My internet connection is something I pay for as an aide to living, it is there when I need to order food, or other things, to avoid the need to traipse painfully around shops, and in the event that I cannot get out, like recently, it is more than essential. I can access my bank, pay bills, find public transport and actually use websites to plan to a tee my outings in such a way that they use up the least energy and leave me feeling the best I can. I've researched the benefits I am entitled to ONLINE, I found the charities that support us ONLINE, I found the grants for essential equipment ONLINE, I found the support for when we are in a crisis ONLINE, homelessness advice ONLINE, disability discrimination facts so I could appeal a council housing decision ONLINE. Everything I know that gets me by has been found mostly online, or at least the connection to the charity or advice giving service online.
The EU and UN state that internet access should be a human right [http://www2.ohchr.org/english/bodies/hrcouncil/docs/17session/A.HRC.17.27_en.pdf]
It really annoys me that people see us poor folk on the internet and believe that we are being extravagant or somehow mis-prioritising our benefit money (send us all to hell, how dare we spend our money on something like that!).
Certain technologies have improved my life no end and I actually use my disability money to fund them, like my tablet which I can take notes on as quickly as I could writing them onto paper, because I can't hold a pen and write. SKY TV because I have autistic children who freak out and meltdown if they have to do anything at all and miss what they were watching. Now I can pause things, rewind them, store them, get them from a library, and it only cost me £30 for the first year because I used my internet to find special offers and money back deals, and thus used money I set aside for the children anyway to make it so.
If people want to think I get too much, then maybe we should look at the things I don't get.
Sleep. My daughter barely sleeps, and if I let myself sleep too deeply she does dangerous things, I could go into the lists of things, but it's depressing.
Pain free existence, every moment of the day I hurt, some days less than others, but this is me for the rest of my life, and if I want some comfort in the form of internet to chat to my friends or make my life easier I don't see the problems.
Peace of mind. I never never relax. I have to worry about whether my daughter will come home from school having hurt other children, hidden or run away. I have to sleep with one eye open because she has no sense of danger and thinks playing with a hot iron would be fun. I have to stop her hurting her brother, breaking stuff, running away, licking the sockets, and trying to open and climb outside windows on the second floor.
There's more, but lucky me, part of my condition (one of them anyway) is fogginess of thinking. Which means for now that's all I can remember. And also really doesn't help with keeping on top of all the possible forms of danger my daughter might find and keeping her safe, I spend a lot of time coaxing her down from high places and taking pictures of the bruises or bitemarks she's given to anyone she see's on a regular basis.