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Please help - Scared for my daughter

512 replies

Bepis · 31/12/2022 04:33

My daughter is 18 years old but she has special needs so is a lot younger in her mind. She has suffered with anxiety for the past 5 years or so, to the point where it stopped her attending school and she had to be under CAMHS. Her anxiety was mainly around people she didn't know and new situations.

The past couple of weeks have become so difficult and I just don't know what to do or where to turn.

I noticed her hearing things and she would say to me that her stepbrother swore, or I swore etc when that never happened. That went on for a while but now she is panicking if her sister is on the phone. Her sister will talk to her boyfriend in the evening in her room (they have separate rooms) but my eldest daughter is just flat out panicking about it and refuses to go upstairs. When I finally get her into her bedroom, she will not get in bed but just sits on her bed until 7/8 in the morning.

I tried laying with her this morning so she would get some sleep and she managed an hour or 2.

She's also started putting her fingers in her ears whenever someone talks. Not in a rude way but it's become a reaction. This is within the last couple of days.

She says she can hear her sister talking on the phone at 5/6/7 in the morning despite her sister being fast asleep.

She is also zoned out (I can't think of a better way to describe it). Like when I talk, it's like she doesn't understand me. She's also started whispering instead of using her real voice and is even starting to become non-verbal.

I'm so scared, I don't know what's wrong with her and I don't understand.

I took her to the doctors today and they prescribed Sertraline. She had her first tablet tonight. This seems like more than just anxiety though.

Has anyone else experienced this? Im scared and in tears.

OP posts:
Bepis · 04/02/2023 23:42

CustardySergeant · 04/02/2023 23:37

I am so glad that your daughter was co-operative in hospital and has taken the medication. I hope everyone gets a good night's sleep in your home tonight and that the crisis team provide all the support you need when they come tomorrow. 💐

Thank you. She did really well but wouldn't let the nurses take her blood pressure. She actually didn't want to leave but she's home and safe. The diazepam has started working and she's so relaxed and smiling, it's lovely to see.

OP posts:
Guessitswednesday · 04/02/2023 23:49

@kateakateandme the police can only detain under 136 in a public place and in extreme cases where the person is a risk of harming themselves or others if the dont, ie actively voicing suicidal thoughts. It wont apply in this case unfortunately

WombsofWimbledon · 04/02/2023 23:55

PattyDuke · 04/02/2023 23:18

Blimey if my daughter had been to A and E and diagnosed with schizophrenia I'd want to come home with more than a leaflet.

Well to be fair, she got a leaflet and a callous comment from a stranger on the internet.

CustardySergeant · 05/02/2023 00:07

Bepis · 04/02/2023 23:42

Thank you. She did really well but wouldn't let the nurses take her blood pressure. She actually didn't want to leave but she's home and safe. The diazepam has started working and she's so relaxed and smiling, it's lovely to see.

You must feel incredibly relieved. At last you can get a bit of a breather.

Bepis · 05/02/2023 00:11

@CustardySergeant It is a huge relief, for her sake. Me and her sister actually started crying when she laid down completely relaxed. It was quite emotional. She's fast asleep now.

Thank you so much everyone who pushed me to go to A&E and get help. I genuinely thought she would get better on the Sertraline and thought if we just give it time. Thank you for all your support on here; it means so much x

OP posts:
Sandra1984 · 05/02/2023 00:23

Diazepam is very strong but a great medication (it's basically a fancy word for valium), it relaxes both your brain and muscles with no side effects. I've taken it in the past and it was really good. It's awesome as an emergency medication but be careful though as like all benzos it's highly addictive. Monitor her intake and make sure they don't put her too long on diazepam.

HopesMama32 · 05/02/2023 00:38

Just read the whole thread and OP I'm so glad you've actually been listened to and hopefully are on the right path now. You're an amazing mum and your daughter is lucky to have such a support system ❤️ I hope she gets all the help she needs ❤️

kateandme · 05/02/2023 03:30

but crisis team are justas laxe. being treated in hospital doesnt mean it needs to be coming home to trauma ffks. who said that. it means they get her head to a place that is stable so and mentally well. you dont go home without a cast on a borken leg to avoid tripping on tables in hopsital when it was a table at home you tripped on. they wrap you up make you stable then you get to be well at home with your leg. if she got proper asessment and diognosis and help and an actually proper plan not a shove off leaflet and a promise from this mythical magica crisis team then she would be able to cope with home.
why is home the truama?because shes hit break point mentally ill. they needed to balm that.
unless there is something at home that is the truama?

kateandme · 05/02/2023 03:33

Sandra1984 · 05/02/2023 00:23

Diazepam is very strong but a great medication (it's basically a fancy word for valium), it relaxes both your brain and muscles with no side effects. I've taken it in the past and it was really good. It's awesome as an emergency medication but be careful though as like all benzos it's highly addictive. Monitor her intake and make sure they don't put her too long on diazepam.

i new as soon as she said medication i would take a sigh,knowing it would be this one.
one they are nota loowing now as a general rule because of how dangerous and harmful its ended up being and has just been the brish off give out drug of choice to all and sundry. theyve stopped this. had major urgent practice and council over it and are in general trying to stop it ever being given.
but it became the "here you go your feeling anxious" slip of choice.
she needs more than this.
once again mental health help is lacking

DesertRose64 · 05/02/2023 05:14

But she wasn’t diagnosed with Schizophrenia.

The doctor only suggested it could possibly be schizophrenia (which is probably what posters who are familiar with these kind of events are also thinking is possible)

Now stop being a twat and away and polish up on your reading comprehension.

DesertRose64 · 05/02/2023 05:18

@Patty and her Dukes ^^^

kateandme · 05/02/2023 06:51

Please make sure they actually do something @Bepis for her.last night must be a relief for you all. But it,especially that drug is s sticking plaster.
And again at the moment social care is the pits.depending on area ni on funked.
So crisis tean might be thinking they'll come,check she's safe.oh my yes she Is.tick box.out. she slept even wow! 😴 N o.
She needs an assessment abc then targeted treatment. Today.now.
This poor girl and you cannot go round this again.each time she is left she hits a new low.this is a risk to her life and safety.her mental state is actively being harmed and yours.
So no.she isn't safe.no she isn't looking better,calmer.on her way. She is simply in the waiting room of another crash.these things don't just "stop".
Make sure you don't get fobbed off.

kateandme · 05/02/2023 06:52

Your suffering too.i no.
I hope you managed to sleep and eat.xx

PattyDuke · 05/02/2023 09:15

@DesertRose64 I don't know why I am bothering to reply..maybe because I have been called a 'twat' on the Internet by some stranger who is seemingly an expert on mental health. Apparently I need to do more reading and cannot possibly have a lived experience of mental ill health and the NHS. I am afraid if you are prepared to believe that someone can present at A&E with symptoms of schizophrenia (as described in great detail by the OP) and be back home four hours later sleeping soundly and peacefully after one dose of diazapham then you need to do a bit more reading. Not to mention the wonderful mental health team who are apparently going to arrive on Sunday morning to make everything better.

Bepis · 05/02/2023 09:24

PattyDuke · 05/02/2023 09:15

@DesertRose64 I don't know why I am bothering to reply..maybe because I have been called a 'twat' on the Internet by some stranger who is seemingly an expert on mental health. Apparently I need to do more reading and cannot possibly have a lived experience of mental ill health and the NHS. I am afraid if you are prepared to believe that someone can present at A&E with symptoms of schizophrenia (as described in great detail by the OP) and be back home four hours later sleeping soundly and peacefully after one dose of diazapham then you need to do a bit more reading. Not to mention the wonderful mental health team who are apparently going to arrive on Sunday morning to make everything better.

I've been through the absolute wringer for the past month and I do not need to read comments from people telling me I'm making all this up. Why on earth would I do that?

We were 5/6 hours in A&E, she got given diazepam and shes had 9 hours sleep. It helped amazingly. We have just had a call from the mental health people who are going to come out later today to see her.

Unless you have something nice to say then please can you get off this thread and leave me alone. I don't need it.

OP posts:
daretodenim · 05/02/2023 09:28

OP I came across your other thread about the guys banging on your door back at the time (I'm guessing it was you). I hope that nonsense has completely stopped and your other DD is ok.

For your poorly DD I am so so sorry that you have been basically ignored by people who you looked to for help. That's awful. Someone upthread said that they'd entrust their children with you and I feel exactly the same way. You've done amazingly. It's not like this thread is the only factor going on in your life either. You've done your absolute best and done it in a good way.

I really hope that she gets the help needed. And that you can get some proper rest too.

Also, as an aside, if I'm right about that other thread with the boys banging on your door, and that was related to your other DD/her boyfriend, it may be worth checking that she doesn't blame herself for all of this. It absolutely wasn't her fault.

I hope to that their father can and does stay the fuck away both physically and psychologically.

HazardaGuest · 05/02/2023 09:33

@PattyDuke i think it would be best for everyone if you hide this thread, your responses are not productive or supportive.

Glad you are now getting help, I know schizophrenia has been mentioned but there are lots of other possibilities. Hope she gets a proper assessment and diagnosis in the coming weeks.

PattyDuke · 05/02/2023 10:24

I will leave the thread because I realise I am not being helpful. However as someone who has sat with their daughter many times in A&E with psychotic episodes - waiting for the mental health team, waiting for blood results to rule out infection, waiting for her to be sedated.. battling for support from community mental health which is broken - struggling along with diazapham...(which isn't magic - far from it). Maybe I am not being nice, maybe one dose of diazapham means you sleep peacefully for 9 hours yet the mental health team still make a house call on Sunday morning - if that is the case I am moving to Derby.

Bepis · 05/02/2023 10:28

PattyDuke · 05/02/2023 10:24

I will leave the thread because I realise I am not being helpful. However as someone who has sat with their daughter many times in A&E with psychotic episodes - waiting for the mental health team, waiting for blood results to rule out infection, waiting for her to be sedated.. battling for support from community mental health which is broken - struggling along with diazapham...(which isn't magic - far from it). Maybe I am not being nice, maybe one dose of diazapham means you sleep peacefully for 9 hours yet the mental health team still make a house call on Sunday morning - if that is the case I am moving to Derby.

I am sorry you also went through something similar. I wouldn't wish it on anyone. However one persons experience can be totally different to another's.

My daughter did not have any blood tests done. She had her pulse and oxygen levels checked as well a temperature. The only other test offered was blood pressure but she would not do that as she was too scared.

My daughter took 2mg Diazepam in addition to 2 x 25mg Promethazine tablets last night - in addition to not having slept for 2/3 nights, her body was exhausted and ready for sleep.

I don't live in Derby.

OP posts:
Bepis · 05/02/2023 10:29

@PattyDuke And just to add - I have been battling for help for over a month so it didn't come instantly.

OP posts:
DesertRose64 · 05/02/2023 10:45

PattyDuke · 05/02/2023 10:24

I will leave the thread because I realise I am not being helpful. However as someone who has sat with their daughter many times in A&E with psychotic episodes - waiting for the mental health team, waiting for blood results to rule out infection, waiting for her to be sedated.. battling for support from community mental health which is broken - struggling along with diazapham...(which isn't magic - far from it). Maybe I am not being nice, maybe one dose of diazapham means you sleep peacefully for 9 hours yet the mental health team still make a house call on Sunday morning - if that is the case I am moving to Derby.

That was your experience. It does not mean it’s the same for everyone.

So yes, please hide the thread, because despite you’re (claimed) experience in these matters you really can’t see further than the end of your nose.

And keep in mind - there’s no one size fits all when it comes to how a mental health crisis presents in people who are experiencing one. There is no blue print for it. And I’m surprised that someone who claims to have had experience of a crisis can’t actually see this.

Oh, and can Diazapam induce a long sleep in someone? In my experience yes it can.

DesertRose64 · 05/02/2023 10:47

Sorry - diazapam along with other drugs can fell an elephant.

helpyhelperton · 05/02/2023 10:56

Bepis · 05/02/2023 10:29

@PattyDuke And just to add - I have been battling for help for over a month so it didn't come instantly.

I'm so glad to see the update - I could have written your posts, with Minor detail changes.

I've done 1hr / 5hrs - whole day in a and E with my child.

A and E is where you went because you were desperate - not because you want her sectioned. They can't always help but it does give a feeling of being taken seriously and it should kick off a chain of help. And I've had crisis team visits on a Sunday too.

I want to say that setraline was not for us. In my not qualified option, a psychiatrist would prescribe something (or a combo) of drugs to target your daughter's condition.

Your poor DD needs to be able to quiet her brain for a while, she needs a break and hopefully she can sleep for a bit.

Keep posting for support - I don't understand the challenging here - just keep posting in confidence knowing that we'll listen to you and help as much as we can.

💐 for you both xx

helpyhelperton · 05/02/2023 10:57

And now may not be the time - but have you looked up DBT - the tools on the there may be helpful for you to use?

Sandra1984 · 05/02/2023 11:35

kateandme · 05/02/2023 03:33

i new as soon as she said medication i would take a sigh,knowing it would be this one.
one they are nota loowing now as a general rule because of how dangerous and harmful its ended up being and has just been the brish off give out drug of choice to all and sundry. theyve stopped this. had major urgent practice and council over it and are in general trying to stop it ever being given.
but it became the "here you go your feeling anxious" slip of choice.
she needs more than this.
once again mental health help is lacking

The lack of sleep is something that really messes up your head, poor child has been in a state of fight or flight for days with no sleep so it makes total sense to me their first objective is for her to get some rest, give her some Valium so she can have a good night rest while they come out with a diagnose. She’ll wake up rested and feeling much better just because she manage to rest. As per setraline (Zoloft) its known to be a very controversial drug because it either fixes you or f-cks you over. Fact is it can cause psicótic breaks or exacerbate them:

pubmed.ncbi.nlm.nih.gov/9167832/

OP you’re doing such an amazing job. You’re a great mom. Hang in there, it’s only going to get better. Sending strong support.