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Please help - Scared for my daughter

512 replies

Bepis · 31/12/2022 04:33

My daughter is 18 years old but she has special needs so is a lot younger in her mind. She has suffered with anxiety for the past 5 years or so, to the point where it stopped her attending school and she had to be under CAMHS. Her anxiety was mainly around people she didn't know and new situations.

The past couple of weeks have become so difficult and I just don't know what to do or where to turn.

I noticed her hearing things and she would say to me that her stepbrother swore, or I swore etc when that never happened. That went on for a while but now she is panicking if her sister is on the phone. Her sister will talk to her boyfriend in the evening in her room (they have separate rooms) but my eldest daughter is just flat out panicking about it and refuses to go upstairs. When I finally get her into her bedroom, she will not get in bed but just sits on her bed until 7/8 in the morning.

I tried laying with her this morning so she would get some sleep and she managed an hour or 2.

She's also started putting her fingers in her ears whenever someone talks. Not in a rude way but it's become a reaction. This is within the last couple of days.

She says she can hear her sister talking on the phone at 5/6/7 in the morning despite her sister being fast asleep.

She is also zoned out (I can't think of a better way to describe it). Like when I talk, it's like she doesn't understand me. She's also started whispering instead of using her real voice and is even starting to become non-verbal.

I'm so scared, I don't know what's wrong with her and I don't understand.

I took her to the doctors today and they prescribed Sertraline. She had her first tablet tonight. This seems like more than just anxiety though.

Has anyone else experienced this? Im scared and in tears.

OP posts:
helpyhelperton · 04/02/2023 18:12

Can I point out this this thread is entirely for the op and the support of her. It doesn't matter whether others would or wouldn't post in this situation, she needs support, not knocking.

PaulGallico · 04/02/2023 18:19

@helpyhelperton I am not knocking the OP as I said we are all different. @HangerLaneGyratorySystem I am also going to hide the thread. However I wanted to say that I found your contribution really interesting. My son has extremely high anxiety and obsessive compulsive behaviours due to prader willi syndrome - we have been badly let down by mental health services and what you described and suggested was really useful to me - Thank-you.

Bepis · 04/02/2023 18:44

In A&E now, not moving until she gets help.

I can't thank everyone enough who has supported me on here.

OP posts:
Bepis · 04/02/2023 18:45

HangerLaneGyratorySystem · 04/02/2023 17:50

As someone who also has 5+ years of first hand experience with this I too thought my knowledge might help the OP @PaulGallico but she’s not engaged with any of my posts. I was thinking of hiding the thread.

Sorry it's just so overwhelming and I barely have time to breathe half the time. I'm sorry

OP posts:
CustardySergeant · 04/02/2023 18:48

OP, how is your daughter reacting to being in A&E? Is she accepting she needs help?

Hairyfairy01 · 04/02/2023 18:51

You have nothing to be sorry for OP. None of us has been in your exact situation, the vast majority have no experience at all. You are an amazing mother, I honestly don't think I could have done what you have been doing for your dd for for so long. Your dd is very lucky to have such a supportive family. I hope a&e help you all.

Bepis · 04/02/2023 18:51

CustardySergeant · 04/02/2023 18:48

OP, how is your daughter reacting to being in A&E? Is she accepting she needs help?

She's sat with me and she came voluntarily but she's so scared bless her. She thinks all the electricity is going to go off in the hospital.

OP posts:
HazardaGuest · 04/02/2023 20:08

Hang on in there, is there anything she will engage with to pass the time, a snack from the vending machine or a simple game on a phone?

Bepis · 04/02/2023 21:04

Doctor said possible schizophrenia but will need proper assessment from the mental health team. Waiting for them now. Doctor said it's definitely not just plain anxiety.

OP posts:
Bepis · 04/02/2023 21:05

HazardaGuest · 04/02/2023 20:08

Hang on in there, is there anything she will engage with to pass the time, a snack from the vending machine or a simple game on a phone?

The nurses have given her a sandwich and biscuits but she's not eating them yet. Trying to distract her but she's constantly panicking.

OP posts:
Bepis · 04/02/2023 21:05

Hairyfairy01 · 04/02/2023 18:51

You have nothing to be sorry for OP. None of us has been in your exact situation, the vast majority have no experience at all. You are an amazing mother, I honestly don't think I could have done what you have been doing for your dd for for so long. Your dd is very lucky to have such a supportive family. I hope a&e help you all.

Thank you, that was very sweet what you said. I don't think I've copied that well, it's been hard. I'm hoping they don't just send us away with nothing.

OP posts:
PattyDuke · 04/02/2023 21:49

Seen within 2 hours and a diagnosis - you are doing well. Hopefully the mental health team will be along soon.

Sandra1984 · 04/02/2023 22:00

Bepis · 04/02/2023 21:04

Doctor said possible schizophrenia but will need proper assessment from the mental health team. Waiting for them now. Doctor said it's definitely not just plain anxiety.

That makes total sense to me.I have two friends with schizophrenia and all started the same way. One of them takes a monthly medication and has been doing Pretty well all these years, the other one is supposed to take her medication but doesn't (and is not doing that well). None of them take sertraline. Schizophrenia is perfectly treatable with medication and therapy. Sending support.

Silkierabbit · 04/02/2023 22:02

Thanks Kateandme

Hope you get proper help now Bepis, sounds like it's being taken seriously at last.

kateandme · 04/02/2023 22:16

PaulGallico · 04/02/2023 17:50

@kateandme okay I do see your point. However when my son with SN was in the middle of a psychotic episode and we were waiting for an ambulance posting on MN was the last thing I was thinking about - we are all different.

i get that.but we are all different and the op has been reaching out throughout for support as she obviously needs it so i dont ever want someone to think they should stop or cant. we may be the only safe space they have

PattyDuke · 04/02/2023 22:22

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

kateandme · 04/02/2023 22:24

Bepis · 04/02/2023 21:05

Thank you, that was very sweet what you said. I don't think I've copied that well, it's been hard. I'm hoping they don't just send us away with nothing.

this is the whole point of being there now. do NOT leave. do not let them let you take her home. you cannot cope.none of you. if you get sent home the waiting time even if they refer you will be mammoth at the moment. she needs support right now tonight. do not leave that hospital

kateandme · 04/02/2023 22:51

This reply has been deleted

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then it will destroy my faith in everything since people have been helping op since the get go,and sharing there own harrowing epxeriences and help

Bepis · 04/02/2023 23:10

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

For those who don't believe me - just got home and we were given this so yes it is genuine!

Please help - Scared for my daughter
OP posts:
PattyDuke · 04/02/2023 23:18

Blimey if my daughter had been to A and E and diagnosed with schizophrenia I'd want to come home with more than a leaflet.

Bepis · 04/02/2023 23:23

PattyDuke · 04/02/2023 23:18

Blimey if my daughter had been to A and E and diagnosed with schizophrenia I'd want to come home with more than a leaflet.

She hasn't been diagnosed with schizophrenia. The doc said it's a possibility but it would need more assessment.

She's been prescribed diazepam to help her sleep which she can take alongside the Promethazine. A crisis team are coming to see her at home tomorrow.

OP posts:
Bepis · 04/02/2023 23:31

@kateandme The plan was the not leave that hospital but the mental health team said about wanting to get her better in the home setting and I understood what they meant. So if she was hospitalised and got better, then came back to the scene of the trauma, it could start all over again.

She has taken her medication and she already looks more relaxed. I'm hoping she gets some sleep tonight and then the team that are coming tomorrow can get the ball rolling on longer term plans.

OP posts:
PattyDuke · 04/02/2023 23:36

You have done extremely well - to be in A and E, diagnosed, medicated and back home in 4 hours with the mental health team visiting tomorrow. I am only envious because in more or less the same circumstances my DD did not receive this kind of care. I wish your daughter well.

Bepis · 04/02/2023 23:37

PattyDuke · 04/02/2023 23:36

You have done extremely well - to be in A and E, diagnosed, medicated and back home in 4 hours with the mental health team visiting tomorrow. I am only envious because in more or less the same circumstances my DD did not receive this kind of care. I wish your daughter well.

She hasn't been diagnosed. And it's been nearly 6 hours we have been there I think. Lost track of time. Yes someone is contacting us tomorrow to come out and see my daughter.

OP posts:
CustardySergeant · 04/02/2023 23:37

I am so glad that your daughter was co-operative in hospital and has taken the medication. I hope everyone gets a good night's sleep in your home tonight and that the crisis team provide all the support you need when they come tomorrow. 💐