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Help me diagnose my child.

54 replies

pupcakes · 09/03/2022 15:10

Ok, so I know you're not all doctors, but I'm feeling pretty desperate for DD (11) who has basically been poorly for the last 18 months.

PLEASE HELP.

Symptoms: constipation, feeling pressure to go but nothing comes out, sometimes diarrhoea, nausea, stomach cramps, 'urgency'/no warning to poo, 3 minor poo accidents when the urgency has come out of nowhere, feels sick "in her throat", worse at bedtime and first thing in the morning.

Journey so far - we have been seeing a private gastroenterologist for past 5 months who made us do the low fodmap diet- we stuck to it 1000% and it made literally no difference. She had a 'shape test'/xray which showed that all the markers were still in her upper bowel where there was a clear backlog, so we did 7 days of movicol impaction regime and she did feel better for 2 weeks after. She's done it again over this past week after having an unexplained new pain in lower stomach last week, GP said could be constipation and advised us to do it. Blood tests and stool samples were fine.

Gastroenterologist (who is very nice, but very expensive) just wants to write it off as IBS, but I'm not convinced at all. He did say omeprazole might help with the throat-sickness, but then said he doesn't want to prescribe it to such a young girl Hmm Our GP has suggested Movicol daily, two sachets, but the gastroenterologist said it's not needed. I have arranged an appointment with a new one for a second opinion in a few weeks.

She has got progressively worse and worse and is in tears all the time about how unwell she feels. Sad Her school attendance is 60%, she HATES missing school as she loves her new secondary and is so unhappy. They're giving me grief too despite medical evidence from the doc, they won't provide work for her to do so she's really fallen behind and it's impacting her confidence a lot (we've got her a tutor who is lovely but it's not having much impact).

Any suggestions?

Anything at all. I never google things generally as I know you just read the worst case scenarios but I just need help now. We all feel quite desperate, our whole life is centred around her belly at the moment. It feels like our happy little girl is fading away.

Thank you Daffodil

OP posts:
BrokenRainbow · 13/02/2023 13:06

Hi, I know this is an old thread but how is your daughter now?

My 12 year has very similar symptoms are your daughter. Looking for some advise.

Nogodsnomasters · 12/09/2024 13:08

Hi, could I ask what happened in the end? Going through this with my 10yr old son. It's massively affecting school.

Anon1983678 · 28/02/2025 12:48

Hi any updates on this? I know its an old thread but im going through this exact same thing with my son, age 10 x

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Nogodsnomasters · 28/02/2025 13:37

Anon1983678 · 28/02/2025 12:48

Hi any updates on this? I know its an old thread but im going through this exact same thing with my son, age 10 x

I posted above in Sept and my son was diagnosed with coeliacs disease.

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