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Anyone know much about or have experience of endometriosis?

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Twoweekcruise · 03/11/2021 09:03

Can endometriosis run in families?
My sister was diagnosed a couple of years ago in her early 40’s after years of being told her pain was IBS. They found a huge tumour on her ovary and suspected OC but when the ovary was removed they discovered it was endometriosis.
I am 48 and have had gynae issues and IBS for years and years. I have terribly low iron as a result of years of very heavy periods. (Ferritin is only 5).
I don’t really suffer from the excessive pain that my sister had but I have regular deep pelvic discomfort, hip and leg pain, lower back pain, pain on deep sex, awful discomfort during ovulation, very heavy periods, pelvic and lower back discomfort a week before my period. I have IBS and have lots of feelings of pressure in my rectal area too. I do have reoccurring ovarian cysts (currently have a cyst on an ovary), sometimes they are ‘chocolate’ cysts.
I also have awful, ongoing digestive issues.
I’m under gynae and gastro but no one ever mentions endometriosis. I did have a abdominal CT scan two years ago but nothing flagged up on that (can endo be detected via a ct scan?).
I am 48 now and I think maybe in perimenopause (again, can’t get the doctors to acknowledge this!), and things are much worse. Does endometriosis get worse during peri?

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