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Original poster

Azaylia Cain

835 replies

LetsGoChamp · 28/03/2021 21:23

I can’t stop thinking about this poor little girl. My heart hurts for her family. I know she’s not the only child fighting a life threatening illness but she’s all I’ve thought about today.

Sorry if this post upsets anybody that is familiar with this little girl.

OP posts:
blindspots · 14/04/2021 01:54

Thank you to everyone who has followed the link I posted a few days ago, we all know a lot of research is being done into cancer all the time but childhood cancer specifically receives a fraction of the total research budget.

Having been in their shoes I understand that what they are showing may be considered distasteful/ inappropriate by some, but the benefit of most children not dying in infancy these days is that many of you have probably never been in their shoes watching your child die before your eyes.

What we did was probably considered inappropriate by others too. I was taking a break from cuddling him and eating pizza in the hospital room when my son took his last breath in his daddy's arms. They will know exactly what is happening to her, and how she is slipping away from them, and they are making the choices they feel is best for Azaylia with what they are feeling and the resources that they have.

AML in children is so aggressive that the treatment just often doesn't work, she probably didn't even have it that long before it was picked up - that's how quick and insidious it is.

I probably need to step away now, thank you to everyone who has expressed condolences about my son and signed the petition.

rainbowlou · 14/04/2021 02:10

@blindspots I just have no words but please don’t ever think anyone considers that as inappropriate Flowers

Cobb121 · 14/04/2021 02:51

Ashley just posted a video of her being taken back in to hospital 😭 it’s so horrible to see a little baby suffering like this I hope she’s at peace soon

BurnerPhone · 14/04/2021 02:58

Just sat here cuddling my baby back to sleep and watched Ashley's latest story of her in the ambulance. It doesn't look good, heartbreaking to see her like this

OwlBeThere · 14/04/2021 02:59

She looks so sick, and Ashley said when she cried her tears contain blood. I get he wants his ‘firsts’ with her but I felt really uncomfortable and so sorry for the little baby out in the street. Is that in her best interests?

If she is not in pain then whatever they choose to do is in her best interests. She has days left, it really doesn’t matter what they do at this point, does it?

Hannsmum · 14/04/2021 03:15

@BurnerPhone

Just sat here cuddling my baby back to sleep and watched Ashley's latest story of her in the ambulance. It doesn't look good, heartbreaking to see her like this
Honestly 😥😥 I can't sleep. So heartbreaking
Strawberryjam45 · 14/04/2021 03:40

Thank you for this thread. Utterly heartbroken by this poor baby's suffering and Ashley's latest story has broken my heart. So sad x

Eastereggfan · 14/04/2021 04:24

Just woken by by DD and checked their stories and the images of her in the ambulance have broken me. Lying here so upset for that beautiful baby girl. It's so so unfair.

JLR12 · 14/04/2021 04:31

Praying so hard that this hospital visit is just a minor set back for Azaylia! The videos over the last few hours are heartbreaking, seeing how quickly she has deteriorated is devastating. I hope whatever the outcome is from the latest update that the little fighter feels how loved she is and is not in any pain. It really makes you hold your loved ones that little bit closer. Xxx

SaltedCaramelIcedLatte · 14/04/2021 04:42

It is so so so sad, Azaylia looks so tired bless her! I really admire her parents they are both being so strong for her x It is heart breaking watching them all x

Stillfunny · 14/04/2021 05:51

My cousin's grandchild was diagnosed with this , shortly after birth. From then on , it was a series of hospital stays . I visited once , when she was around 3 months old. Baby was so alert and so sweet and it was hard to believe she was so ill. But in a hospital cot , the reality was very stark . She did go through a bone marrow transplant , but it did not work . The outcome of this disease is never good , but you can understand the parents desperately willing to try anything that might work . Baby died at 9 months , similar to this little girl. Seeing her tiny coffin still haunts me as the saddest thing I have ever seen . These poor parents have a lifetime of heartbreak ahead of them. Hoping that the thought that so many people cared and wanted to support them , brings some comfort .

CookieBlue · 14/04/2021 07:17

I do understand why people look at their Instagram photos and think it is too distressing or that they shouldn’t be outside etc but what must be going through their heads?? Can you even begin to imagine Sad. There is no way I would be thinking straight right now, no way. They must be all over the place, absolutely desperate to make every second count and it must be utterly breaking them. As long as that baby girl is not in pain, they should be allowed to make the memories that they wish.

It is true they are heading for a lifetime of heartache and I’m not sure how they will ever know “normal” life again after this. My heart hurts.

And bless you @blindspots. Sending you all the love in the world too. This has hit me like a ton of bricks and I feel so desperately sad for any family going through similar.

OllietheOwl · 14/04/2021 07:22

Guys don’t forget that the 30 second clip we see each day is just a tiny, tiny fragment of what they are going through. I’m pretty sure 95% of her day is resting and sleeping. They wanted to give her some normality as all she’s known is hospitals, that’s why they are at home with her.
Don’t forget they have brought her into hospital the last 3 nights running because they’ve been concerned. They’re not ignoring any signs of her being uncomfortable.
How can you balance the last chance to give your baby some normality with the need to manage her end of life care? Every decision must be so tough for them and I don’t think anyone can judge unless they have been through it too.
Heartbreaking to see the updates as always. Praying little Azayli is comfortable and knows she is surrounded by love as always.

ProbablyGryffindor · 14/04/2021 07:38

Her parents are so strong, and exactly what their baby girl needs. It’s so obvious to see how much they love their daughter. I find the photos heartbreaking to see, and don’t have the strength to watch any video.

Never judge any parent, and especially ones who are walking a path that hopefully most of us will never walk. They are raising awareness, giving us a tiny glimpse of the nightmare they (and lots of other families) are going through. They aren’t any more special than the other families experiencing the same heartache, but they’re in a public position, and are raising awareness. Don’t question that the baby is outside (maybe for 25 mins, or maybe for the 30 seconds in a video). It was the first time they’d been able to experience that together.

They are the most fantastic parents, I hope Azaylia is comfortable, and sending much strength and love to her incredible parents.

ChocBeforeCock · 14/04/2021 07:47

I think Ashley and Safiyya are best placed to decide what is in their dying daughter’s best interests. They clearly adore her and I’ve seen no suggestion through any of this that they have done anything other than their very best for her.

Maybe Ashley wanted his daughter in her pitifully short life to know what it felt like to be out in the open air.

I don’t know if you’ll see this blindspots but sending all the love in the world to you Flowers

goldielockdown2 · 14/04/2021 07:57

I hope that when the times comes, Azaylia will know only comfort as well as pure love. I suppose, and I really am grasping, that the only 'blessing' here is that this lovely little girl won't know any fear or have any understanding of the situation she's in.

cripez · 14/04/2021 08:33

@ChocBeforeCock

I think Ashley and Safiyya are best placed to decide what is in their dying daughter’s best interests. They clearly adore her and I’ve seen no suggestion through any of this that they have done anything other than their very best for her.

Maybe Ashley wanted his daughter in her pitifully short life to know what it felt like to be out in the open air.

I don’t know if you’ll see this blindspots but sending all the love in the world to you Flowers

I honestly don't feel any judgement about them sharing their daughter, because I have no idea what they are going through.

It's not me judging them that makes me ask if we should all be watching this distressing footage, but more I guess a question of 'is this where we are as a society now?' with social media in our hands 24/7.

lottieproject · 14/04/2021 08:49

Maybe the support they're having off the public and the people who view their Instagram is comforting them in some way and that's why they are sharing? Maybe they feel that she was important to thousands of people not just to them so that's why want to share some of her last few days? I understand what people are saying, I feel wrong looking at the videos and photos too, like I am intruding on something private. but I can't begin to imagine how they are feeling and I hope I'm never in their situation. My heart breaks for them trying to fit a lifetime into a few days.

ChocBeforeCock · 14/04/2021 08:50

@cripez I know exactly what you mean, I meant it in response to the poster querying if it was in Azaylia’s best interests Flowers

Bitofanexpert · 14/04/2021 08:54

Blindspots, sending every good wish I possibly have to you. You are an amazingly strong mum and person. Xx

Wingingthis · 14/04/2021 08:54

I get that people thinks she looks exhausted last night, she really did. Safiyya and Ashley are perhaps more normalised to it (for lack of a better phrase) and so to us it looks much more dramatic them taking her out in the streets. It was probably just a little stroll round the block with their poor baby who has been stuck indoors in a hospital her whole life. Something most of us take for granted!
The doorstep clap wasn’t organised by them but they probably felt like they had to bring her out for that.
They are wonderful parents, and we see minutes captured out of their whole day so I’m sure she’s resting for the remaining parts of the day. Ashley is often shown rocking her, I’m sure they’re making her as comfortable as they can whilst also trying to make precious memories.
Heartbreaking, I can’t even bare to think what I’d do in their situation but they are most definitely doing their absolute best and are being beyond fantastic. 🤍

Sugarbelle · 14/04/2021 08:56

I mean, you don't have to watch their videos? I rather fear they're damned if they do damned if they dont by some of the recent comments on here.

dont share distressing videos of her, oh dont take her outside, she should be in a hospice.....

do you genuinely believe for a second that her parents have not considered all options and are not doing exactly what they think is best? they are the ones who are living this hell and I really do despise any comments that lay any judgement at their door whatsoever, especially those who think they know better. you absolutely do not.

they are just incredible and I will forever admire them as human beings and parents.

crispychicken12 · 14/04/2021 08:56

I know they probably get comfort from the love and spirit via Instagram, but i think the time she has left would be best spent privately. Though, they probably do need the comfort and support from social media.

I can't imagine what they're going through, I can't even read the recent news articles because it upsets me. She's so poorly, no child should have to go through this. Life is so cruel.

CookieBlue · 14/04/2021 09:22

Agreed. There should be no judgement whatsoever. NONE. Their life is being torn apart. We are seeing two, three minutes of their day in a 24 hour period? Let them be.

cripez · 14/04/2021 09:26

@Sugarbelle

I mean, you don't have to watch their videos? I rather fear they're damned if they do damned if they dont by some of the recent comments on here.

dont share distressing videos of her, oh dont take her outside, she should be in a hospice.....

do you genuinely believe for a second that her parents have not considered all options and are not doing exactly what they think is best? they are the ones who are living this hell and I really do despise any comments that lay any judgement at their door whatsoever, especially those who think they know better. you absolutely do not.

they are just incredible and I will forever admire them as human beings and parents.

I don't think anyone has outright said 'don't share pics' - people here have been very sympathetic, and respectful of the fact that they couldn't possibly understand what the family are going through.

My comments about sharing were more like 'is this where society has got to now, where we are watching a child deteriorate in real time, from a device that lives in our hands/pockets' and I wasn't even saying whether that was right or wrong. Like you said I can choose not to watch, which is what I have done now. I do still have posts pop up in the search bar 'recommended posts' though.

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