Azaylia Cain

[LetsGoChamp]

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

@Yapplepearora you’re right. I definitely shied away from it before I had heard Azaylias story. Why would I choose to think of something so heartbreaking if I didn’t have to?

I think having my LB and being so lucky that he is happy and healthy and seeing Azaylia and her parents fight so hard just to live another day has changed me as a person. I hope it has and that it never leaves me how blessed I truly am. She is so lucky to have those two for parents, they’ve never shown her sadness, only fight, determination and love, in their shoes I’m not sure what my story would be. They are lucky for having her, for knowing her but they have drawn the shortest straw life has to offer and I thank them for making me a more patient, more fun and more loving mother.

We love you Azaylia. We are with you!

It hurts so bad seeing their updates..but nowhere near as hard as it is for her parents and family. I can understand why it has divided opinion, but they know the situation far better than any of us. They are doing what feels right for them.

As Cicely Saunders said “how people die remains in the memory of those that live on”. This could be helping them. I’m sure they are getting support from their palliative care team, they will not be left alone to deal with this.

They will naturally go through the stages of grief when mourning their beautiful little girl, guilt being one of them..some comments on this thread should not contribute to them feeling worse about their sad situation. Please have some respect and keep the thread as an act of support.

Such a relief to see her looking less swollen and uncomfortable on Safiyya's story although she's having to wear an oxygen mask now.
It's so cruel that just a few short weeks ago there was so much hope & now it's been snatched away so quickly and in such a brutal manner. I hope that the positive impact she's had on the world, whether it be people becoming bone marrow donors or just the awareness raised, will provide some comfort for her parents once she's gone.

Not sure why my post was deleted, I didn't say anything disrespectful and was only echoing the sentiment that others have said (and not had their comments deleted).
I get that this is a thread for support but it's also an important subject that is naturally going to have diverse opinions. No one's been rude or nasty or unkind, yet apparently touching on the topic of social media exposure is less appropriate than people saying they've been sobbing and rubbernecking at this little girls illness.

Stop barking on about social media exposure! Just because you don’t see it doesn’t mean it isn’t happening. I’ve seen children die like this every month in my 15 years working in paeds oncology. Maybe it’s a good thing people outside of the medical profession realise how cruel and devastating childhood cancer is. Medical treatments have come on leaps and bounds since I started working, anything that increases exposure and therefore funding into cancers like this is a POSITIVE!

@thenonsensepotter well someone stated that Ashley had removed her pain relief which is false so if that was you then your comment should have been removed. Also what @Cinderellashoes said. There is a time and place for having those kind of debates and this thread is very obviously not it, it came across as very disrespectful and distasteful

@thenonsensepotter then please start your own thread about such. This thread is purely for support as I’ve said time and time again. You say no ones been rude or unkind but they have, and you using the term rubbernecking is just rude.
This thread is not to discuss SM and the choices her parents make, whether we are right or wrong to be upset etc. It’s just to have a place to come to say ‘I feel sad’ and not be judged. So again, I ask you not to comment if that is not your gain. Thank you.

Just wanted to add that although it isn’t shown in the stories if their care is anything like in a London there will be a palliative care team or other HP supporting the family and working with them to ensure this little one is pain free. I understand it may come from a place of ignorance that you just don’t understand they don’t take a baby home who is dying and have zero input from anyone. But it’s just so unhelpful and uncalled for.

I'm glad I found this thread as I've found following their story so hard and emotional but at the same time i simply have to know what's happening. I cannot imagine how they are all feeling, what a heartbreaking situation. It's awful that Azaylia is so unwell, but I'm so glad that she has parents that are showering her with endless love and care. They are making the best decisions they can in an impossible situation. They have shown incredible strength and bravery. Keeping them in my thoughts and prayers constantly. Hopefully the outpouring of support will help them through the days to come.

@Cinderellashoes

Stop barking on about social media exposure! Just because you don’t see it doesn’t mean it isn’t happening. I’ve seen children die like this every month in my 15 years working in paeds oncology. Maybe it’s a good thing people outside of the medical profession realise how cruel and devastating childhood cancer is. Medical treatments have come on leaps and bounds since I started working, anything that increases exposure and therefore funding into cancers like this is a POSITIVE!

How rude! the poster in question was not 'barking on' about anything!

@Cinderellashoes the work you do is incredible, it must be so hard at times. I did wonder about how much support they would be getting at home from the hospital, I can't imagine they would just be left to it, as some people seem to assume. It takes a very special set of individuals to provide support to families going through this.

@thenonsensepotter oh for Godsake, just leave this thread!!! Unbelievable. What an insensitive person you are .

I hope they’re all ok today. I can’t imagine how exhausted they must be, both physically and mentally. That beautiful little girl is still holding on

@thenonsensepotter why is it inappropriate for people to have cried at what this girl is going through?

people cry at films, songs, books.....but its inappropriate to cry at something that is happening in real life and is as awful as this?

it may or may not be an important debate but there is a time and a place - this ain't it.

People have specifically asked, nicely for this thread to be kept positive. Not one person has said you can not have your views and opinions, but they are saying this is not time, place or thread to have your debates. Unbelievable that people are still carrying this on. Sometimes people's need to be right, out-weighs their need to do what's right. Just leave it now, and let it go back to a place where people are speaking about how this has affected them/well wishes for the family, as a lot of us don't feel as though we can speak about it to people in real life!

The children I look after are the incredible ones but thank you I love looking after our little oncology warriors and I wish for nothing but peace and happiness in little Azaylias last days. Her family are incredibly brave to continue to show how devastating this is 💔 it’s high time we all realised the realities of paed cancer.

This isn’t a thread about opinions

It’s about sharing how utterly saddened we are to see such a tiny little beautiful girl suffer so much and the heart wrenching agony her parents are going through

That’s all the vast majority want to say. It moves us because life at times just seems so unnecessary cruel

Let’s just keep it’s a warm hearted thread please

@thenonsensepotter

Not sure why my post was deleted, I didn't say anything disrespectful and was only echoing the sentiment that others have said (and not had their comments deleted). I get that this is a thread for support but it's also an important subject that is naturally going to have diverse opinions. No one's been rude or nasty or unkind, yet apparently touching on the topic of social media exposure is less appropriate than people saying they've been sobbing and rubbernecking at this little girls illness.

It's about a dying baby ffs why are you so arrogant you feel you need your 'opinion' heard?

It's horrific. I feel gutted for them.
I know the stories are hard to watch, but from this thread I've set up Amazon smile for a childhood cancer charity and a donation to a charity. I know the time has gone from her now and it's too late for the baby but there are thousands of other children and they should be proud they've raised awareness

@thenonsensepotter

Not sure why my post was deleted, I didn't say anything disrespectful and was only echoing the sentiment that others have said (and not had their comments deleted). I get that this is a thread for support but it's also an important subject that is naturally going to have diverse opinions. No one's been rude or nasty or unkind, yet apparently touching on the topic of social media exposure is less appropriate than people saying they've been sobbing and rubbernecking at this little girls illness.

And surely you'll understand that there are people on here who personally know the family, are grieving and don't want to listen to your holier than though thoughts about their actions.

If love alone could heal, this baby would be well. Regardless of your thoughts on their need to document her story through social media, there is no doubt they adore this little girl. I wish her and her family nothing but good wishes in the same way I do other families experiencing pain right now.

Life can be so very cruel at times.

There sometimes just isn't any reason to things that happen in life. Good things happen to bad people and bad things happen to good people. If you tried to understand it, you'd probably go batshit crazy.

@thenonsensepotter

Not sure why my post was deleted, I didn't say anything disrespectful and was only echoing the sentiment that others have said (and not had their comments deleted). I get that this is a thread for support but it's also an important subject that is naturally going to have diverse opinions. No one's been rude or nasty or unkind, yet apparently touching on the topic of social media exposure is less appropriate than people saying they've been sobbing and rubbernecking at this little girls illness.

Just stop, you obviously can't grasp the gravity of the situation. I don't understand how you can not see how you're being totally inappropriate. An 8 month old baby is very ill, she has battled cancer and now she is at the end of the road as no more can be done, it's devastating.

The whole country is behind her and her parents wishing them well, with enormous respect for the way they have handled themselves and for their devoted love and care of their daughter. Please just have some respect, think about it for a minute.

Just try, please, to have some empathy. If you can't do that then please keep your 'opinions' to yourself!

Ah I haven't been on here at all today to try and I'm so sad to come on and see negativity and arguments on what is supposed to be a supportive thread. Everyone is entitled to their opinions whether you agree with each other or not but can we keep this thread for what it was intended to be. The situation is upsetting enough without us arguing with each other about it. If this story has shown us one thing, it's that there really is more important things to worry about than whether we agree with each other about what Ashley and Saf are putting on social media.

Just seen the latest story of Azaylia playing with her cousin and my God it made me smile seeing her happy and having energy 💗

I hope everyone is feeling ok today

So horrified to see that this thread has been turned into this. It isn’t about opinions on the parents or what they do, it’s about a poor innocent little baby who’s losing her life. Why can’t that be respected.

Azalia i love you you little lion xxx