Anyone have any experience of a child with severe post covid inflammation (PIMS)

[Myworldjusthim]

Just that really. How was he/she diagnosed and did they recover.

Hi, I am an admin on the PIMS-TS family support group on Facebook: Covid-19 PIMS-TS/MIS-C Information, Discussion and Support group We also have a website www.pims-hub.org.uk and you can email me on [email protected] I saw your other post about ALL leukaemia, are they thinking it is actually PIMS. I do hope your son is being appropriately treated, please do contact me, my name is Joanna xx

Hello, can I ask how you gotnon? My daughter saw a specialist and now they are suspecting PIMS. She was 2months old in May and got covid, went pale and a but too drowsy, went to hospital where she stayed 3 days
at the end they said they were exploring and treated her for sepsis but the test ruled it wasn't that. they released her. a few odd things between then and then in November a lot of new sickness and diarrhea, the fell unconscious for what they called BRUE. The blood tests showed unusually high platelets, 1.2million and then they went back and saw her may blood was also high at 900000. No o e had an explanation, told us to re test I w week and that was7480000. I used insurance to explore this and his is where they have suspected PIMS and ordered a kidney scan and heart echo for in the new year...! but looking this up they normally fall ill 6 weeks after covid...nit 6mo the! so now also concerned. Would be keen to hear how things played put for you? our daughter is now 9months old.