in this sort of situation. People who have expensive packages of care in their own home all have very complex needs that cannot be filled by a family member giving them a lift somewhere or popping round to make a cup of tea.

BelindaOkra · 25/01/2024 15:15

nachosandnachis · 25/01/2024 15:11

I'm not one of the people who thinks disabled people should be moved to care homes but actually, in 2023. Very few of those people you mentioned can actually afford their own homes, single. Especially in London. Most of them live in shared housing and have to pay through the nose for it. Housing benefit for a single person is calculated based on a room in shared housing.

Does that count?

What about all the people sofa surfing like that gentleman in Glasgow working 50 hours in a chip shop?

Btw I don't agree that any of this should be happening just pointing out conditions are being eroded for everyone. There are many ableist comments on this thread but it's not just the disabled that are being shafted.

Housing is a huge issue and keeps learning disabled people in locked wards for decades.

My son won the lottery in terms of housing. He was locked up at a time when the NHS was a) putting money into buying homes for people to live in (and that saves the NHS money - his time he spent on the locked ward cost waaay more than his house) and b) we lived in an area that was skilled at using the available money to buy houses.

If he was locked up now I don’t think we could get him out unless we could buy him a house.

BrassOlive · 25/01/2024 15:17

nachosandnachis · 25/01/2024 15:11

I'm not one of the people who thinks disabled people should be moved to care homes but actually, in 2023. Very few of those people you mentioned can actually afford their own homes, single. Especially in London. Most of them live in shared housing and have to pay through the nose for it. Housing benefit for a single person is calculated based on a room in shared housing.

Does that count?

What about all the people sofa surfing like that gentleman in Glasgow working 50 hours in a chip shop?

Btw I don't agree that any of this should be happening just pointing out conditions are being eroded for everyone. There are many ableist comments on this thread but it's not just the disabled that are being shafted.

Even better, they'll love it at Meadow View.

nachosandnachis · 25/01/2024 15:25

BrassOlive · 25/01/2024 15:17

Even better, they'll love it at Meadow View.

If they can get a room that is, because guess what even 'care homes' don't have space now :)

As a PP said, despite all the headlines. I don't think people are actually going to be put anywhere. They're just going to be left with the status quo and family will have to pick up the pieces.

soupfiend · 25/01/2024 15:29

nachosandnachis · 25/01/2024 15:25

If they can get a room that is, because guess what even 'care homes' don't have space now :)

As a PP said, despite all the headlines. I don't think people are actually going to be put anywhere. They're just going to be left with the status quo and family will have to pick up the pieces.

Edited

Until someone dies

Or attacks someone and murders them.

Then everyone starts handwringing about how the disabled or those with severe MH/functioning difficulties are being let down. Then everyone forgets about it again.

dimllaishebiaith · 25/01/2024 15:30

Tempnamechng · 25/01/2024 08:42

Warehousing is quite emotive language for care homes. Government money is funded by tax payers, and its currently massively underfunded. As tax payers we have to either streamline services or dig quite a lot deeper and increase personal tax. An individual having their personal home, personal bills and expenses as well as full time carers paid for by the tax payer vs being in a care setting where multiple people can be accommodated and attended quickly and efficiently would be a fraction of the cost. He can still be an important, valued and active member of the community living from a care home.

He can still be an important, valued and active member of the community living from a care home.

The man in the article is a school governor and is training to be a social worker

Only 30% of care homes have Internet access for their residents. If he ends up in one of the other 70% how on earth can he possibly continue to be an important, valued and active member of the community when he won't even be afforded access to the Internet?

MrsBennetsPoorNerves · 25/01/2024 15:31

It brings to mind that Nei Kinnock speech from all those years ago.

“I warn you not to be ordinary. I warn you not to be young. I warn you not to fall ill. I warn you not to get old.”

We should be warning people not to be disabled, clearly.

And we like to call ourselves a civilised society.

BelindaOkra · 25/01/2024 16:16

CoffeeWithCheese · 25/01/2024 14:25

@BelindaOkra what happened to your son and the hospital admission as a response to distress behaviour is just what is going to be the "norm" again if this sort of shit goes through.

The ONLY way this could be viable (and not just melt down the NHS further with trying to deal with the fall out, hospital admissions, self-injury and absolute avalanche of referrals from placements unable or unwilling to cope) would be if the regulators were given some SERIOUS FUCKING BALLS and the standards for what we consider acceptable within the social care industry were completely ripped to shreds and rebuilt from the ground up. No more having someone come once a week to sing bloody Vera Lynn songs (and I do not for the fucking life of me know why residential settings for younger people are still stuck thinking they're catering for war-era adults - but they do) and calling it an "activity".... a ban on fucking bingo being the only other activity for the week as well. Decent staffing, actual proper interaction with residents - both during the downtime periods of the day and also during mealtimes - actually catering to people's different sensory and communication needs... and an end to these huge homes and a move toward smaller group homes.

People able to go out and engage in activities THEY want to do and not just shunted into an activity that they can get a few people in the minibus and do together whether the residents want to or not, or a "no you can't go to the shop today because you only have 1:1 staffing timetabled on a Tuesday afternoon".

When done well - it works - but it requires time, it requires staff who WANT to engage (and there are homes I know of where the culture is absolutely fucked), it requires staffing consistency and - to start off with, it requires a massive leap of faith to change how things are done and rethink what some of the residents are actually capable of doing if you set them up to succeed and not to fail.

I'd also like a fiver for every time I go in somewhere and get told "oh they understand everything we tell them they just don't want to do it sometimes" - and I do assessment and find out that their understanding of language is actually nowhere near that level! I would be bloody rich.

Agree 100% (& are you an SLT? Hello from a fellow SLT if so!)

DyslexicPoster · 25/01/2024 16:35

This disgusting.

However woke we get, disability seems to never, ever get any spotlight.

Ds has severe needs but gets picked on to the point of tears at Cubs in our commuter belt town where a three bed semi cost 750k but disability hate speech is rife in the kids. Their parents may or not be horrified to hear what they say.

The way my kids are treated is real eye opener to the thinly disguised digust and contempt.

But one stroke or car crash later these people who recoil at disability would expect good care and respect for themselves or loved ones..

Every time someone is rude to me I point out they are just one accident away from being us and they won't have a proactive mum advocating for them.

But disability happens to others, and others don't matter as it will be "us"

spanishviola · 25/01/2024 17:00

BrassOlive · 25/01/2024 14:59

I think some people on this thread think it's okay to speculate on what should happen to disabled people because the disabled are viewed as a burden on the state - well I've got news for you. Unless your household earns £41k or over, the liklihood is that you are also taking out of the system more than you put in over your lifetime.

So instead of warehousing the disabled who already have enough on their plate to contend with, I propose we forcibly move able-bodied retail assistants, delivery drivers, porters, newly qualified nurses, classroom assistants, admin workers, childminders, clerks, cleaners, dog walkers, artists, bar staff, gardeners and library assistants into care homes instead. They can be valuable members of the community from there, right?

If you don't agree with this, then why not? They exist on the exact same sliding scale as disabled people, but if forcibly moving them in to a care home would be an affront to human dignity why is it okay for that gentleman in the OP?

Nice one!

Littlebutloud · 25/01/2024 17:48

We are in comparison to a lot of countries - especially on corporation tax.

There are of course situations where going into a care home is the right thing. There are many many more situations where this is not appropriate and driven purely by cutting costs by any means - which is what this article is focusing on.

Do you provide care for a disabled child or adult out of interest?

FlatWhiteExtraHot · 25/01/2024 18:23

LimitedButStillAliveAndKicking · 25/01/2024 11:09

Some of you fuckers on this thread better hope karma in any form doesn't exist. I was mid thirties, happily married with 3DC when routine surgery went dramatically wrong. It was an op I was told would require only an overnight stay because I was young, not overweight and otherwise healthy. Someone has to be that tiny complication risk.
From life support in ICU to home took months and overnight I became disabled.
I didn't drink alcohol, smoke and lead a healthy lifestyle. I went from healthy to 'life limited' in the blink of an eye. I'm fortunate I have a supportive DH, family and friends, otherwise this scenario could be me. I'd rather be dead.

Almost the same thing happened to me, although I’m not life limited. The thought that I should be dumped in a care home if my husband isn’t around to look after me is fucking appalling.

For those of you wanging on about taxpayers money, I worked full time for nearly 30 years before this happened and paid my fair share of taxes. Many disabled people use the support of a PA to enable them to carry on working and paying bloody tax. How are they going to do that if they’re shoved in a care home?

Boomer55 · 25/01/2024 18:33

The care homes around here can’t even provide enough spaces for the elderly disabled. Lack staff/lack of funding etc.

This is all pie in the sky.🙄

migigo · 25/01/2024 18:40

There's more options than living alone (or only disabled person) and a large cars home. Those needing a lot of support, especially 24/7 may be able to live with a few others, similar to a house share, with others and carers can be shared, plus can mean company for carers too. Dsd's house has 4 disabled young women, then 3 carers (2 overnight, one sleeps one awake) it works really well and is no doubt cheaper than dad having 24/7 1:1 including waking nights which she needs, means she has "friends" and crucially if something happens her 1:1 has back up from the house manager

FlatWhiteExtraHot · 25/01/2024 18:42

SerendipityJane · 25/01/2024 11:11

Disabled people have the same right to a life as everyone else.

An interesting point of view.

OP are you actually going to come back and explain this post, because it looks to me like you don’t think that we have the same right to a life as everyone else.

FlatWhiteExtraHot · 25/01/2024 18:44

migigo · 25/01/2024 18:40

There's more options than living alone (or only disabled person) and a large cars home. Those needing a lot of support, especially 24/7 may be able to live with a few others, similar to a house share, with others and carers can be shared, plus can mean company for carers too. Dsd's house has 4 disabled young women, then 3 carers (2 overnight, one sleeps one awake) it works really well and is no doubt cheaper than dad having 24/7 1:1 including waking nights which she needs, means she has "friends" and crucially if something happens her 1:1 has back up from the house manager

Which is brilliant for your DD, but there are no facilities like this in my town or the seven closest towns within a 15 mile radius.

BedBugs5 · 25/01/2024 18:44

I think the term ‘warehouse’ is unfortunate. In my view, every effort should be made to be provide the care and support that is appropriate to each individual within the confines of the budgets available.

In an ideal world, each person would have round the clock carers at home but there are neither the staff nor the resources to facilitate that. The needs of the individual have to be balanced against a number of factors- for example, is it right that millions of pounds are spent to benefit one individual which could be used to help many more?

CoffeeWithCheese · 25/01/2024 18:46

BelindaOkra · 25/01/2024 16:16

Agree 100% (& are you an SLT? Hello from a fellow SLT if so!)

Yep guilty as charged - I'm a SLT!

Feralgremlin · 25/01/2024 18:49

Those posters who seem to see no issue with this, go and look at Tess Daly (tess.daly) on Instagram and see all that she is able to achieve with the support of her PAs, then come back and tell me how the hell she would be able to maintain that same life in a care home. She wouldn’t.

Disabled people are just that, people, and deserve to have autonomy over their own lives. Locking them away in care homes, against their will, is absolutely barbaric and anyone who even remotely supports this idea should be truly ashamed of themselves.

migigo · 25/01/2024 18:49

@FlatWhiteExtraHot

There was probably is, hers was set up by social services, the house is housing association owned. Others I know are set up by parents, often with young people who went to school together. They live fully in the community so it's not obvious like a care home. Bristol has several I personally know of!

migigo · 25/01/2024 18:51

@BedBugs5

So true, and living alone isn't necessarily best for all.