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Thread 4 Shielding chat

485 replies

Egghead68 · 08/12/2020 09:55

Thought I’d set this up as we don’t seem to have one. Please delete if we do and I’ve missed it.

OP posts:
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9
OneNightTimeMenaceStrikesBack · 04/01/2021 21:18

ugh that is all

Didkdt · 04/01/2021 21:31

It’s them actually calling it shielding again that I find disheartening.

OneNightTimeMenaceStrikesBack · 04/01/2021 21:40

i fidn it all just too much right now. as soon as the word shielding came out of bojos mouth, my reaction was 'oh for fucks saaaaaaaaaaaaaaaaaaaaake'

Egghead68 · 04/01/2021 21:41

They called it shielding in the last emails to people in Tier 4 too.

I wonder if we are allowed out for exercise?

OP posts:
cookiemonster5 · 04/01/2021 22:04

Hi folks I'm new to shielding chat. Want a rant with people who will understand if that's ok?

My husband and one of my children are shielding. I struggled a lot the last time being the only one who could go out and all the responsibility falling on me. We had support from friends at the time but now I feel they are taking the piss royally now and I'm fed up of the jokes.

They don't think we took shielding seriously. And that we took the piss. A couple times my husband had to go to the shop because medication I had taken meant I couldn't drive, or he wanted to give me a break because the kids were acting up or just because he felt like he wanted to get out of the house for 5 minutes. We also chatted to those friends in the garden a couple times. They were passing the garden so rather than chat over the fence we sat at opposite ends of the garden. We even measured the distance between our seats and theirs and it was 4 metres so double what was advised. It wasn't a daily or even weekly occupancy. Less than 4 times over the 5/6 months of the original shielding here in Scotland.

Tonight when it was announced our group chat got onto the topic of shopping and people stockpiling. I mentioned that if people were reasonable and followed the rules then we wouldn't be in this situation now so why would they behave this time? That started the comments like "oh like those shielders?" and "make sure you follow the rules lol". I've held my tongue but I'm raging.

They are lucky they are not in this situation and have no idea how hard it is! We didn't have massive parties or gatherings or did anything wrong. What difference was there chatting for a few minutes over the fence at 4m distance to chatting and sat down at 4m distance once or twice? And why the need for the passive aggressive comments?! I have pmdd and some days I really struggle in crowds and even going outside the door. Maybe 3 times my husband got milk and bread from the shops or fresh meat for the tea while I struggled to function but apparently that means it's open season to take the mick out of us at every opportunity?!

Has anyone else experienced this type of aggression from people and any advise for how to cope? I often let things get to me and overreact due to my pmdd so I'm actively trying not to read too much into things and take a step back before reacting but I don't feel like I'm wrong for feeling like this.

Didkdt · 04/01/2021 22:14

@Egghead68

They called it shielding in the last emails to people in Tier 4 too.

I wonder if we are allowed out for exercise?

I know it just sounded different this time he said then said we’d be told not to leave our homes which was much more the tone of March than November
Poppystars · 04/01/2021 22:43

Last time I had a shielding letter, we did not go out of the garden even as a family. Not one shop, chemist or pharmacy.

I have not had a new text or email. I am worried I have been removed from the list - no doubt I have, so will not get the vaccine at priority 4! My condition has not changed but it is not a normal one so is on no lists.

No idea what to do. I did not get any updates in autumn either. I applied for Vit D just to see if I got them! Receptionist at Dr say it is nothing to do with them, end of conversation!

Hope the next few weeks go well. Is anyone working from hoke with children or will you seek key worker places?

UnholyStramash · 04/01/2021 23:09

Hello everyone, [MarieVanGoethem] in particular. Thanks for the shout out. I’m okay, thanks, very weary from all the measures and the worry and not feeling very safe with this new variant that seems easier to catch. I feel very low at times - it all just feels relentless. We’ve all avoided the nasty lurgy so far so that’s good. Re-freeVitD, the Scottish government sent out letters and texts 2 or 3 months ago. Fortunately I didn’t need to act on it as I’m already on prescribed calcium and vitamin D tablets.

@bloodywhitecat, I read your other threads about your husband’s illness and I’m so sorry you’re both in this awful situation. If he’s on active chemotherapy of any kind I think he is supposed to be shielding. His chemo nurses and others on his team should have discussed that with him. Somebody’s maybe just forgotten. Maybe he should ask about it. And, as others say, do make sure you get on any lists for support services.

UnholyStramash · 04/01/2021 23:15

Bugger, see what having only half a brain does - square brackets instead of @. Urgh!! Xmas Blush

Everyone, I’ve been reading this thread regularly, occasionally lose it but now I’ve posted on it no doubt it will be easier to find in future.. I know some of you are going through some difficulties and I’m sorry about that. I really not up to posting or doing individual responses. We all just need to keep on keeping on. Flowers

UnholyStramash · 04/01/2021 23:28

Now read to end of thread - I think the difference in shielding from before is that it’s less strict. So we can go out for exercise but we aren’t supposed to be with anyone from other households, use buses. We can do food shopping too but need to be really careful. Obviously some people are being advised to do the ‘mega-shield’ so if you’ve had different advise just ignore my comments. I’m reading between the lines and I think some of the measures introduced in March were due to panic over a big unknown. Now the scientists and medical people have a better idea how the virus behaves and have toned down the guidance for many of us. And I’m in Scotland so the guidance we get is slightly different from England’s DOH.

UnholyStramash · 04/01/2021 23:34

@cookiemonster5, I’m sorry your friends are behaving like this. I suppose everyone’s under huge strain with the pandemic and the news is horrific just now. It feels like there’s no end and lots of people are struggling even with no shielding. What you did seems to have been within the guidance, more or less. They sound terribly bitchy and unpleasant though - it’s not nice to be on the receiving end of this.

Didkdt · 05/01/2021 01:51

@Poppystars technically my role is a key worker adapted to WFH it’s going to be hard but I shall continue to work from home with the children here.
I think new shielding emails will come out over the next 24 hours with hard copies within a week shielding is a double edged sword and I wait to see what the latest guidelines will be I’m also waiting for my vaccine slot even my boss eagerly asked today when that would be.

MarieVanGoethem · 05/01/2021 05:23

@FourTeaFallOut
I hope your DS had a good day in school & that he does ok with the forthcoming lockdown too (seriously, waiting until term started to decide?!). You didn’t say anything at all to apologise for though - it’s much better to let that stuff out of your head; & releasing it into a space where there are people who’ll - to varying degrees - Get It, is A Good Plan. It’s ok to reach the point where you [need to] say actually, this is a bit pants frankly (maybe even going rash & not adding All The Qualifiers).

@OrganTransplant123
I hope you can get your PD catheter placed soon then: will keep my fingers crossed. Hopefully you’ll be able to have it done laparoscopically, though I think the mini-lap is pretty mini because they just use the incision to place the catheter they don’t poke about. And surgery time is the same. I spent FAR too much time in hospital in 2019, I do not require this knowledge. Well I suppose it’s vaguely useful now, but... Whatever ends up happening I hope it all goes well though.

@Babysharkdoodoodood
I’d never considered a career as an [ornamental] anchorite, but apparently it’s my life now Hmm

@Egghead68
We’re still meant to be going out to exercise in Tier 4 aren’t we; so my guess would be that they’ll say yes to going out for exercise but that you have to ensure you distance from people not in your household (also thinking meeting that one person not in your household that’s allowed outside in T4 is likely to be nixed for shielders). They were really concerned about the impact not going out was having, so they’re probably going to try to encourage people to do so. Hard to guess what they’ll decide though really - suppose we just have to wait for The Letter Hmm

@cookiemonster5
I’m so sorry...
For a start, shielding is entirely optional & the guidelines are advice meant to help protect the CEV group (well & the NHS) - if your DH makes the choice to go to the shops it’s absolutely not the same as someone breaking the actual rules designed to contain the spread & protect everyone. Everyone in the CEV group had to do things differently, in line with the realities of how their lives work. I’d love to use my own bathroom, but as I don’t have one & building & extension is out; we had to settle for my brother & I moving to having our own hand-soap, & my putting in another towel-ring so we could have a hand towel each too.
For this time around, are you signed up to all the help that’s available to you? So priority delivery from supermarkets, but also getting prescriptions delivered, community support with getting your messages if you’re stuck... do you live somewhere with Deliveroo? (I’m not after thinking that Scotland lacks the sophistication; I’m just aware that the Highlands & Islands, say, won’t have the same coverage as Edinburgh for example.) If you do, in a pinch you may be able to get a wee shop from Co-Op, Morrison’s, Sainsburys, or a wee local shop like Londis. I’ve done that between my “big” online shops.
I don’t think saying anything is likely to help you any unfortunately; but what was said was so unkind & unhelpful that if I were you I’d genuinely be evaluating the friendship. Not in a “huge dramatic unfriending” way, but if these are people who aren’t supportive of you/generally make digs at you[r family]/create a group dynamic where you are consistently the butt of “jokes” - do you really want to keep up a friendship with them?
Be gentle with yourself Flowers

@Poppystars
Can you contact your consultant? And it might be worth emailing the practice manager at the GP surgery to set out your concerns. If you were added to the list at the discretion of a [team of] medic[s] (rather than “simply” because you’re on an immunosuppressant drug for whatever condition) there should have been another discussion prior to your removal from the list. I mean, and they’re meant to write to you, but it seems that didn’t happen with lots of people. It’s not ok for the GP receptionist to say it’s nothing to do with them - GP surgeries still have to regularly update their list of CEV patients, so they absolutely have access to that data; & GPs can add/remove patients. You could try PALS at the Trust where you see your Consultant/are treated for this condition - particularly if you’re treated across multiple teams. I suppose the Nuclear Option is to contact your MP about how the shielding list is being [mis]managed & the impact this is having - we were told in the summer they’d write to anyone removed from the list by the end of September but while you seem to have been tested you’ve not had any communication & as a result have been left in a really stressful situation. I hope you’re able to get some answers - & support - soon.

@UnholyStramash
It’s nice to “see” you (apparently my local foxes are glad too, just as I wrote that some very loud, er, singing, started up in my garden [aka SE London’s top nightspot for the local vulpine populace]) Smile
I’m sorry you’re not having the best time just now - I mean, not that anybody’s having a wonderful time, but it is wretched to feel worn down &/or out. The new variant is scary stuff - I don’t know if it’ll reassure you at all that it’s been in London since September & I’ve had to go to multiple hospital appointments (& my brother to work at a university over the other side of London). Plus had a British Gas engineer in & a new tumble-dryer delivered. I mean, I’m still scared & I’m REALLY careful, but I’m proof - as are some of the others on here - you can be somewhere full of the new mutation & be ok. (And I was told in the summer that I wasn’t allowed to go further than my front garden & that just to put things in my bins. Wearing a mask & distancing if I see people.)
You’re always free to come & brain-dump at us if it would help. The things you think other people might think sound silly won’t, I can pretty much guarantee, sound silly here. There’s some stuff that you can only really get - however lovely & empathetic you are - if you experience it yourself. Don’t ever feel pressured to join in though - thank you for answering about the vitamin D, I really appreciate it Grin

@Didkdt
They’re saying we’ll (everyone in Priority 1-4) all have had our first dose by mid-February. Of course, we’ve now to wait 3 months not 3 weeks for the 2nd dose & if we get the Oxford vaccine the first dose is nowhere near as potent as the Pfizer... I hope you - & indeed all of us - are able to be vaccinated soon.

Egghead68 · 05/01/2021 05:53

@cookiemonster5 sorry about your friends. I have had lots of comments from one person to the effect that I am skiving (sp?) off work, letting colleagues down etc., choosing not to come to work for my “work life balance”, shouldn’t be being paid a full salary etc. I have decided to adopt the advice of Ruth Bader Ginsberg to “always be a little bit deaf” and it is serving me well. I simply act as though I haven’t heard them or have heard something different (while internally the perpetrator is going massively down in my estimation).

@UnholyStramash and anyone else I forgot to tag into this thread at the beginning - I am so so sorry. It was not deliberate. I meant to come back and add in more callouts but I simply forgot (I had long covid brain fog at the time and was also mega busy with work). I am glad you have found us again.

@MarieVanGoethem you are so good with replying to us all individually. Thank you. Did you get sorted with your medical treatment?

OP posts:
MarieVanGoethem · 05/01/2021 07:48

@Egghead68
I’m not sure about good, but I try to reply to everyone as the shielding stuff is so sodding isolating as it is. I do worry about missing people if I’m MNing While Tired though (TBF that’s basically always; but sometimes more so than others...) You are very thoughtful with replying to everyone yourself though - & with sharing news/updates/links. I’m sorry you’ve had someone be such an awful eejit to/at you: mentally muting them is definitely the way to go; but it’s still horrible having someone go after you like that. People are often quick to accuse others of things they [would] do themselves though - so for example liars think everyone lies because they do so with no compunction - apparently you know someone who skives any chance they get & thinks nothing of leaving their colleagues in the lurch Hmm
You shouldn’t feel bad for not managing to tag everyone when you started the new thread, either - there have been heaps of people on the various threads! Keeping it going was fab.
Hopefully my GP will now be able to prescribe as supposedly consultant sent an urgent email yesterday, but I’ve not huge amounts of hope that my pharmacy will be able to get the drug to them - never mind to me - by tomorrow night. At this point I think my vitamin D injections I’m going to have to follow up through PALS because normal-polite chasing up hasn’t worked & as well my levels having been through the floor in June as it was it’s not much^ use relying on them to bring my calcium up & delay aggressive treatment for the osteopenia (that in my spine is creeping towards osteoporosis & frankly my spine has quite enough problems without that). Everything else can/has to Just Wait (I’ve already spent actual years waiting to wait for the jaw surgery it was obvious in my first appointment I needed; & if I have to have urgent surgery for something else I’m still just^ intubateable - & they can dislocate my jaw if they need to, though that’s not ideal)... I’m really aware how lucky I am to have had so much care during the pandemic though - scans & tests within a few weeks of them being ordered as well as phone, video & face-to-face appointments. And email contact with people as well, for that matter. I’m a lucky creature in that regard. Well I mean I’d rather not need any of it, but given I do, am very grateful that I’ve not been left with bigger gaps in my care/having to chase more things than has been the case.

cookiemonster5 · 05/01/2021 07:58

Thank you everyone. I feel a bit calmer today.

Unfortunately we don't have Deliveroo or any such luxuries lol. Though I live in a major port and a very important place regarding fisheries we are classed as highlands and island (even though they are in truth over 100 miles north of here but who are we to argue with the postal
system) and so it's too expensive for anything like that to be set up. I've got an Asda delivery pass though I use click and collect because they have started charging for deliveries now. We have prescriptions at 2 different pharmacies but I'll be looking at getting them to deliver or at least bring it to the car for me. My sons medication gets delivered to the house already so that's one less thing to worry about and it quite nice actually because hauling all his injections and sharps boxes, gloves etc isn't the easiest job. He comes with a lot of accessories lol.

I have been evaluating the friendship for a while now. Since Xmas. It's not our original friends that's the problem it's their friends who have sidled into the group too. One of them, the female, is particularly toxic. Think your typical schoolgirl bully. But for some reason they have this loyalty to this horrible person so it's a case of we put up with her or we lose the entire friendship group completely.

When I told my kids yesterday that there is no school till Feb at the earliest and that we needed to go back to shielding my middle son (the one who needs to shield) looked like he wanted to cry. His face just crumpled and I felt sick.

Madhairday · 05/01/2021 07:59

Hello, and thanks so much to @Egghead68 for the shout out - I somehow missed it back in the mists of December, but it's great to find this chat again.

I was in tier 3 so hadn't had a new shielding letter, but guessing everyone will be getting one now.

When I was first shielding we went the whole hog, completely isolated in the house, no hugs, dh moved into spare room etc. Part of me feels I should do that in this last stretch but I don't know if I can cope with it again. I did a scaled down version in November where I stayed in general circulation in the house but dh in spare room and tried to stay 2m away from him and the DC.

What's everyone else doing this time?

I'm so sorry to read of what some of you are going through. It's been a hideously tough time Flowers

Me and dh both woke up feeling grotty with headaches this morning and I started to get the fear again. Then reminded myself it's very normal for me to be ill through the winter (lung disease) and to stop worrying. But it does bring an extra dimension doesn't it :(

FlatteredRhubardFool · 05/01/2021 11:02

Virtual hugs and hand holds to you all this morning. It's shit isn't it.
I'm hoping we still get walks. I need to get some shopping to my mum today and I was going to walk up with it. It's just over a mile and up hill so it's a good work out. We could go part way along the canal but the towpath is narrow and likely to be busy. Might have to start wearing masks on walks.
I am so relieved about schools that I cried. I've been so worried about ds bringing home the virus to me.

Madhairday · 05/01/2021 11:38

Has anyone who was in tier 3 had a shielding letter/email yet?

Begonias · 05/01/2021 12:19

@madhairday I'm also in tier 3 and have had no correspondence whatsoever. In November the shielding letter arrived 3 days after the announcement but text messages and emails were sent out that very evening.

Madhairday · 05/01/2021 12:23

Yes it was the same for me in November, begonias - got the email the same day then the letter 2 or 3 days later.

NewCatMummy · 05/01/2021 12:33

I was tier 3, guessing the tiers don’t apply now? A sigh of relief that I’m not having to go back into COVID soup secondary school but also feeling useless and dispensable that I have to be in a bubble. Lucky to have teenagers who are self sufficient so not trying to homeschool small people but just generally feeling crap. No letter yet but it’ll take a few days I’d have thought.

Egghead68 · 05/01/2021 12:49

Yes tiers are so yesterday.

A lot of people are probably feeling crap at the moment. It sounds trite but imagining all the ways life could be worse can make you feel better sometimes, I find. (It’s a less Pollyanna-ish version of counting your blessings/3 gratitudes).

OP posts:
bloodywhitecat · 05/01/2021 20:51

Really stoopid question (and I am sorry, I have Googled but everything I can find is dated Dec 2020)...can those who are shielding still go out for exercise? If he can't get out to walk the dog the stress of staying in will probably do him in long before the cancer does.

Babysharkdoodoodood · 05/01/2021 21:05

@bloodywhitecat

Really stoopid question (and I am sorry, I have Googled but everything I can find is dated Dec 2020)...can those who are shielding still go out for exercise? If he can't get out to walk the dog the stress of staying in will probably do him in long before the cancer does.
I think that'll be down to common sense. Go out early or late when it's quiet. Don't go to busy areas etc.