Please or to access all these features

Mental health

Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention.

Section 2 elderly brother what to expect from in patient experience

30 replies

limetrees32 · 02/03/2026 20:45

I suppose this is a silly question.
But wondering if anyone has any experience.
I'm worried he'll just be sedated and that his anxiety and depression won't be treated.

OP posts:
New posts on this thread. Refresh page
Youmustwakeup · 04/04/2026 23:44

Hi @limetrees32 , just saw this. So sorry that things are so rough.

So yes, as @JennieTheZebra said, they can do ECT without consent but IIRC they need a second opinion approved doctor (SOAD) in order to do that.

Your posts are very well thought out and articulate- may I suggest that you copy them separately into bullet points and have a discussion with his RC and named nurse so that you get a satisfactory answer?

I would encourage you to consider contacting the MIND legal line and get an Advocate involved ASAP. You may wish to consider specifically alluding to your relatives baseline presentation. Happy to be corrected but it sounds as though this perhaps has not been fully acknowledged by the staff.

https://www.mind.org.uk/information-support/helplines/

You are right about the ECT and side effects. Would I have it again? Absolutely. Was I told that my memory would still be impaired 10 years on.? Nope. You are right to consider these things.

You are doing great, keep asking any queasiness you need to!

Shaveitall · 04/04/2026 23:34

limetrees32 · 04/04/2026 22:20

Because I don't understand why it's thought that the medication isn't working.
His mood had improved a great deal - he had gone from monosyllabic to starting conversations and engaging.
He has never been someone to socialise or engage in talk to pass the time of day.
Not even with close family , certainly not with strangers. This is his norm.
He's not yet without issues - trouble sleeping for instance.
He's been depressed for 6 years after a SCA , an induced coma and then sepsis .
He has some brain damage from these illnesses and to my mind , some kind of dementia.
He has had an MRI done weeks ago .
They have said they need to fully consider the results. No idea when.
I don't believe his depression was ever seriously addressed ,the ADs he was on had little effect and were not reviewed.
He's improved in 4 weeks ,it doesn't seem long enough to judge that ECT is now needed.
Who will decide if he has " great suffering " ?
Will his view on that be considered,?
Or will. It be decided for him ?

Edited

I was told I was to be given ECT against my will when I was sectioned in the 1990s. I completely freaked out as I didn’t want it and they did change their minds, Apparently, it was taken as a positive sign that I cared about what was done to me.
No idea if that is typical but it can’t harm to make sure they are aware of his objection and that of his partner and you.

limetrees32 · 04/04/2026 22:46

ECT doesn't always work wonders.
It's an invasive treatment and the side effects don't always wear off .
To consider it after 4 weeks of medication with no knowledge of someone's personality or life style when they were well and seemingly no interest in learning of it seems wrong.

OP posts:
limetrees32 · 04/04/2026 22:27

I think he's lost to us. In the hands of people who don't know him and are basing their judgement on incorrect assumptions.
He's not improving because he's not socialising for instance.
Background information about him has been given but I dont think it is taken on board .
He's not even called the correct name ( or a shortened version ) or his deafness taken into account.

OP posts:
limetrees32 · 04/04/2026 22:20

Because I don't understand why it's thought that the medication isn't working.
His mood had improved a great deal - he had gone from monosyllabic to starting conversations and engaging.
He has never been someone to socialise or engage in talk to pass the time of day.
Not even with close family , certainly not with strangers. This is his norm.
He's not yet without issues - trouble sleeping for instance.
He's been depressed for 6 years after a SCA , an induced coma and then sepsis .
He has some brain damage from these illnesses and to my mind , some kind of dementia.
He has had an MRI done weeks ago .
They have said they need to fully consider the results. No idea when.
I don't believe his depression was ever seriously addressed ,the ADs he was on had little effect and were not reviewed.
He's improved in 4 weeks ,it doesn't seem long enough to judge that ECT is now needed.
Who will decide if he has " great suffering " ?
Will his view on that be considered,?
Or will. It be decided for him ?

OP posts:
JennieTheZebra · 04/04/2026 20:20

Yes, that is correct. ECT can be given without consent under section 62 of the Mental Health Act to alleviate ‘great suffering’ or prevent acute deterioration (this is known as “emergency use”) or under section 58a as long as another doctor agrees it’s necessary. Why are you worried? ECT sounds scary but is the gold standard for depression and can do absolute wonders, especially if medication isn’t really working.

limetrees32 · 04/04/2026 18:59

@Youmustwakeup I wonder if you have any thoughts on the following
Now on a section 3 , though he was happy to remain as an informal patient.
His partner attended a meeting on 30 March ( 28 days after admission)
Its thought that he's not responding enough to current meds and lithium is now being prescribed.
ECT is being discussed.
Having been visiting I can see that his mood has lifted , he's no longer monosyllabic and is engaged and iniating conversation.
Speaking to staff today I am concerned to hear them say that his consent is not necessarily required for ECT.
Apparently it may be felt that he is too ill to make a considered decision and that he may not release that he needs this procedure.
As an interpretation of capacity, this worries me greatly.
It is felt that if the meds he was started on 4 weeks ago were going to work it would be evident by now.
The staff are concerned because he stays in his room and needs prompting to change his clothes and to socialise with other patients.

OP posts:
limetrees32 · 09/03/2026 14:48

@Youmustwakeup thank you so much , that's really helpful.
I'm anxious not to undermine his partner by seeming to know better IYSWIM..
She is very sensitive to this , understandably.
She visits every day and feeling helpless wants to be in control. (. Don't we all ? ).
So I need to be tactful and strategic.

OP posts:
Youmustwakeup · 09/03/2026 13:33

Possibly, but I think very unlikely. I would be very concerned about the clothing and lack of communication. And the name used. And the section he is on.

He should have a full nursing assessment done which would include this. And be oriented to the ward.

None of these things sound like they were done and he should have a named nurse whom you KNOW to be the named nurse. Not just a senior one.

You may wish to consider requesting a meeting and highlighting all of these points because there are some red flags there in terms of care.

You may also wish to consider specifically requesting a MH Advocate and the goal of the section.

If you have any more questions just ask, I will do my best to answer them.

limetrees32 · 09/03/2026 11:36

Could it be that my brother is being assessed on how he is without intervention ?
So they are observing his lack of self care and motivation ,maybe waiting to see if meds bring about change in his behaviour

OP posts:
limetrees32 · 08/03/2026 19:43

Oh @Youmustwakeup how kind of you to post.
The nearest relative is another sibling, but I believe that they have accepted his partner in this role.
I'm not sure.
I visited for a couple of days , found the environment v pleasant. Newly built , light and bright . Spacious.
There are no posters about MH advocates.
A support worker got my brother from his room .
A senior nurse greeted me on the second day and she arranged for a nurse to join self and brother to provide an update.
She wasn't familiar with my brothers situation , called him by the full version of his name and not the version he is known by .
She thought he was on a section 3 , etc.
Because I asked about access to fresh air and exercise ( my brother had always been v physically active with a great interest in the living world, since admission he is using a zimmer) I learnt that there were twice daily walks in the gardens .
It was explained that the reason my brother wasn't aware of these was because he spends all day in his room.
That's all he does, he says he'd is woken up for meals ,meds , blood pressure etc.
He has been wearing the same clothes for 4 days and sleeps in them.
I don't know who is " in charge' of his care or anything about the type of psychiatrist.

OP posts:
Youmustwakeup · 07/03/2026 22:21

Hi OP. I'm so sorry to hear about this difficult situation.

Have the staff talked to you about a MH Advocate? There should be posters up on how to contact them and usually they introduce themselves as well.

Are they being seen specifically by an old age psychiatrist? Your relatives situation sounds especially complex.

As a PP said, check out if you are his nearest relative. This is not the same term as next of kin, it's a legal term and important.

Finally, bear in mind that hospitals differ. I've been in multiple MH units where no activities or OT input had been offered or available. And I include private hospitals in that. Care simply consisted of bed, board, medication and a weekly ward round. That is across at least 6 hospitals in the last 9 years.

Best wishes.

limetrees32 · 03/03/2026 14:54

@VerityUnreasonble thank you that's very kind to go into that detail..
I should hear from his partner tonight and I'm visiting on Friday .
It's helpful to have some sort of idea in place before I go .

OP posts:
VerityUnreasonble · 03/03/2026 12:48

limetrees32 · 03/03/2026 07:45

@JennieTheZebra yes , it's complicated.
I suppose I worry that all the factors won't be considered.
I suppose everyone is complicated !
Would there be an older person's mental health ward in the psychiatric hospital that he's been referred to ?
He's had a CT scan showing nothing of concern, he had an MRI yesterday.

It can vary a bit from place to place. Most places do have an older people's mental health ward but sometimes they are mixed (general mental health and dementia) and some places have separate wards for each.

The wards are in many ways nicer than a general hospital, you usually have your own bedroom, many places ensuite, there will be a day room, dining room and often an activity room. Some places have secure garden spaces too so people can safely get a bit or fresh air.

There are usually activities, some will have a specific staff member to arrange these, access to an OT as well as the nurses and support workers. There should be a meeting "ward round" at least once a week which you can probably join remotely (on teams etc.).

The nurses will observe and record any behaviour changes and report this back to his named psychiatrist, they will make sure he has any medication he needs, they try to avoid over sedating people (but sometimes starting a new medication can make someone more tired). They should be able to update you if you're worried.

If you search for the hospital some websites have a bit of a guided tour of their wards so you know what to expect.

JennieTheZebra · 03/03/2026 12:01

@limetrees32 I know that psychiatric hospitals seem terrifying but that’s because we’re unknown to you. The best way of dispelling that is to build a relationship with the ward. Wards are staffed 24 hours a day by nurses and there will pretty much always be a nurse available to talk you by phone. You can arrange regular phone calls for updates, as often as is necessary for you to feel safe. I know you’re a little way away, but most mental health hospitals don’t really have visiting hours either-we’re happy to accept family up to about 10 pm and family leave is usually given early and freely. Please come when you can. If you want to attend ward rounds you can usually do so by video call or in person and doctors/consultants are usually able to give regular updates by phone. I work very closely with the doctors in my unit and am always happy to pass on the need for a phone call from the medical team.
Speaking as a nurse, we do really care for our patients and their families too, many of whom I have got to know really well. Please don’t be put off by other people’s negative experiences. Our aim is to help people to build the best life they can.

limetrees32 · 03/03/2026 08:30

But your experience was horrifying and it's correction dependent on a senior person happening to be in the vicinity.
I'm. 4 hours away .

OP posts:
Lougle · 03/03/2026 08:25

limetrees32 · 03/03/2026 08:18

@Lougle thank you.
I expect my brother has a whole load of stuff going on ,i think mostly neurological and mental health.
Your experience is a worry. Psychiatric hospitals are such an unknown quantity to me and as such I find them terrifying. I know that's silly but you are so at the mercy of staff and local norms.

Try not to worry. Once we got over that hump they were quite cooperative. They'll work out what's going on and then come up with a plan.

limetrees32 · 03/03/2026 08:18

@Lougle thank you.
I expect my brother has a whole load of stuff going on ,i think mostly neurological and mental health.
Your experience is a worry. Psychiatric hospitals are such an unknown quantity to me and as such I find them terrifying. I know that's silly but you are so at the mercy of staff and local norms.

OP posts:
Lougle · 03/03/2026 07:57

He's in the right place, for now. Polydipsia (compulsion to drink water) is linked to mental health issues, but they will need to make sure he doesn't have, for example, diabetes insipidus. Polydipsia is serious because if you drink too much water it dilutes your electrolytes and can cause the brain to swell.

It's really worrying when your loved one is in hospital. It took us almost a week to find out anything about my DM and I had to make an official complaint before we were given any information. But tbh, the hospital she was in was dire and once the head of the organisation knew what was going on, he was phenomenal. One day, they wouldn't let us see DM because she couldn't dress and walk to see us off the ward (she had lost all self-care ability). We had driven 20 miles to see her. She was sitting at a table, arms outstretched, calling for us. We weren't allowed on the ward, and she couldn't walk to the visitors room. They said she clearly didn't want to see us because she'd get dressed if she did. The head of the service was walking down a corridor and heard me getting cross, so came to investigate. When I told him what was happening, he marched onto the ward, a door shut, I heard very raised voices, then he marched back up the ward and said "Lougle, this way. Come and dress your Mum." From that day on, we were allowed into the ward to visit until she was well enough to come out to the visitors room.

limetrees32 · 03/03/2026 07:45

@JennieTheZebra yes , it's complicated.
I suppose I worry that all the factors won't be considered.
I suppose everyone is complicated !
Would there be an older person's mental health ward in the psychiatric hospital that he's been referred to ?
He's had a CT scan showing nothing of concern, he had an MRI yesterday.

OP posts:
JennieTheZebra · 03/03/2026 07:40

Ah see this may be a little more complicated. At 78, I would imagine that he’s been admitted to an older adults mental health ward. Treating the initial agitation with lorazepam was the standard thing to do. The next steps are to rule out mental health or neurological/physical disorders that are not anxiety and depression. As this has been going on for a while he will likely have brain scans to rule out brain damage and dementia and blood tests-itching and thirstiness may indicate difficulties with liver or kidneys, or diabetes. He may also be prescribed medications that are not anti depressants, including anti psychotics, depending on the strength of his compulsions. It can take a little while to work out exactly what is wrong and what will help before people start to get better.
Does he have any children? If not, you’re his nearest relative, legally. I would again suggest ringing the unit and, as long as he’s given consent to share, the nurses there will be happy to talk you through the plan. I hope this helps a little x

limetrees32 · 03/03/2026 07:29

Sorry sorry, not a dumb question.
Sudden cardiac arrest.
He was in induced coma afterwards.
Tests show no brain damage but I find that difficult to believe.
Have always suspected PTSD.

OP posts:
parietal · 03/03/2026 07:09

Sorry for the dumb question but what is an SCA?

limetrees32 · 03/03/2026 06:47

His wanting to access water was accompanied by him pleading to be stopped " help me ,help me .Stop me it's a compulsion"
Security and restraint teams were called .

OP posts:
limetrees32 · 03/03/2026 06:28

He and his 81 year old partner don't live together and are not married.

OP posts: