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Original poster

Anyone got any experience of a cavernoma in their brain?

Annoyedandirritated · 2021-09-01T18:30:49+00:00

My husbands just been diagnosed with one [sad]

4 replies

Annoyedandirritated · 01/09/2021 19:30

My husbands just been diagnosed with one

OP posts:

DMA1984 · 01/09/2021 19:35

Not personally but I saw this teenager on the news: www.bournemouthecho.co.uk/news/19394393.sailor-overcomes-brain-injury-achieve-rya-competent-crew/

It mentions the Cavernoma Alliance so hopefully they can help you cavernoma.org.uk/

Hope his treatment and recovery go well

Original poster

Annoyedandirritated · 01/09/2021 20:20

Thank you 🙏

OP posts:

OldHouseDilemma · 01/09/2021 20:25

www.nhs.uk/conditions/cavernoma/

I'm sure you have already looked at this, but just in case you haven't....

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General health

caz198917 · 16/12/2021 18:50

Hi. My husband has just been diagnosed with one too. He's only 32. I'm pregnant. I have no idea what this means yet. We haven't seen the specialist team yet. It was found incenditally as he had a MRI for a benign tumour in his gum.

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