Azaylia Cain

[LetsGoChamp]

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

God, to think just 8 months ago these 2 were enjoying their lovely new newborn and no doubt imagining the entire life ahead of her, and now they are saying goodbye to her

It's just so so awful and I have no idea how her parents are finding the strength in her last few days.

Agree with previous posters... I hate hijacking the topic but I honestly can't understand how someone can believe in a kind and loving God after seeing this.

I have been following her story for a while and I am absolutely heartbroken for her and the family and amazed at the strength of Ashley and Saffiya.
I've found today and yesterdays stories really difficult to watch as you can physically see the deterioration in poor Azaylia. It's honestly just so gut wrenching.
Poor wee soul.

@LazyName I can’t stop thinking about her. It’s devastating, her brain is still trying to learn and grow like a normal baby around the tumours and she’s still doing all of those lovely curious baby things, grabbing daddy’s face, trying her strawberries. As far as she’s concerned, she’s just a little baby wanting to learn about the world

I hope that they’ve fit in so many firsts during this last little time.

Walking her up the street, strawberrys, I hope she’s seen the sunshine every day, the snow and all the most beautiful things we take for granted.

No God would allow a baby to suffer this way, aswel as all the other suffering going on around the world. I'm not religious in the slightest but struggle to see how anyone could believe in a God who would allow such suffering.
Azaylia deserves to grow up and have the happiest life and her family deserve to see her do that. They should not be waiting for their 8 month old daughter to pass away. The world is evil and cruel. It makes me so angry.
Like someone else has said, I'm so glad that all she has known is pure love

It’s breaking my heart. Ashley and Saffiya are amazing. All these children and parents who have gone through this, I have no words. How they’ve the strength I don’t know.
I just wish I could do something to save her. Her little face, it’s just absolutely heartbreakingly awful. I know she knows how loved she is by her amazing family.

Just seen Saffiyas recent stories, she looks so swollen and poorly my heart breaks, still so beautiful and so strong

My heart is so broken for them. As a stranger I can’t bear to see her look so poorly, to feel so hopeless for them so I cannot comprehend how they feel.
The world is unbelievably cruel.
How can this be happening to such a poor innocent baby? I can’t fathom it.

She looks so, so ill in her mums latest stories. I don't think it will be long now. Poor precious sweet girl, how are there still people who believe in a merciful God!?

She looks so ill poor little girl 😭

It's a shame they're not in a hospice where the staff would support them as well as take care of her medical needs which are going to need intensive management.

I can't help but think they've been really poorly advised to try and do this at home. For reference I've worked in EOL care, I'm not being judgey.

It’s really getting to me. I feel so helpless and wish there was something I or anyone could do to save her 😭

I can’t fathom that they’re watching their child to pass in slow motion like this, life is so so so cruel

I wonder if her cancer was picked up earlier, would the prognosis be the same? It’s just hard to accept that literally nothing can be done for families in this situation

@ConnieCaterpillar70 I know where you’re coming from. I suppose as she’s been in/out of hospital her entire life, her poor family wanted to spend this time together at home.

I’m glad it appears they’ve both been in the hospital room with her on the occasions she’s gone for the platelet transfusions. Previously before she came home they had a petition going because it was so hard on them only having one parent be able to be with her in hospital at one time. I suppose the hospital know it would be barbaric to separate the family for any period of time at this stage.

Such a horrific situation for this family. That poor little girl.

I feel uncomfortable about the clapping etc though. There are hundreds of extremely sick children in hospital without famous parents. I was alongside them with my little one for a while. I feel like they're somehow forgotten which is of course not true, we just can't comprehend the magnitude of the grief and fear of all those families. But I hope this family's story raises awareness of others, hidden away on hospital wards, with very poorly little ones, some of whom won't come home.

@ConnieCaterpillar70

It's a shame they're not in a hospice where the staff would support them as well as take care of her medical needs which are going to need intensive management.

I can't help but think they've been really poorly advised to try and do this at home. For reference I've worked in EOL care, I'm not being judgey.

I agree, a hospice would be less harsh on all of them.

I can't watch them bouncing her around any more on Instagram, it's too distressing to watch. Too distressing to share?

Their distress is insurmountable. But should we be witnessing this?

I often thought that with azaylia, if it had been caught earlier could it have been cured? But she was only 8 weeks when diagnosed so if that’s the case how long had she bloody had it?! It’s the most cruel disease and I can’t imagine how they must feel watching her deteriorate like this. I don’t know how they even do it I know I couldn’t

@October2020 I’m so sorry to hear your little one is so poorly too. It has absolutely raised awareness for me- I’m going to be looking for charities that support very poorly children and their families so that I can personally make monthly donations to and also raise money for.

Seeing how fast Azaylia has deteriorated is so upsetting, poor poor little love. I really hope they are able to keep her comfortable. She looks like she just wants to rest now.

@HidingInTheFridge - babies can be born with cancer, which is beyond horrendous.

I can’t watch anymore, I don’t judge them but it seems intrusive when she looks so poorly 😔 my heart absolutely breaks for them & Azaylia. She doesn’t deserve to have her life cut so cruelly short. I hope & pray it’s peaceful & they are well supported ❤️

[quote HolmeH]@HidingInTheFridge - babies can be born with cancer, which is beyond horrendous.

I can’t watch anymore, I don’t judge them but it seems intrusive when she looks so poorly 😔 my heart absolutely breaks for them & Azaylia. She doesn’t deserve to have her life cut so cruelly short. I hope & pray it’s peaceful & they are well supported ❤️[/quote]
My heart breaks for her parents, who are preserving every second with her.

I just can't watch any more.

Been following this thread for a while but decided to post something today.

Her story has really affected me, like it has with most people. She's the first thing I think about when I wake up and the last thing I think about when I go to sleep. I pray every single night for her to either find a miracle for her illness or to pass with ease and in no pain whatsoever. I did believe in god but honestly, I'm really starting to question if there is one because if there is and he's letting this happen then f* him.

I had a DD who is 13 months old so not much older than beautiful Azaylia and I feel that this is why I'm so invested in her journey and feel so emotionally touched by it. I've cried pretty much none stop, break down at random times in the day just thinking about what she and her family is going through.

My mum told me to stop watching if it's making me so upset but like the rest of you, I just can't. I feel helpless as it is so I feel this is the least I can do to follow her journey step by step with her as she's the one who's having to live through this torture.

No baby/child deserves this. I honestly thought she would get through this, she fought so hard and overcome every single battle but it just kept coming backI'm struggling to accept that there isn't a single person on this planet who can help and that she's ran out of options - I just can't accept it.

I've always lived by the motto "everything happens for a reason" but for this little girl, there is no reason. This beautiful, strong, brave little girl should not be experiencing this.

Like a PP said, it's how she's still getting up day to day and doing normal baby things that breaks me. She must think this is normal and that this is her life - she doesn't know any different.

Her story will stick with me forever.

@HolmeH that is just horrible :(

I think Azaylias case will bring so much more awareness to childhood cancers, I don’t think it gets much funding

@cripez can't help but agree with you, it's absolutely horrendous and tragic for all concerned but she looks worn out poor baby and a hospice would be a more dignified, comforting place for her I feel.