Has anyone been diagnosed with ehlers-danlos syndrome?

[doadeer]

What were your symptoms? Who were you diagnosed by?

Anything you can tell me.

Tbh most ppl I see have Ed's pots and fibro x

Just realised all female members of my family have POTS. Also that weird thing when you have to rest after taking a shower. Also after washing up.

I have HJS and suspected hEDS. but was told there was no genetic test for it. Never been officially diagnoised but three doctors and a physio have all suspected.