Active discussions

Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Talk
Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

See all MNHQ comments on this thread

Original poster

Azaylia Cain

835 replies

LetsGoChamp · 28/03/2021 21:23

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

OP posts:
sprinkleyumnut · 13/04/2021 22:06

It's so cruel. This poor little girl and her family.

duckme · 13/04/2021 22:14

I avoided reading the full story of Azaylia for a long time because I couldn't bear it.
I saw the headlines over the last few days where her parents announced that they were bringing her home and I honestly felt like I'd been kicked in the stomach. I felt physical pain for her and her family.

I just have no words. Life is so cruel sometimes.

SelfBuild · 13/04/2021 22:23

Everyday I've been hoping she'll last another day but seeing the stories of her today, she just looks ready to be at rest. The poor thing must be so, so uncomfortable. So devastating for them all.

Mugginyouleftrightandcentre · 13/04/2021 22:27

I wonder if her cancer was picked up earlier, would the prognosis be the same?

She was diagnosed at 8 weeks old with an extremely rare, highly aggressive form of Acute Myeloid Leukaemia, I don't think there is a single thing anyone could have done at any point to get a different outcome Sad

Marpan · 13/04/2021 22:28

I cry every time I see this on Instagram. What a brave little girl.

MrsDSalvatore · 13/04/2021 22:32

I definitely think this has made more people aware of childhood cancer, it most certainly has for me. I mean obviously I knew children suffered from cancer but to actually see it happening to a baby, see her journey, her suffering, how much she has had to fight to try and overcome this evil disease, the fact she couldn't have treatment without raising and extortionate amount of money. It has definitely highlighted for me that more needs to be done in regards to funding etc.
I think the fact so many have registered to be a bone marrow donor in her name just shows how much people have been affexted and I've definitely tried to contribute where and when I can, not just for beautiful Azaylia but for every child and their families who are out there going through the same.

I've been wondering how they came to receive her diagnosis. Not sure if I've missed that part of her journey of it they just haven't spoken about why she was checked in the first place.

I do genuinely believe there is a cure out there. I think if it was someone alot more "famous/rich" as you will, then a cure would be more readily available. I really do hope I'm wrong but I just feel like that's how the world works. That's why I'm praying to a God that I dont believe in that someone sees her story and wants to help. Seeing her on the latest videos though I fear that it may be too late. She really looks so so poorly, the videos really shocked me.

I hope her days are filled with love and happiness and I'm sure with her parents they will be. I pray she feels no pain and when the time comes, that she passes peacefully. She will be in my mind and heart always

CausingChaos2 · 13/04/2021 22:35

Yes, the poor baby looks so exhausted and washed out. I hope this isn’t inappropriate to post, I don’t necessarily feel that end of life care can’t be done with dignity at home. We managed the end of life care of a relative at home last year. With my relative, they were sedated and seemingly unconscious for the last few days. I remember the last time I saw my relative open their eyes, they had the same glassy look that I noticed in the last video posted of Azaylia. I do hope sedation is offered to her parents, if it would be kinder to Azaylia.

MrsDSalvatore · 13/04/2021 22:38

I also want to just say how thankful I am that this thread was started and that I have somewhere I can openly express how I'm feeling about it all without the worry of being looked at like I'm nuts or upsetting other people too much. I tend to find that alot of people don't want to talk about the uncomfortable or upsetting things, which is completely understandable but sometimes you just need to be able to express your emotions

rainbowlou · 13/04/2021 22:40

@MrsDSalvatoreim sure I saw him on Instagram encouraging parents to trust gut instinct.
I think they took her the doctor a few times and were told it was a runny nose and constipation.
I may be wrong so apologise if this isn’t the case..I don’t know what made them test further though.
It’s just heartbreaking for them all, the poor girl looks absolutely exhausted now.

HidingInTheFridge · 13/04/2021 22:42

This thread has been a saviour, Azaylias story has affected me so much more than anything I’ve seen

I hope this little lion leaves a legacy as powerful as her parents, there should be money plunged into paediatric cancer, it sounds so silly that the funding isn’t there to find a cure or even just better treatment for the next generation of heroes

Justanticipating · 13/04/2021 22:53

@MrsDSalvatore

I definitely think this has made more people aware of childhood cancer, it most certainly has for me. I mean obviously I knew children suffered from cancer but to actually see it happening to a baby, see her journey, her suffering, how much she has had to fight to try and overcome this evil disease, the fact she couldn't have treatment without raising and extortionate amount of money. It has definitely highlighted for me that more needs to be done in regards to funding etc. I think the fact so many have registered to be a bone marrow donor in her name just shows how much people have been affexted and I've definitely tried to contribute where and when I can, not just for beautiful Azaylia but for every child and their families who are out there going through the same.

I've been wondering how they came to receive her diagnosis. Not sure if I've missed that part of her journey of it they just haven't spoken about why she was checked in the first place.

I do genuinely believe there is a cure out there. I think if it was someone alot more "famous/rich" as you will, then a cure would be more readily available. I really do hope I'm wrong but I just feel like that's how the world works. That's why I'm praying to a God that I dont believe in that someone sees her story and wants to help. Seeing her on the latest videos though I fear that it may be too late. She really looks so so poorly, the videos really shocked me.

I hope her days are filled with love and happiness and I'm sure with her parents they will be. I pray she feels no pain and when the time comes, that she passes peacefully. She will be in my mind and heart always

If you go Ashley's insta page on 19 Oct 2020 he made a post about her having breathing difficulties and stomach pains which were passed off as a blocked nose and colic. So many common things you'd see in newborn babies, their parental instinct was on point!

I agree with some of the comment on here though that she should be in a hospice now and resting up and getting full support. I think she'd be much more comfortable. 😔

HidingInTheFridge · 13/04/2021 22:58

I think on his IGTV video he said the reason they want her at home is because they’ve never been able to see her as a normal baby in her own environment, all she knows in that sense is hospitals and procedures so I’m hoping she is more relaxed at home, I don’t know how I’d be mind I think I’d be a useless mess!

I know they said they’d been to the GP who just said it’s standard newborn stuff but they phoned 999 or 111 who dispatched an ambulance

Justanticipating · 13/04/2021 23:11

@HidingInTheFridge

I think on his IGTV video he said the reason they want her at home is because they’ve never been able to see her as a normal baby in her own environment, all she knows in that sense is hospitals and procedures so I’m hoping she is more relaxed at home, I don’t know how I’d be mind I think I’d be a useless mess!

I know they said they’d been to the GP who just said it’s standard newborn stuff but they phoned 999 or 111 who dispatched an ambulance

Personally I'd struggle with it being at home, to watch her pass away, those images will be forever engrained in that house and not as easy to escape.

And that's a good point too, she probably knows the hospital more. I'm undecided.

WhatssUpP · 13/04/2021 23:22

I really can't bare seeing sick children/babies especially after having my own. I just don't want to even imagine what they are all going through right now. I've decided to follow their story for the past few weeks and every time a post or story pops up from their account, my heart literally skips a beat just in case they have shared that heartbreaking update. It is so cruel, no baby/child should ever experience this ever. There are so many sick children in this country and across the world, I am tonight praying for a miracle to cure them all including Azaylia. Please science and God, please step in and help them 🙏

HidingInTheFridge · 13/04/2021 23:30

I agree, I don’t think I could go through it at home. My dad died at home and we moved out after 8 weeks as it was too much, too many memories

CausingChaos2 · 13/04/2021 23:35

We all manage death and grief differently - I don’t feel any difficulty in being in the room and the home my relative died in. Infact, with time, it has brought comfort that she died at home instead of in hospital. I can only hope Azaylia’s parents go on to feel the same way.

Yapplepearora · 13/04/2021 23:36

I can get why people feel the way they do about the Instagram stories. The poor thing looks exhausted. However the parents are probably in denial about how fast her deterioration has been and are probably trying to squeeze every last bit of joy they can get with her. I’m sure she’ll be on strong painkillers, and will be tucked up in bed cosy with mummy and daddy now.

HidingInTheFridge · 13/04/2021 23:39

I think today’s story was the most distressing. She looks so tired and poorly.
I’m sure she’ll be so snug and content knowing how loved and cared for she is, she’ll leave her mark on us all I know that much

babbaloushka · 13/04/2021 23:41

@MrsDSalvatore

I definitely think this has made more people aware of childhood cancer, it most certainly has for me. I mean obviously I knew children suffered from cancer but to actually see it happening to a baby, see her journey, her suffering, how much she has had to fight to try and overcome this evil disease, the fact she couldn't have treatment without raising and extortionate amount of money. It has definitely highlighted for me that more needs to be done in regards to funding etc. I think the fact so many have registered to be a bone marrow donor in her name just shows how much people have been affexted and I've definitely tried to contribute where and when I can, not just for beautiful Azaylia but for every child and their families who are out there going through the same.

I've been wondering how they came to receive her diagnosis. Not sure if I've missed that part of her journey of it they just haven't spoken about why she was checked in the first place.

I do genuinely believe there is a cure out there. I think if it was someone alot more "famous/rich" as you will, then a cure would be more readily available. I really do hope I'm wrong but I just feel like that's how the world works. That's why I'm praying to a God that I dont believe in that someone sees her story and wants to help. Seeing her on the latest videos though I fear that it may be too late. She really looks so so poorly, the videos really shocked me.

I hope her days are filled with love and happiness and I'm sure with her parents they will be. I pray she feels no pain and when the time comes, that she passes peacefully. She will be in my mind and heart always

A cure to what? Cancer? There isn't, it's an incredible complex and multifaceted disease with so many different types, no one treatment works for all. There are different places offering different experimental trials, but often at cost if you aren't native or covered by the healthcare authorities (hence why they needed money for Singapore).

I find it ridiculous when people allege that there is some magical cure out there, hidden by the Government for profit. How disrespectful to the hundreds and thousands of scientists dedicating their whole careers to improving the lives of others.

ComDummings · 13/04/2021 23:46

Gosh that poor family. I don’t know how her parents are still being so strong, I guess they have to be. She’s a gorgeous little girl, seeing her so poorly on the recent Instagram stories is so difficult, I just can’t begin to imagine how her mum and dad are feeling. You can just feel their love when they post about her, so much love.

OhWhyNot · 13/04/2021 23:52

I can’t possibly imagine how they feel they are doing what they feel is right for their baby.

Poor little beautiful girl. Truly heartbreaking

Life is so damn cruel and unfair at times and so so desperately sad 😞

I’m hoping right now she is comfortable and snoozing and they are all cuddled up together

Bluebird2021 · 14/04/2021 00:04

I too hope she is now comfortable and resting

She looks so sick, and Ashley said when she cried her tears contain blood. I get he wants his ‘firsts’ with her but I felt really uncomfortable and so sorry for the little baby out in the street. Is that in her best interests?

Bless her heart, bless all of them

LittleDoritt · 14/04/2021 01:13

I can't get over how much she has deteriorated over the last 48 hours. It's absolutely devastating.

Hannsmum · 14/04/2021 01:18

@Bluebird2021

I too hope she is now comfortable and resting

She looks so sick, and Ashley said when she cried her tears contain blood. I get he wants his ‘firsts’ with her but I felt really uncomfortable and so sorry for the little baby out in the street. Is that in her best interests?

Bless her heart, bless all of them

I honestly felt the same way tonight. I know I don't know what they are feeling but seeing the little baby in the streets tonight on Safiya s story made me burst into tears... She looked so uncomfortable and tired I felt she should just be resting.im just hoping she's not in so much pain..

I keep checking for updates every minute praying and praying for a miracle.xx it's so distressing I can't sleep Sad

Justanticipating · 14/04/2021 01:21

@Bluebird2021

I too hope she is now comfortable and resting

She looks so sick, and Ashley said when she cried her tears contain blood. I get he wants his ‘firsts’ with her but I felt really uncomfortable and so sorry for the little baby out in the street. Is that in her best interests?

Bless her heart, bless all of them

I said this on another forum and got slammed as being disgusting and the parents should be allowed to do what they want cos it's their baby. But my thoughts are always with ensuring the dying baby is most comfortable.