Hello,
I was just wondering if anyone on here has HAE?
My husband, his brother and mum have it and unfortunately we just had our 8month old tested and we've been told he has inherited the gene :(
I'm feeling really guilty, sad and worried about it and I wondered if anyone can tell me their experiences of it, particularly as a child.
My husband doesn't like talking about it much or is very matter of fact about it and I guess because I don't know too much about it I'm more worried. Fear of the unknown I suppose.