Azaylia Cain

[LetsGoChamp]

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

Keep rewatching the last video Safiyah has put on her Instagram Ashley and Azailya fast asleep and little Azailya snuggled in mummy's arms in between them both where she belongs 💔

Thinking of Azaylia and her incredible parents, I’m glad she is looking more comfortable and back at home.

Ages ago I read the perfect sentence on one of those benches dedicated to someone, and it’s a nice thing to mention here.

If love could have saved her, she’d have lived forever.

Lots of love to Azaylia and her Mummy and Daddy.

We read this at my mums funeral @ProbablyGryffindor it's so true for so many situations and deaths but heartbreakingly love just isn't enough in this cruel world x

It’s a beautiful quote @mrssunshinexxx - it’s such a lovely thing to read at your Mum’s funeral. I’m sorry for your loss.

@ProbablyGryffindor thank you x

I've been following the story for months. Heartbreaking is an understatement and I can only imagine the pain her parents must be in.
She just looks so so poorly

I found the last video of them all in bed with azaylia all cuddled up really lovely to see. What they're going through is devastating but to know that she will be in her mum or dad's arms for the rest of her life is some comfort (probably not necessarily for them).

I’ve not really seen the pics etc, however I’m a paeds nurse and have very sadly seen children at the end of their lives, worked with families, cried with them too.

I think how a family chooses to share their child during their illness/once they have passed is their choice. Can you imagine going through the worst thing you’ve ever been through and people judging you. This family have raised awareness for cancer, stem and bone marrow transplants and quite a few people on here are now donating to charities or on the donor register & just have an awareness of what families go though, as it’s not just this little darlings family it happens all over the country to many families, it’s so heartbreaking to watch and I honestly don’t know how these families go on after their child dies, so many go on to raise money for our ward or the hospice they might go to or the charity researching their child’s illness. Families do it the way they feel is best, I am sure Azaylia has an amazing palliative care team taking care of her and her family, I hope the time they have together is peaceful and filled with love and cuddles, I hope her parents have a good network around them thinking of them all.

I’m still praying for a miracle for that beautiful little girl 💜

@LetsGoChamp

Thanks everyone, I feel a bit more sane to know I’m not alone in feeling really connected to this story.

So lovely to hear of other people who have shared or donated where they could. @fassbendersmistress the way I see it is, in order of importance a few days without luxuries is nothing compared to a forever without your child.

@MrsDSalvatore I completely agree RE the wealth divide but understand it’s such a complex situation. I’ve also signed up but I still haven’t received my pack - they have emailed to say it’ll be on it’s way soon.

@Emmelina I’m so glad she’s well now. Hopefully like PP said, the money might also help other children in the same situation. I’m hoping it works for them all.

You are not alone I feel the same ... never invested in a story so much before tbh!

@Crappyfridays7 would you suggest a good charity to make a monthly donation to please ? X

@Cinderellashoes

Just wanted to add that although it isn’t shown in the stories if their care is anything like in a London there will be a palliative care team or other HP supporting the family and working with them to ensure this little one is pain free. I understand it may come from a place of ignorance that you just don’t understand they don’t take a baby home who is dying and have zero input from anyone. But it’s just so unhelpful and uncalled for.

Thanks for this I naively thought she might survive this 🥲

[quote Dolciedolly]@Crappyfridays7 would you suggest a good charity to make a monthly donation to please ? X[/quote]
Sorry to butt in, but if you live in London CHAL, the alliance of all the Children’s Hospices across London is a great charity. Children’s hospices don’t only deal with end of life care, they offer support and respite to children with complex and life limiting conditions, and equally importantly to their families, including siblings. The relationships they build with families is incredible, a relationship that for some is a short one, but for others continues over many years.

Sorry, meant to say, although Children’s hospices receive some government funding they are still hugely dependent on donations to provide services for children and families that otherwise wouldn’t be possible. This year most hospices have had to curtail their big fundraising events, like marathons, abseils, balls, auctions, charity shops etc, and even the small but steady donations through collection tins etc have dried up. I know many hospices have had to change the way they work with families, understandably families of children with complex life limiting conditions have had to isolate, not only are the children vulnerable, but parents are aware that if they get sick themselves then there is often no one else to give the specialised care that their children need 24/7. Some hospices have offered hospice at home support to their families but this has been very difficult to do safely, others have taken in clinically sick children who need 1 to 1 nursing care to ease the pressure on other NHS services.

Please consider making a donation, and if possible gift aiding as this increases the donation substantially.

@viques thanks I gave actually done a lot of charity work and raised money for Chal through work so will look into this
I am near London

This little girl is surrounded by love for her last few days and thats all that matters here.

She’s being cuddled by her family and given so much comfort. The last few stores
Of the whom family cuddling together is so beautiful and I would be happy to spend the end of my life being held by those that loved
me most. There’s no place for judgment at a time like this, espy of

I really feel that’s what’s kept her going for so long... the love she feels from her parents and those who surround them. She doesn’t want to let it go, but it will still be there with her in heaven. And her love will still there with her parents wherever they go.

That bond cannot be broken

Oops posted before I ironed out the typos

I was going to say especially when most people will never know pain like Ashley and safiyya

Donations to any oncology ward would also be appreciated. Some of the children will be an inpatient for a year or more. AML (the less common of childhood leukaemia) requires an inpatient stay of around six months due to the chemotherapy regime. Anything to make the children’s stay more enjoyable and comfortable is so appreciated! If you can’t donate money, toys which are wipeable and can be played with in bed such as little individual crafts are always great for these children.

@Cinderellashoes

Donations to any oncology ward would also be appreciated. Some of the children will be an inpatient for a year or more. AML (the less common of childhood leukaemia) requires an inpatient stay of around six months due to the chemotherapy regime. Anything to make the children’s stay more enjoyable and comfortable is so appreciated! If you can’t donate money, toys which are wipeable and can be played with in bed such as little individual crafts are always great for these children.

Thank you x

It’s just devastating. I can’t stop thinking about them all. Truly heartbreaking. Sending them all so much love.

I think it is amazing how her parents are staying so positive around her and making their memories. I am not sure I could put on such a brave face. It is an incredibly devastating situation I wouldn't wish on anyone. My heart breaks for them all. The poor little girl never had a chance of life but what she does know is she is loved and safe and the people who love her the most are there singing to her and are there the second her eyes open to the second they close. She is not afraid of what is to come and there is some peace in that somewhere. Her parents however will live with this pain forever and I am not sure how anyone moves on from that.

Talking of charities, I know there are many good causes but one that I try to raise money for the care of my baby girl is the Children’s Heart Unit in Newcastle, they are heavily reliant on donations and support the heart ward at the Freeman Hospital with equipment, toys for the children, help for the parent and they funded Scott House (the sick children’s trust home there) as well x

My baby is a similar age and I just can't imagine the pain, I've been holding her so close this week.
Her parents are being so brave and raising so much awareness which can only be a positive thing, I don't think I can look for anymore updates, just so traumatic!
I hope one day there is a way to prevent all this hurt and suffering

Hi everyone. Have thought about Azaylia on and off all day. I cried in the car on the way to taking my son out for a few hours because a song on the radio reminded me of her and her parents. Who I don’t even know.

Sometimes I try to rationalise with myself and say ‘you don’t know even them, it’s them that should be upset not you’! But I honestly can’t help myself. I have tried to avoid SM because I’m getting more upset at seeing her deteriorating. If I’m the future anyone of their family reads this, I hope they know how proud a bunch of strangers are of them.

@LetsGoChamp

Hi everyone. Have thought about Azaylia on and off all day. I cried in the car on the way to taking my son out for a few hours because a song on the radio reminded me of her and her parents. Who I don’t even know.

Sometimes I try to rationalise with myself and say ‘you don’t know even them, it’s them that should be upset not you’! But I honestly can’t help myself. I have tried to avoid SM because I’m getting more upset at seeing her deteriorating. If I’m the future anyone of their family reads this, I hope they know how proud a bunch of strangers are of them.

I feel the same and mentioned to my therapist she said it is very very sad but also people are a lot more emotional at the moment ... and invest more time in the story ... that saying I would still be very sad but would not have time to look at insta if I was back at work