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New paper argues that “gender-affirming care” for adolescents should not be measured by whether it’s “effective”

70 replies

UtopiaPlanitia · 27/12/2024 19:27

Thread on TwiX from journalist Leor Sapir:

https://x.com/LeorSapir/status/1872632988531372290

"A new paper argues that “gender-affirming care” for adolescents should not be measured by whether it’s “effective” at reducing psychiatric distress and improving life functioning. Authors (inc. A. de Vries) gesture toward an “autonomy” focused model.

To be clear, this line of thinking has animated the “affirming” model for a while now. The authors are now saying it explicitly. Clinical/psychosocial outcomes don’t really matter, apparently. This isn’t medicine."

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01143-8

Gender-affirming medical treatment for adolescents: a critical reflection on “effective” treatment outcomes - BMC Medical Ethics

Background The scrutiny surrounding gender-affirming medical treatment (GAMT) for youth has increased, particularly concerning the limited evidence on long-term treatment outcomes. The Standards of Care 8 by the World Professional Association for Trans...

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01143-8

OP posts:
TheCourseOfTheRiverChanged · 29/12/2024 10:07

AmaryllisNightAndDay · 28/12/2024 09:03

They can make whatever they like out of queer theory but what I fucking resent is their dragging in feminist theory which they refer to in the same breath as queer theory to back up giving bad medical care to adolescents. Forced teaming or what. As an aspiring feminist myself - not in my name, arseholes.

In fairness, even sections of the second wave included ideas about healthcare that are, well, unwise, and lead to a great deal of suffering in the name of autonomy.
The death of Kathy Acker one of the saddest stories - https://en.wikipedia.org/wiki/Kathy_Acker#Later_life_and_death
Expanding this to include children, though, that's certainly a whole new layer of evil.

Kathy Acker - Wikipedia

https://en.wikipedia.org/wiki/Kathy_Acker#Later_life_and_death

TheCourseOfTheRiverChanged · 29/12/2024 10:04

@UtopiaPlanitia I'd add to your three groups the transhumanist contingent. Some of whom have been bankrolling trans activism since at least the 90s.
They believe in fully libertarian healthcare: a pharmacy should be just like a supermarket, with all medications available to all comers, no scripts required. And all surgeries are equal.
One of the (many) things that baffle me about the trans rights movement are the social justice oriented friends who are completely taken in by this version of healthcare "justice". It's access on the basis of $$ nothing more nothing less. Rich men can get as many boobs as they like inserted. Poor women can't get lifesaving heart surgeries.
I feel quite sick after reading the sections of the Chu article @ArabellaScott quoted and want to do something useful to counteract what feels right now like a death cult.
Maybe I shoud check out the fundraising thread. Wish I could manifest Kali or something.

BonfireLady · 29/12/2024 09:49

D'oh. I meant Eliza Mondegreen.

ArabellaScott · 29/12/2024 08:55

'served as a co-author on the SOC8 Adolescents chapter.'

Ah. I see.

BonfireLady · 29/12/2024 08:40

It took me a little while to read the whole paper. I experienced it as a set of jaw-dropping WTAF moments, where it contradicted itself on some occasions and on others it simply stated the quiet bits out loud, leaving them hanging in the air.

For all the words that it used, it couldn't explain why medically assisted transition was apparently a good idea, nor why it was even needed - its purpose being simultaneously to "cure" dysphoria, while resulting in feeling better (as long as "feeling better" is redefined), while also not requiring gender dysphoria as a prerequisite anyway, while also saying that outcomes were better when it was gender dysphoria that was being addressed.

Ultimately, the takeaway for me was that the authors had skin in the game, so needed the outcome to be simple: medically assisted transition is a good idea. It tied itself in multiple knots to deliver this message. In this bit they open with one of the quiet bits out loud (that their collective view has a bias) and then describe how each of them is linked to it all:

A central aspect of reflexive thematic analysis is acknowledging that researchers’ positions influence the research process, inviting researchers to critically reflect on their subjectivity and positionality. We, the authors, comprise a mix of junior (EO and SS) and senior researchers (KG, DD, and AV). The first two authors (EO and SS) are PhD candidates with a background in Gender Studies and Sociology. KG is a trained ethicist and psychiatry resident with clinical and research experience in GAMT. DD is an academic researcher trained in social and medical psychology whose work primarily focuses on members of marginalized groups. AV is a child psychiatrist and senior researcher with extensive clinical and research experience on adolescent transgender care and served as a co-author on the SOC8 Adolescents chapter. All authors are currently affiliated with the Center of Expertise on Gender Dysphoria (CEGD) in Amsterdam, the Netherlands.

In other words, some of us make money from this (and/or wrote the original guidelines from which many others make money), some of us have done this to ourselves and some of us are junior researchers (who want to keep our jobs and grants, so won't rock the boat). So we've written a paper to justify it all as "effective", as long as the word effective isn't scrutinised too much.

PPs have commented on Elizabeth Mondegreen's observations from EPATH. I was also thinking about this as I was reading it. It's all about "embodiment goals".. where distressed young people (including children) are put in a position where they think they are getting holistic medical care... but when you peel back the layers, there is no oversight at all and they are making irreversible decisions about their own bodies without understanding what any of this means for their future mental and physical health.

NotBadConsidering · 28/12/2024 19:34

JKR has tweeted about it:

https://nitter.poast.org/jk_rowling/status/1873048335193653387#m

TomPinch · 28/12/2024 18:51

I understand that the pro-trans view is that anything that affirms a person's identity (including surgery) is a measurable outcome. Therefore there's no need to ask whether they're happy or not.

Crazy, but that does seem to be the logic.

ArabellaScott · 28/12/2024 18:42

Crouton19 · 28/12/2024 17:00

Well, I've been surprised by how some people who seem like reasonable and intelligent adults are pushing for children to be given puberty blockers. Including several elected MPs.

How can they still be pushing for this? I know they are, but how?! Would they take the same stance if the treatment in question was for something else; migraines, or epilepsy, for example. Does anyone remember that spoof drug 'Cake', I think it was on Brass Eye, and various public figures were encouraged to denounce it despite it being completely fictional, and made themselves look rather stupid in the process. It feels like we are in an episode of Brass Eye, or perhaps we need a new episode to catch out these elected idiots who can't see past the end of their own egos.

Yes, it does have a Brass Eye feel to it. I assume they've accepted the narratives, swallowed them whole, with the logic fails and all.

People have criticised the Cass Report, therefore people who believe TWAW think that makes it de facto unreliable - never stopping to wonder who has criticised it, based on what reasoning, and why.

AmaryllisNightAndDay · 28/12/2024 17:49

PermanentTemporary · 28/12/2024 14:42

This is musing. I'm a very low level clinical researcher as part of my day job but in no way an expert.

The theoretical principles of gender identity stop research being done on pragmatic benefit. If low dose testosterone is, for example, an effective mood stabiliser and antidepressant with a particular effect for eg adolescent girls with autism, that would be worth knowing. But if you can't even say that the people you want to recruit for your study are adolescent girls, and if the ethics committee will throw out your study unless you exclude girls who aren't questioning their gender, you're not going to be able to find out anything that applies more generally than in 'trans boys' and the effect you achieve is going to be misunderstood on first principles.

Not, you understand, that I am keen on dosing girls with testosterone. But if it's going to happen, it should be studied as the dosing of girls with testosterone for mental health, not the 'replacement' of 'low testosterone' in 'trans boys'.

You are right. And the trouble is, when you start talking about "girls with autism" (even gender questioning girls) instead of "trans boys" it becomes obvious to consider they might have vaginal intercourse (willingly or otherwise) and then you'd really have to worry about the physical dangers of vaginal atrophy. I don't know what physical effects low doses of testosterone have - maybe not vaginal atrophy? - but anyway it's plain speaking that shows up dodgy assumptions. Best avoided.

AmaryllisNightAndDay · 28/12/2024 17:35

Crouton19 · 28/12/2024 17:01

@AmaryllisNightAndDay I think Eliza Mondegreen went to WPATH as well as Genspect, so it may have been her report.

Thankyou @Crouton19 - yes that's right, it was Eliza Mondegreen. It was EPATH in Ireland rather than WPATH in Denver. And - I might have guessed! - there's a Mumsnet discussion about it with generous quotes https://www.mumsnet.com/talk/womens_rights/4799382-dont-stop-believin-three-days-at-the-european-professional-association-for-transgender-health

"a prominent Dutch researcher mused: “What should we use as an outcome measure? Mental health needs? What if you ask the kids: are you happy with the treatment and they say, ‘yes, we are happy’?”"

Crouton19 · 28/12/2024 17:01

@AmaryllisNightAndDay I think Eliza Mondegreen went to WPATH as well as Genspect, so it may have been her report.

Crouton19 · 28/12/2024 17:00

Well, I've been surprised by how some people who seem like reasonable and intelligent adults are pushing for children to be given puberty blockers. Including several elected MPs.

How can they still be pushing for this? I know they are, but how?! Would they take the same stance if the treatment in question was for something else; migraines, or epilepsy, for example. Does anyone remember that spoof drug 'Cake', I think it was on Brass Eye, and various public figures were encouraged to denounce it despite it being completely fictional, and made themselves look rather stupid in the process. It feels like we are in an episode of Brass Eye, or perhaps we need a new episode to catch out these elected idiots who can't see past the end of their own egos.

AmaryllisNightAndDay · 28/12/2024 16:52

And it is high time someone published a paper "using tinfoil hat negativity as a theoretical lens". Science needs the tinfoil hat perspective.

AmaryllisNightAndDay · 28/12/2024 15:22

Wasn't it the 2023 Denver Colorado WPATH Symposium where attendees bemoaned that none of the outcome measures were positive and asked if someone could invent another measure that would be positive? This paper looks as if they couldn't find one so "outcome measures are oppressive" is their next best thing. It just gets weaker all the time.

(Sorry I don't have chapter and verse on that WPATH meeting, but I think someone who attended talked about it on the Gender a Wider Lens podcast?)

ArabellaScott · 28/12/2024 15:03

A few more quotes from the Chu article:

'Like many of my trans friends, I’ve watched my dysphoria balloon since I began transition.'

'I was not suicidal before hormones. Now I often am.'

'I also believe that surgery’s only prerequisite should be a simple demonstration of want.'

'There are no good outcomes in transition.'

So. This boils down to Action for Trans Health's insistence that trans people should have any surgery they want, because they want it.

https://www.tumblr.com/edinburghath/163521055802/trans-health-manifesto

'We demand hormones & blockers are made available over-the-counter and by free prescription upon request.* *We need free, universal access to safe hormones & blockers at any age, the opportunity to decide our own doses, and universally accessible information on the safety & efficacy of different regimens.'

'We demand the right to multiple surgeries, including reversal of previous surgeries if desired, so that we do not have to fear regret. We demand the free & timely provision of genital surgeries, additive & reductive chest surgeries, hysterectomies and orchiectomies, tracheal & vocal surgeries, facial surgeries, lipoplasty, contouring & microdermabrasion, surgical hair removal & transplantation, and any other possible procedure to meet our needs as we express them.'

I'd say it's insane, which it is, but the troubling thing is that anyone has actually bought this narrative, that the NHS - the NHS! - has performed mastectomies on teenage girls based on precisely this reasoning. They've sterilised children!

I mean, ffs. How do we ever get over this?

TRANS HEALTH MANIFESTO

INTRODUCTION Following the centuries-long repression of trans lives at the hands of the state, the next stage in the UK government's war of bureaucratic attrition is the recent publication of an NHS…

https://www.tumblr.com/edinburghath/163521055802/trans-health-manifesto

PermanentTemporary · 28/12/2024 14:42

This is musing. I'm a very low level clinical researcher as part of my day job but in no way an expert.

The theoretical principles of gender identity stop research being done on pragmatic benefit. If low dose testosterone is, for example, an effective mood stabiliser and antidepressant with a particular effect for eg adolescent girls with autism, that would be worth knowing. But if you can't even say that the people you want to recruit for your study are adolescent girls, and if the ethics committee will throw out your study unless you exclude girls who aren't questioning their gender, you're not going to be able to find out anything that applies more generally than in 'trans boys' and the effect you achieve is going to be misunderstood on first principles.

Not, you understand, that I am keen on dosing girls with testosterone. But if it's going to happen, it should be studied as the dosing of girls with testosterone for mental health, not the 'replacement' of 'low testosterone' in 'trans boys'.

UtopiaPlanitia · 28/12/2024 14:10

The more I read of this paper (I’m having to read it in stages) the more it feels to me as though it’s an argument to keep medically transing children no matter what flaws and dangers are pointed out by current and future research.

There are three main groups of people this ‘argument’ benefits: the adult men who wish to live as women for fetish purposes, the doctors who are/have been carrying out medical transition of patients, and the ideologues - the people who have made being queer and trans their entire existence.

The first group needs society to believe that childhood gender dysphoria is the same condition as theirs in order to have society believe their behaviour is not sexual in nature.

The second group needs society to believe that childhood gender dysphoria exists in a certain way that can only be successfully treated with surgical and hormonal interventions because that is what they have been doing to children and they do not consider themselves monsters for doing so and do not want society to consider them monsters for doing so. (There might also be a profit motive for some doctors).

The third group needs society to believe that (childhood) gender dysphoria is a reason why they are a special category of people for whom normal rules don’t apply and to whom undue weight should be given to what they say. It looks like for some of these people that it’s sunk cost fallacy and for others it’s the social power currently afforded to them by their status. I also wonder if, for some adults it’s the misery loves company approach: in other words, ‘I need others to keep making the same decision I did in order for me to not question, and to be happy in, this extreme decision I made’.

OP posts:
MrsOvertonsWindow · 28/12/2024 14:03

This very grim article showcases how divorced these medics are from society's basic principles of safeguarding children. We know that transactivists are dependent on transitioning children for their own purposes but to see qualified doctors being so divorced from the principles of keeping children safe, is utterly depressing.

MrsOvertonsWindow · 28/12/2024 13:57

Rant away @Faffertea. Two great posts 👏

Faffertea · 28/12/2024 13:48

I’ve been mulling over this all morning.

Placing what the authors have said in the context of the wider NHS this is really an own goal. The UK is not the US and the NHS runs on the basic principle of Utilitarianism- doing the greatest amount of good for the greatest number of people. The whole premise of accessibility to treatments is based on cost effectiveness, which from a health economics point of view it should be. That’s how NICE operates.

If (as the authors claim) offering so called “Gender Affirming Treatment is not based on positive outcomes but on what transgender/gender distressed kids want then the whole thing falls apart.

Let’s pretend for a minute that these treatments do absolutely no harm at all but are given without evidence of benefit either (on want not need) and that even genuine life saving or morbidity reducing care is not rationed ( Cancer diagnosis and treatment, ADHD waiting lists anyone?) Why should the NHS offer it? We have nationalised, publicly funded healthcare which is rationed and based on clinical need. There are lots of people who want the NHS to offer them a treatment but as an entity it doesn’t because it’s not medically necessary. If it’s not life saving (remember those suicide stats and ‘better a live daughter than a dead son?’) or proven of clinical benefit why should the NHS fund those treatments anymore than they fund cosmetic plastic surgery or laser removal for tattoos? Why should this be any different?

On current NHS principles it shouldn’t. And again, if it’s about want rather than medically necessary why do kids need access to it? We don’t let them have any other cosmetic procedures or even tattoos until they’re 18 so how is this different?

Once again this whole ideology shows itself to be a compete shitshow based on false premises. It’s not about lifesaving care for desperately ill and unhappy children.
It’s about legitimising access to hormones and surgeries some adult males have reasons for wanting. On which I will say no more to avoid the deletion.
/Rant over.

ArabellaScott · 28/12/2024 12:29

'I was not suicidal before hormones. Now I often am.

I won’t go through with it, probably. Killing is icky. I tell you this not because I’m cruising for sympathy but to prepare you for what I’m telling you now: I still want this, all of it. I want the tears; I want the pain. Transition doesn’t have to make me happy for me to want it.'

Chu, from Times article above.

OldCrone · 28/12/2024 10:41

It’s referenced badly, or perhaps it’s just the formatting on my phone but they refer to “Chu” in the discussion but the link to their referencing of this quote doesn’t match up so it’s impossible to follow through properly. I suspect it’s Andrea Long Chu.

It's the first reference.

Using this perspective, we critically analyze the normative assumptions underpinning the SOC8 research evidence and argue for acknowledging the intrinsic complexity of GAMT, including the often enduring presence of negative affect throughout and beyond transition 1,2,3].

New paper argues that “gender-affirming care” for adolescents should not be measured by whether it’s “effective”
AmaryllisNightAndDay · 28/12/2024 10:38

There are rightly limits to people’s autonomy, a big one being you can’t demand a treatment that is not clinically necessary and particularly if there is evidence of potential harm.

Especially when these people are not adults but adolescents. Who are not fully mature, who are known to make impulsive decisions, who are not able to conceptualise some long term harms. Whose autonomy society restricts in other ways for good reasons.

I'd like to see de Vries et al discuss adolescents' right to an open future.

ArabellaScott · 28/12/2024 10:26

OldCrone · 28/12/2024 10:02

Sometimes I feel people like de Vries et al live on a different planet to the rest of us when they justify ruining perfectly healthy bodies and call it medicine. De Vries' continued insistence that her way of practicing gender medicine is the best way reminds me of Dr Freeman who went to his grave fighting to have lobotomies recognised as medically safe and helpful.

This is spot on. They seem to have become so immersed in their delusion that mutilating the healthy bodies of children is "healthcare" that they can't see how insane the whole thing looks to anyone who hasn't succumbed to the cult of genderism.

Well, I've been surprised by how some people who seem like reasonable and intelligent adults are pushing for children to be given puberty blockers. Including several elected MPs.

Faffertea · 28/12/2024 10:09

I skip read that because, frankly, it was a lot of word salad nonsense. Their research methodology is rubbish. They’ve selected only studies that have quantitative measures of outcomes. Why? If you’re looking at outcomes, qualitative research is going to give you a broader view of outcomes. It’s referenced badly, or perhaps it’s just the formatting on my phone but they refer to “Chu” in the discussion but the link to their referencing of this quote doesn’t match up so it’s impossible to follow through properly. I suspect it’s Andrea Long Chu.

Interestingly they are critical of SOC8 from WPATH but not because it’s a load of unevidenced crap but because WPATH have tried to demonstrate that there is evidence of benefit.

Their argument seems to be we should let kids with gender dysphoria have what they want because they want it and not have any evidence based of an intervention making things better. They seem to argue autonomy is all. It doesn’t matter whether there is benefit, we should give people want they want because they want it. Can you imagine if we extended that principle across medicine?

There are rightly limits to people’s autonomy, a big one being you can’t demand a treatment that is not clinically necessary and particularly if there is evidence of potential harm. This seems to place autonomy above all other principles of medical ethics, namely non maleficence (first do no harm) and justice (that people can equally access treatment or intervention). We’re going to let trans kids (sic) or transgender adults have whatever they want but not extend that to all other aspects of medicine? Reminds me of that bonkers Action for trans health manifesto.

Medical capitalism/consumerism at its best.