Anyone got any experience of a cavernoma in their brain?

[Annoyedandirritated]

My husbands just been diagnosed with one

Not personally but I saw this teenager on the news: www.bournemouthecho.co.uk/news/19394393.sailor-overcomes-brain-injury-achieve-rya-competent-crew/

It mentions the Cavernoma Alliance so hopefully they can help you cavernoma.org.uk/

Hope his treatment and recovery go well

Thank you 🙏

www.nhs.uk/conditions/cavernoma/

I'm sure you have already looked at this, but just in case you haven't....

Hi. My husband has just been diagnosed with one too. He's only 32. I'm pregnant. I have no idea what this means yet. We haven't seen the specialist team yet. It was found incenditally as he had a MRI for a benign tumour in his gum.