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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
Thread gallery
5
dontcookwontcook · 09/09/2026 10:37

you see it quite a lot within my role. Particular people who even when they have a cough it seems that they’re sending in a new medical letter stating that the air is causing them issues and as such, need time off work/more benefits/a different house/blue badge etc. it’s all leverage for extra stuff these days it seems
AI generated emails that go on for miles discussing how terrible/distressing/stressful everything is so I need more things/money/assistance

x2boys · 09/09/2026 10:49

dontcookwontcook · 09/09/2026 10:37

you see it quite a lot within my role. Particular people who even when they have a cough it seems that they’re sending in a new medical letter stating that the air is causing them issues and as such, need time off work/more benefits/a different house/blue badge etc. it’s all leverage for extra stuff these days it seems
AI generated emails that go on for miles discussing how terrible/distressing/stressful everything is so I need more things/money/assistance

Regardless of that you still need evidence
The PIP form is very straight forward
There is no magical way of filling it in that means you will be accepted for it
And the criteria is very specific.

TigerRag · 09/09/2026 11:12

dontcookwontcook · 09/09/2026 10:37

you see it quite a lot within my role. Particular people who even when they have a cough it seems that they’re sending in a new medical letter stating that the air is causing them issues and as such, need time off work/more benefits/a different house/blue badge etc. it’s all leverage for extra stuff these days it seems
AI generated emails that go on for miles discussing how terrible/distressing/stressful everything is so I need more things/money/assistance

You see it on Facebook groups. They've just been diagnosed with something and want to know if they claim something? Or they have something temporary like a broken bone and do they need to inform pip? Which I have to say was the last thing I thought about when I broke my ribs in 2019

roaringdragon · 09/09/2026 11:15

x2boys · 09/09/2026 10:49

Regardless of that you still need evidence
The PIP form is very straight forward
There is no magical way of filling it in that means you will be accepted for it
And the criteria is very specific.

While you do need evidence, many do not find the PIP form very straightforward and there is a way of completing the form, not that magically guarantees success, but that increases the chance (where the person is actually eligible, obviously) of being awarded.

For example, many do not understand that in order to be able to do an activity you have to be able to do it reliably. That is safely, to an acceptable standard, repeatedly and in a reasonable time frame. Many don’t realise they shouldn’t answer 'yes, but...' when they can’t do something taking into account the reliability criteria.

CatkinToadflax · 09/09/2026 11:43

To say “it’s not a fight” is extremely dismissive. For so many of us, getting the support our children need is a huge and constant fight. My disabled son is nearly 21 and I’m still fighting for him.

Lougle · 09/09/2026 12:13

It's just exhausting. It's exhausting to care for children who have SEN, and it's exhausting to be the parent that others silently, or not so silently judge. Do you realise how soul crushing it is to walk through a school car park and hear a perfectly put together parent with their perfectly put together children saying "Would you like to go to the library after school, children?", when you're thinking "How am I going to get them across this car park safely?" To see children trotting into school while you're carrying your child in your arms, with their socks and shoes in your hands, saying "I couldn't get these on her.", as you pass the child and footwear over.

It isn't fun.

TheJuryIsOut · 09/09/2026 12:22

HouseBee · 09/09/2026 10:06

It’s not enough to say ‘my child can’t do xyz.
You need evidence. Doctors, teachers, neighbours (I know someone who approached their NDN asking them to write a quick word to confirm their dc has regular meltdowns, as heard through the walls…),teachers etc….

You need proof.

This idea tyat you can just claim xyz and it’s enough has to stop. It’s so so far from reality where people send hundreds of documents.

I know of someone who said her son can't walk more than 50 metres, he absolutely can. They didn't ask for any evidence to support this and she was awarded higher rate DLA for him. She also went to several different doctors (I'm talking 6+) until someone would write "extreme tiredness and lethargy" on his record. Some people will go to quite extreme lengths to get what they want. I also know of people who have lied for their friend/neighbour on forms. It's not that unusual in certain circles.

My daughter has a medical condition and I could go in to the consultant and say all sorts and they would believe me, I could say she's in awful pain every night, struggles to get around etc, they would believe me straight away.

roaringdragon · 09/09/2026 12:28

No-one gets HRM without evidence.

OneLilacHedgehog · 09/09/2026 12:29

Juryisout is right. Children and adults can have a genuine medical condition. But usually how it affects you is self reported.
For example you get migraines. You self report whether this happend three or four times a week or once a month. You self report if it makes you vomit every week or once a year.

TigerRag · 09/09/2026 12:34

TheJuryIsOut · 09/09/2026 12:22

I know of someone who said her son can't walk more than 50 metres, he absolutely can. They didn't ask for any evidence to support this and she was awarded higher rate DLA for him. She also went to several different doctors (I'm talking 6+) until someone would write "extreme tiredness and lethargy" on his record. Some people will go to quite extreme lengths to get what they want. I also know of people who have lied for their friend/neighbour on forms. It's not that unusual in certain circles.

My daughter has a medical condition and I could go in to the consultant and say all sorts and they would believe me, I could say she's in awful pain every night, struggles to get around etc, they would believe me straight away.

You've clearly never been in the situation where something is seriously wrong and no one believes you. My parents have been with me. Being ignored resulted in a head injury. We still don't know the true extent of my disabilities and I doubt we ever will.

roaringdragon · 09/09/2026 12:38

HRM under the VUW criteria, which is what the pp is talking about, doesn’t just go on self-reported symptoms. That isn’t how the decision making flowchart for VUW works. You need professional evidence, and by that I don’t just mean ‘mum says…’

TheJuryIsOut · 09/09/2026 12:39

TigerRag · 09/09/2026 12:34

You've clearly never been in the situation where something is seriously wrong and no one believes you. My parents have been with me. Being ignored resulted in a head injury. We still don't know the true extent of my disabilities and I doubt we ever will.

You've clearly never spoken to people who openly admit and brag about cheating the system.

TheJuryIsOut · 09/09/2026 12:42

roaringdragon · 09/09/2026 12:38

HRM under the VUW criteria, which is what the pp is talking about, doesn’t just go on self-reported symptoms. That isn’t how the decision making flowchart for VUW works. You need professional evidence, and by that I don’t just mean ‘mum says…’

Ok, but I know it's happened. You can refuse to believe it if you want.

Kirbert2 · 09/09/2026 12:45

roaringdragon · 09/09/2026 12:28

No-one gets HRM without evidence.

Yep.

My son gets HRM. They absolutely didn't just take my word for it.

TheJuryIsOut · 09/09/2026 12:45

I mean has no one ever heard of that boy Matthew Johnson? That was a very severe case but this sort of thing goes on at a much lower level a lot more often than people would like to think. Parents will and do lie and they do manage to convince medical professionals of things that aren't there. Plenty of medical conditions are extremely hard to "prove" but people will still be diagnosed with them, and a huge amount of that is done from parent accounts of how the child is.

roaringdragon · 09/09/2026 13:00

The Matthew Johnson case is a hideous case, but his mother did have medical evidence. The evidence wasn’t correct because of her crimes, but it wasn’t the case that any claim made didn’t have evidence, which is what I was commenting on.

DWP also like more evidence for HRM these days than they did a decade plus ago.

TheJuryIsOut · 09/09/2026 13:09

roaringdragon · 09/09/2026 13:00

The Matthew Johnson case is a hideous case, but his mother did have medical evidence. The evidence wasn’t correct because of her crimes, but it wasn’t the case that any claim made didn’t have evidence, which is what I was commenting on.

DWP also like more evidence for HRM these days than they did a decade plus ago.

Right, but are people naive enough to think that parents don't ever make up or massively exaggerate symptoms? Especially for conditions that can't be proven.

roaringdragon · 09/09/2026 13:12

TheJuryIsOut · 09/09/2026 13:09

Right, but are people naive enough to think that parents don't ever make up or massively exaggerate symptoms? Especially for conditions that can't be proven.

I haven’t said that, but, for VUW, which is what you posted about, it doesn’t go on self reported symptoms. You need more evidence than evidence based on self reported symptoms/difficulties.

OneLilacHedgehog · 09/09/2026 13:15

roaringdragon · 09/09/2026 13:12

I haven’t said that, but, for VUW, which is what you posted about, it doesn’t go on self reported symptoms. You need more evidence than evidence based on self reported symptoms/difficulties.

Yes they ask for evidence from schools. But look at all the parents saying their kids mask at school and are totally different at home.
So it is self reporting plus a diagnosis.

roaringdragon · 09/09/2026 13:16

OneLilacHedgehog · 09/09/2026 13:15

Yes they ask for evidence from schools. But look at all the parents saying their kids mask at school and are totally different at home.
So it is self reporting plus a diagnosis.

No, it’s not self reporting. As I said, for VUW, more than that is required. Evidence from school wouldn’t be enough for VUW.

x2boys · 09/09/2026 13:25

OneLilacHedgehog · 09/09/2026 13:15

Yes they ask for evidence from schools. But look at all the parents saying their kids mask at school and are totally different at home.
So it is self reporting plus a diagnosis.

Yes and often they struggle to get a DLA award
Because school dont see it
My son gets HRC and HRM under SMI rules there is absolutley no way he can mask
Hes currently transitioning to PIP all his evidence and we have a lot of professionals involved back up what i have written on the form.

Twins3007 · 09/09/2026 13:34

menopausequeen · 05/09/2026 23:37

Well why can’t OP bash a bit? It’s a mess and benefits have caused this. They have strapped whole families in this apathy and contempt for work and meant they don’t contribute to society and have no self esteem.
stopping their PIP for ‘mental health’ or apathy (save PIP and other benefits for people battling actual physical illness or mental illness like schizophrenia) would cause short term pain but be so much better long term.
we can’t afford to pay for people like this and we are actually taking away their agency and self worth.

This

dontcookwontcook · 09/09/2026 13:35

I don’t know the specifics in relation to child and DLA however from my own observations at work, a lot of our “supporting letters” are from GPs, social prescribers and other consultants pretty much repeating patient’s statements “states they struggle to get out of bed and are feeling more depressed than last visit. Offered referral to talking therapies, state this has not worked previously. Increase medication and follow up in 2 weeks” or “states back pain is worsening and now cannot use stairs or walk too far. Physio not helping. Have increased pain killers and advised to return to GP. Has requested blue badge from local authority and awaiting outcome.” not sure if it’s a lack of time with patients or whatnot but it very much looks self reported to me

YourGoldLurker · 09/09/2026 13:35

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

I live in an area that has pockets of deprivation and pockets of more well to do areas. I live in one of the better areas of my home town (mix of council houses, private lets and buy to lets). It might not surprise you given your background but I used to work as a youth worker and when I did detached youth work I did it in some very well off areas where kids were just given money by their parents and left to get on with doing whatever they wanted to do.

Of course generational poverty can cause very negative outcomes but poor parenting comes in plenty of forms.

I used to work in homeless units too and some of the kids who ended up in the system were from well off families

Twins3007 · 09/09/2026 13:37

All people's circumstances are different but no one on Mumsnet thinks there maybe some people rinsing the system for all its worth, I know many that are personally!

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