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Anyone want to have a guess at what’s wrong with me? Getting fed up now!

32 replies

40somethingJBJ · 28/07/2020 23:48

Disclaimer: I am under the doctors, but these things take time, as we know.

I’m disabled - degenerative disc disease, fibromyalgia, a brain injury several years ago and I just generally hurt from head to toe and have no energy at all.

In the last year or so, I’ve felt like I have constant heartburn/indigestion, have been mainlining Rennie and have been having a lot of heart palpitations. I’ve mentioned it to the gp several times but they haven’t thought it’s anything to worry about, and have put it down to anxiety.

A couple of months back, I had a strange episode of heart palpitations where I felt like my heart had stopped, felt really light headed and dizzy and was shaking for about an hour afterwards. My face also often goes numb and tingly. I went back to the gp who referred me for blood tests.

Bloods have shown a huge increase in white blood cells, so I’m now under haematology to investigate this. I’ve had a telephone appointment with them, and am due for more bloods this week, then another telephone call at the end of the month. Man I spoke to suspects rheumatoid arthritis, but wants to rule out anything more sinister. Doesn’t think there’s anything that could cause my white blood count to be raised which could also cause heart palpitations.

Back to the gp for an ecg, which showed nothing. I’m now awaiting a 24hr heart monitor.

My symptoms are strange - some days there’s nothing at all, then today I’ve felt odd all day. I woke up in the middle of last night shivering and out of breath, with my heart racing. I put it down to a bad dream or something, had a glass of water and went back to sleep. I’ve had a heavy feeling in my chest all day, like I need to burp but can’t, and the palpitations have been awful. It feels like I have something too tight around my chest - not really painful, more like I need to take a too small bra off. My heart rate and oxygen sats are fine (I’ve got a monitor), but it feels like I can’t take a deep breath properly.

I’ve wondered about a vitamin deficiency of some sort and have been taking vitamins B, C, D and magnesium on top of my usual multivitamin. My thyroid is “low functioning” but not officially under active yet. Palpitations are sometimes worse after eating, but not always.

I just feel so utterly shit all the time and want to know what’s up. When I have a day like today, with awful palpitations and a tight chested feeling, it worries me that it’s something really serious, but surely a heart condition etc would’ve shown up on the ecg, so I’m trying not to worry too much, as I know anxiety will make it worse.

So, any guesses? I’m utterly fed up :(

OP posts:
Footle · 29/07/2020 06:45

Are you aware that you can overdose on Rennies? They are not harmless.

TheCanyon · 29/07/2020 06:53

@Footle I had no idea about that. Just did some googling and found this interesting article re antacids and b12, sorry for the dm link.

www.dailymail.co.uk/health/article-1197979/Heartburn-pills-wrecked-life-How-antacids-effects.html

fleurdeliz · 29/07/2020 06:59

What meds are you taking?

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Shosha1 · 29/07/2020 07:03

Costochonderitis. I have Fibromyalgia and Lupus, had similar symptoms. Had 5 ECGs. Had a camera put down into my stomach. Then had a heart monitor.

In the end it was a paramedic who suggested it when yet again I had to call one out after such chest pains I couldn't breathe.

I asked my GP, who sent me for a scan, and yep, thats what it was.

Unfortunately from the flare of it I had initially, I now gave had it constantly for 3 years.

I live on painkillers.

40somethingJBJ · 29/07/2020 09:39

I wasn’t aware either. My doctor knows how many I use and hasn’t said anything!

OP posts:
40somethingJBJ · 29/07/2020 09:41

@fleurdeliz

What meds are you taking?
None other than an asthma inhaler twice a day and a shot load of antacids.
OP posts:
LunaLoveFood · 29/07/2020 10:32

With your heartburn/reflux I had very similar and also had extremely tight and painful chest, almost difficult to breathe o was diagnosed After a trip to minor injuries and then ambulance to a&e (very embarrassing) turns out it was just reflux (the minor injuries thought I was having a heart attack!).

After lots of tests it turns out I have a dairy allergy. Stopped all dairy and symptoms including IBS have disappeared.

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