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9 year old with possible Chronic Fatigue syndrome/ ME any experience?

26 replies

PanannyPanoo · 13/04/2019 14:42

My 9 year old daughter is currently waiting for an appointment with a paeds specialist as our GP feels she may have CFS. I just wondered if anyone had any experience / advice.

She has had lots of blood tests and there doesn't seem to be anything underlying, she is wiped out for much of the day, has given up after school clubs, needs encouragement to play outside is constantly achey and sore and generally a very unhappy little girl. We have a daily battle to get her to school, though once there she is fine, totally shattered when she gets home though and basically stays on the sofa til bed time.

Many thanks for any advice, she seems so young to be feeling this way.

OP posts:
ScarletAnemone · 14/04/2019 17:31

This document has loads of good advice on how to manage ME/CFS. It’s written by a retired GP who had it.
www.me-cfs-treatment.com/wp-content/uploads/2013/03/Get-Well-Guidelines-Revised-2012.pdf

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