My 5 year old DD is constantly tired. Due to this her behaviour is out of control at times. She will scream and hit just because she is so tired she can hardly stand up.
Docs have monitored her oxygen levels through the night and say this is fine. They also did some basic bloods which were fine.
They said some time ago she is hypermobile but will not diagnose her with the syndrome until she is a teenager. So will not help her.
We are tearing our hair out. It is affecting the whole family and none of the health professionals seem to be bothered.
Anyone been through similar? Any advice welcome