Anyone want to join me on a 'I have arthritis and I'm pissed off thread'?

[mineofuselessinformation]

Just that, really.
I'm sick and tired of various joints deciding to grow bone and hurting like hell.
Today's joy is a painful thumb that really let me know about it when I got stuck in traffic so was turning my ignition on and off.
Attached is a picture of the offending digit, carefully bound in KT tape as that seems to help.....

@ToeTouchingTitties have you made contact with Arthritis Care /Versus Arthritis? They have a youth project which can help you and your son.

I'm so pissed of with it and my hyper mobility, my right knee likes to pop out of joint whenever it feels like it! Not great when your a nurse speaking to a dying persons relative and you fall
Over! Luckily they saw the funny side off it.
Not seen my consultant in over 2 years she's seems to of disappeared of the face of the earth, although she claimed I don't have ra I'm just obese

I was diagnosed with RA when I was 20, and I'm now pushing 60, so long experience. I went on methotrexate in the 1990s when it was fairly new for RA, plus sulfasalazine and hydroxychloroquin, and I'm still on them. I was on Humira for quite a while but have now switched to a different anti-TNF therapy.

I can honestly say that these drugs gave me my life back. I am no longer in constant pain, I do 12,000 steps a day plus Pilates and no longer need a walking stick.

They do have serious side effects and risks, but before Methortexate there was gold or high doses of steroids for extended periods of time, and the side effects of those were awful and they didn't even work that well. Without them I would have been housebound years ago. For me, the improvement in the quality of my life is worth it.

It's horrible, but you have options now which a different generation didn't have. And on the plus side, when you are pregnant RA disappears completely.

I’m in. I’ve got psoriatic arthritis too. Diagnosed when I was early twenties. It’s a (quite literal) pain in the ass - well, hands, toes, hips and knees if we’re being picky

I’m on benepali (cheapo version of Enbrel anti tnf stuff). It’s been a life saver joint wise but I still have plenty of scabby skin although just started on enstilar which seems to be actually working to improve the skin unlike the 9000 other skin treatments I’ve tried.

Feeling particularly ropey this eve with joints but hoping some naproxen and lying flat on the couch will help with that.

I also feel like I’m 95 not 45. Arthritis sucks.

I have mid-foot arthritis, and it really doesn't like wet weather. I'm going to be popping painkillers from now until Spring.

Anyone with ordinary osteoarthritis who can recommend good long release painkillers? My hips are badly affecting my sleep now.
(Not that I'm convinced it isn't some type of inflammatory arthritis by the way, as I have problems with my skin too, but was RA negative when I had moods done some time ago).

Bloods, not moods!!! If

I have PSA and have been on Etanercept for a year. It’s been a game changer for me.

@mineofuselessinformation I was told years ago that psoriatic arthritis doesn’t show up on blood tests for RA.

Hi everyone, RA here. MTX refuser, I've had the tablets and the injections, both worked to an extent but made me horrendously ill. Sulfa made not one jot of difference but did give me bright yellow wee!

I decided I wouldn't accept any more DMARDs or try biologics until I'd had input from Occupational Therapy, Orthotics and Physio. I've now got various different splints, insoles and gloves as well as a daily exercise routine but it's only really made a slight difference.

I can accept being ill but I do find it hard to accept the deformities which are creeping up on me - wonky fingers and bunions, despite having never worn heels. Any Oval8 wearers about?

mine - are you considering hip replacements? Amazingly good at painkilling!

Has anyone used cosentyx?

I was on MTX initially but came off it as my consultant wasn't sure I was tolerating it. I'm now on all the other non-biologics - sulfazine, leflunomide and hydroxychloroquine. I bloody rattle.

Generally things aren't too bad as long as I resist the temptation of cheese although I still have inflammation which makes the consultant unhappy. And I don't have the grip to throw the DC around as much as they want.

Hi 👋
I've been diagnosed with psa for 2 years now (although had symptoms since my teens and turned really bad when I had my DD 17 years ago). Been on mtx for the 2 years - works well at higher dose but I feel so unwell so on a medium dose. Tried sulphasalazine- made me really unwell - horrid stuff. Just started on imraldi - feeling pretty good after first injection which is positive.
I also have osteoarthritis and AS - oh the joys! Gave up work earlier this year as in way too much pain - went into my hands and that was it.

I'm 47 btw - and also feel about 97!

Chewbacca, I'm in my mid-fifties. Would they even consider me? I'm sitting (wonkily) on my floor tonight as my left hip hurts even when I'm sitting down.

mine yes, absolutely. You need a referral to an orthopaedic surgeon if you haven’t already, they’ll assess you, I think, on how bad the damage is and the effect on your life. There is the issue that they will need re-doing potentially multiple times if you are young, but for me, it was transformative & I will deal with any follow up surgeries when I need to. I had mine done at 33 and 35 (now 46). I have pain in other joints now but my hips are pain free.

I have osteoarthritis in both kness, I take zapain, ibuprofen and tramadol. (Tramadol on a weekend or days off). I've just had the steroid injections in both kness.....it's only helped slightly. I've been told they will not consider me for surgery due to my age, 47, as the likelihood is it will need doing again and it's less effective 2nd time round.......personally I think it's more due to costs. I am never ever free from pain ...it's the fucking bain of my life.

I have some arthritis (tailbone and hips diagnosed, hands not diagnosed) but also fibro, so it's difficult to tell whether the "new pain today" is fibro or maybe a new bit of arthritis. Currently I have muscles in/around my hips/lower spine going into spasm, meaning I can't sit or stand without pain, lying down is OK so long as I'm on my side, and don't need to roll over because my shoulder and arm start hurting.....etc etc etc

I had this a couple of years back, and the physio was pretty useless as the exercises I was supposed to be doing, I couldn't get into the starting positions for, as all my joints are really stiff. Yoga would help, assuming I could get down onto the mat in the first place, same with pilates, although the one class I did go to was pretty embarrasing, as everyone had moved on to the next thing before I'd got into the starting position for the one before. I need to look into "one to one yoga for really stiff people", and request that i don't do anything on my knees (absolute agony where the shin joins the knee if I kneel, even the slightest weight).

And because everything hurts so much, and I'm so stiff, exercise is hard (and yes, being lazy doesn't help ), and then I overeat because it's all so crap, and the excess weight makes it all worse . HRT was a bit of a godsend, but this latest lot (had to change due to shortages) isn't as helpful, so my motivation has dwindled away, just as the weather's got colder and wetter, which makes me hurt more anyway.

Not totally convinced there's not something inflammatory going on, by the consultant was adamant it was "just fibro", so I'm stuck with that diagnosis. They've stopped me taking naproxen (which is the only thing that works on my hip/pelvic musles), plus the omprazole I need with it, so I'm limited to paracetamol (plus pregablin and amitriptyline for the fibro), ibuprofen gel (ok for surface muscles, not where i need it to go really) and ice packs/wheat bags down my jeans (not in public!).

It's all a bit crap really.

Ok, so I'm feeling even more pissed off now....
After three weeks of waiting, I finally saw a GP today. She said (and I wasn't surprised to be fair) that some of it seems to be muscular - I think my muscles are responding to sore hips but hey ho.
So, she's arranging x-rays of my hips.
I have to self refer to physio (which may be some exercises in the post 'until I find what's suits me'.
And the thing I didn't want to do in the first place - take codeine before bed if I think I'm going to have a bad night. For starters, I don't have a crystal ball. Secondly, I don't want to end up like my DM who is dependent on opioid painkillers.....
Needless to say, after all of the poking and prodding I had to take a dose of codeine this morning.
Sorry for the rant.

EDS, PsA and Ulcerative Colitis. Had a hip injection a month ago, good in some ways, no pain for a coyof weeks, now different pain. I’m assuming that as the swelling has reduced it’s now even easier for my hip to slip out of joint! Also got third dose of Humira next week. So far nothing, no difference to colitis or arthritis and fuck it’s grinding me down.

A couple of weeks! Sorry.

X ray on your hips is a good step on the road to seeing an orthopaedic surgeon. Keep at it!

Omg! So glad I found this post..I'm feeling so down at the moment! I have enteropathic arthritis which is linked to my chrons disease. My chrons is the best it's ever been (on Humira and azatjioprone), but my arthritis is flaring!
My rheum suggested butrans patches as the cocodamol isn't working, and I can't take NSAIDs

Hello my people, I have juvenile rheumatoid arthritis diagnosed at 4 now nearly 32.
Having a really rubbish time at the moment I think it's a change in the weather and starting back to uni (which I do from home) really struggling with pain levels, activity levels and generally just being human at the moment. Waiting on a rheumatologist appointment regarding my elbow that I can't move and my wrist etc on the same side has swollen to heck. Also my new knee from last year seems to be a bit creaky! Haha
On the plus side I am very lucky to have my two doggies to cuddle and a very understanding husband.

Thank you chewbacca!
I've also dug out an infra-red massager with a deep muscle attachment, and that did seem to help for about an hour.