Can I share my joy?

[QueenPaws]

I've suffered from hives/urticaria for the past 23 years, and been unable to exercise/walk/get my HR up/wear a coat(!) for the past few years they've been so bad
Today I got approved for a medication which has a great success rate but is expensive to the NHS, hard to get and not commonly used
I am so so happy

Yep, it's basically last chance saloon type thing!

@QueenPaws I have my fingers crossed for you today, I'm sure it will be fine and hopefully you will see some improvements!

This is amazing, happy for you!! I've had several bouts of severe idiopathic urticaria in my time and it was horrendous, by the end of the 3ish weeks it usually lasts for I could really feel my MH suffering, it's just horrible. Must be awful to live with constantly.

Fingers crossed it's successful for you!!

I am all injected (2 into my stomach) and now just have to sit and wait. I have a reclining chair so not too bad

Hope you're nice and comfy! Is it something you have to have repeatedly? When will you know if it's working?

Every 4 weeks I think for 16 weeks and see how it is then. Could work instantly or take a month

I even got breakfast! All done and home now

@QueenPaws amazing you got breakfast too! Now I am jealous, we don't get that where I go. Although the nurses are very friendly.

2 days later... this is before injection and now
It seems to be working. I had a small flare but nothing like usual

Congratulations! I have had urticaria (very mildly compared to how you have been affected) in the past and it was so debilitating and limiting for me. So happy you’re seeing such great results

Oh, wow, what a difference! I'm so glad it went well and seems to be working!

Wow I’m thrilled for you, well done injections in stomach are painful, so pleased for you with the results.

@Holothane weirdly I didn't feel them! I inject myself in the stomach weekly anyway with a drug that's very stingy so was expecting it to hurt but felt nothing

Oh that's great op. My sister uses it and also had great results. It really is an amazing drug. Shame it's so expensive and hard to get.

Great news for you, I hope the medication works.

I’ve had a skin condition for years that affects my hands and is quite disabling when it flares up. I’d been dismissed for years or told it was eczema. They finally did a biopsy of one of the blisters in February and it showed that I’ve actually got a rare skin condition and I finally started on some medication for it last month. It’s shown a great improvement. It took a while I get as it could only be prescribed by a dermatologist.

Good luck with your medication.

Who needs actual Christmas gifts 😭😭😭
I hoovered like a normal person with long sleeves and the heating on and this is the only hives I have

Oh wow! Thats such good news OP

I suffer with hives too and they've been getting worse in recent years. No where near you yet but Im really pleased to see something seems to work for you

I’m so very pleased for you @QueenPawPaws I can’t imagine how much this must mean to you.

@SameToo I'm scrubbing down the kitchen and singing
The cat is doing face at me and has retreated away from the mad woman

carry on!!!

Update. Still having flares but they seem milder
Next two injections tomorrow, just have to stay 1hr after them. Then I can inject at home!
Home is 2 injections a month for 2 months then I get reviewed
Can't sleep as I'm excited

Omggg 😱 surely there must be something that can prevent it like a medication

Wow, how life changing for you!! & a short course of injections really, I was expecting you to say they were ongoing!

I've only just seen your thread, I quite like it when I do that, it's like binge watching a box set!

Ps. You have lovely lips.

Pos blew us know how it goes tomorrow!

@Geekster1963

What's the name of your rare skin condition please? My daughter apparently has eczema (hands and ankles) but I'm not convinced...

@QueenPaws

I just found this thread....so happy to hear the injections are working and that you'll be able to do them at home soon...
I know your cat and not my cat will be pleased that you don't have to leave them anymore.
Thank you for sharing your fabulous news!