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Original poster

To ask for a handhold - DH tumour

116 replies

GrandmaSharksDentures · 10/10/2018 17:13

I've NC for this (and do regularly), not too sure why though!
DH has been diagnosed with a brain tumour today. Seeing the neuro-oncology team tomorrow who will tell us the plan.
Shit
He's young (ish) 46, I've just started back at university. Our son is only 6
I just feel numb, don't know what else to say, sorry

OP posts:
Bluewidow · 10/10/2018 20:53

I do hope that your husbands diagnosis is as best as it can be for him. We as a family have recently been through this and we really had the worst case. Please do inbox me if you need to. Re money he shoukd be eligible for pip and the Macmillan team can make the application on your husbands behalf assuming it is cancerous that is- which I hope it isn't.

Horsemad · 10/10/2018 20:56

Thinking of you. X Flowers

SassitudeandSparkle · 10/10/2018 21:05

Sorry to hear this OP, hope the appointment tomorrow goes well and he is home and comfortable now.

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SandunesAndRainclouds · 10/10/2018 21:05

Sending warm wishes for a speedy diagnosis and plan Flowers

CrabbityRabbit · 10/10/2018 21:52

YY to contacting MacMillan and trying to get benefits etc sorted quick before he goes for treatment and you are distracted.

Flowers what a horrible shock.

FiveGoMadInDorset · 10/10/2018 21:55

If not Macmillan, the unit that DH is being treated at had a specialist social worker who sorted out his PIP while he was in for chemo, also ESA

CurbsideProphet · 10/10/2018 22:02

I'm so sorry for your situation Flowers

Your DH can ask his medical team to complete a special form for the DWP to make the claim for PIP. That bypasses the usual claim system. I can't remember what the form is called (something like FP1500?), but the hospital will know. Other benefits (ie ESA / Universal Credit) depend on class 1 NI contributions during the previous tax year.

You can apply to Macmillan for a grant too.

Wishing you all the best Flowers

MrsPerfect12 · 10/10/2018 22:47

Thinking of you all, hope you get some answers quick and successful treatment. Xx

Daisychainsandglitter · 14/10/2018 17:18

I'm so sorry to hear this OP. All the best to you both. Hoping there's a speedy treatment plan put in place soonThanks

percheron67 · 14/10/2018 17:50

Funsponges I suffer from migrants too!! Apologies to OP. The diagnosis does seem v quick. That would give me confidence I think. Hand hold from me.

ScottChegg · 14/10/2018 19:58

I hope you are ok GrandmaShark, I keep thinking about you. x

Original poster
GrandmaSharksDentures · 14/10/2018 20:05

Hi, sorry I haven't replied before I am so touched by everyone here & their kind words
It started last Saturday with what we assumed was a hangover after a night out. Headache worsened & he developed nausea & lethargy. He is on blood thinners after a heart attack & there was a possibility that he'd hit his head whilst drunk on the Friday night. He went to A&E who did a scan & found a tumour.

We have no news or treatment plan yet as his case was pushed back out of the Drs meeting as others had been waiting longer.
We are due to see the neuro-oncology team on Thursday morning
He is remarkably well & went back to work on Friday.
We told our DS that daddy has a lump in his head & the doctors will help to take it away. We told him now as there have been many conversations & I don't want him hearing "half a story" and imagining the rest

OP posts:
Original poster
GrandmaSharksDentures · 14/10/2018 20:07

@CurbsideProphet thank you, that sort of practical information is very useful

@Bluewidow thank you. I will al OST certainly be in touch once we have a diagnosis.

OP posts:
Cantchooseaname · 14/10/2018 20:15

The whirl wind of it all will catch up with you, and that’s ok.
We had similar week earlier in year- backache became paralysis over 4 days. Tumour removed, benign, doing ok.
Self employed, back at work far too soon. But coping.
3 months on, I’m not. It’s hard to admit, but I’m struggling. I should be (am) delighted it’s going to be ok. But it’s changed both of us.
In the dark days I dug out life insurance, looked at house valuations, worked out how much equity....
today- look after each other.
Make sure you have some support too- from whatever source you can.

Original poster
GrandmaSharksDentures · 18/10/2018 08:27

Well today is the day we find out what's going on & what the treatment plan will be. All good thoughts gratefully received pls....

OP posts:
HaveIturnedintoThatParent · 18/10/2018 08:32

Thinking of you and sending lots of strength for today.

TheWitchwithNoName · 18/10/2018 08:34

Sending good wishes

SnuggyBuggy · 18/10/2018 08:35

Happy to send some good thoughts.

littlemissalwaystired · 18/10/2018 08:37

Thinking of you both todayThanks

CurbsideProphet · 18/10/2018 08:39

Thinking of you Flowers

OrcinusOrca · 18/10/2018 08:44

Thinking of you all 

RollyCow · 18/10/2018 08:46

Thinking of you 

Toomanytoremember · 18/10/2018 08:47

Hoping it's positive news Flowers

bizzers · 18/10/2018 08:56

Thinking of you all today Flowers

dontknowwhattodo80 · 18/10/2018 08:57

Thinking of you today @GrandmaSharksDentures x

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