He turns 13 today 
After a busy day a moment to take stock and reflect. In many many ways he's doing way better than we could ever have hoped during those scary pregnancy days, but there have been choppy waters galore nevertheless and still lots of certainty what the future holds. Still no firm diagnosis - this consumed me when he was younger but now I don't care, but it's not a big deal.
The support I had on MN back then meant so much, which is why I thought I'd check in today!