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Whole families on UC, PIP, DLA and carers' allowance for each other?

581 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
Thread gallery
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Palomiino · Yesterday 09:33

ElefantAndCastle · Yesterday 09:31

A lot of people om minimum wages are being second class. Work hard only getting by.

What is your point? That’s the effects capitalism. A whole other thread, surely?

Itchthescratch · Yesterday 09:34

BadBadCat · Yesterday 09:29

I think I can see where `OP is coming from.

But having children with disabilities is a bit of an anomaly; the sort of people she is describing exist without DC with disabilities and plenty of people with are not like the families she is describing.

I think there is a real problem with multi-generational and whole families claiming benefits. I know families through my work who fall into this category and it's a cultural issue rather than genuine needs.

It's isn't an anomaly in some communities. It's very hard to distinguish disability from the impact of a chaotic and often quite traumatising childhood. This isn't controversial. Lots of studies show this.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9796059/
ADHD is only diagnosed when traits reach a certain threshold. It's easy to see how these environments are pushing children across the threshold.

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https://pmc.ncbi.nlm.nih.gov/articles/PMC9796059/

BettyBoh · Yesterday 09:35

For those of you reacting negatively, you have missed the point.
the OP is not talking about you. There are people who genuinely need state help - that’s why it was established. You are those people. The state help enables you and your family in the correct way

there are people who state help is enabling in the wrong way. The OP is talking about those people.

once we establish that we can have a mature conversation about what to do.

i know exactly what OP refers to. My MIL (in another continent) had two more children 20 years after her first two. All have ADHD.

My husband is one of the first two (born 1980). He had a hard life but learned to work on a farm when living with grandparents. He is also reliable and honest - something else his grandparents instilled in him. He has taken that work ethic and he has built a life with me here in the UK. He is a labourer/gardener. He has a reputation for working hard and has a list of people waiting him to have a spare day to work for them.

his brother came to stay with us last summer (born early 2000s). He didn’t like working, had no initiative, The effects of motherly neglect (and fatherly neglect to the extend the dad spent hours working as a labourer whilst the mum stayed at home). It was clear he had picked up every bad habit from the mother. She couldn’t be bothered to get him to school. He expected everything to be paid for him. We found him a job (through a friend). he kept ringing in sick and he was lazy on site. He had a “bad back”. But he was able to go out dancing and clubbing!!! The friend had to let him go, “I’m sorry. I gave him the job because I thought he’d be hard-working like his brother.”

AGlessandahalf · Yesterday 09:36

SkinnyCigarette · Yesterday 02:26

What you’re describing is normally found in extremely deprived areas. There are no jobs. No opportunities. Generations of the same families relying on the welfare system, because that’s all they’ve ever known, as there are no jobs and support. Kids behaving poorly in education, that’s if they even make it in.

Many users (not all) of Mumsnet generally don’t experience this life style or have ever come across it.

This is a really important point which seems have to have been missed.
Posters are taking exception to their own circumstances and their SEN community and rightly so.

However, the very people who the OP is describing are unlikely to be on MN and putting their hands up saying oh yes that sounds like me and my family.

EmeraldShamrock000 · Yesterday 09:40

I suspect they’ll try to reframe disability claims for ND applicants. When the population is swaying towards ND rather than a NT society, they’ll reconsider it as a disability.

How many people on the prison system have ADHD? You should know that % as a professional.
I think it is 90% in young offenders boys. Doesn’t that make you question the diagnosis? Surely neglect, growing up in an addicted chaotic home, lack of vitamins and minerals, never taught anything but how to win over people, steal, sell drugs.

(Talking about young offenders high diagnosis rates) ➡️ I personally think that their front lob is not developed due to their upbringing in a lot of cases.
I have one neighbour with 4 feral kids, they cause so much trouble, wander all hours, smash plant pots, scratch cars, cause fights, the mother is a drunk, they all have a diagnosis of ADHD, they’ve never had a vegetable or read at book at home.
There are many families in similar circumstances in certain areas. Sadly I see at least two of her four going to prison in the future. The only people who tell them no, is their teachers, if you complain she says they can’t help it, they have ADHD.

The parents smoke weed around them from birth.

Teffe · Yesterday 09:41

Completely agree OP. I have disabled DC they receive highest rate PIP to give you an idea of the impairment, I can’t get carers as I earn just a little too much in my part time job. We have received state support for 18 years.

my support circle of other SEN parents are not like you describe but when I engage with the wider community at hospitals, clinics, talking to social workers etc it is precisely what you outline. I agree with every word you have written and have seen it getting worse the 18 years I have been in this world.

mamato4boys · Yesterday 09:43

JLou08 · 05/09/2026 23:40

Having adopted two children who have special needs you must recognise it's often nature over nurture? There's a lot of waffle in your post so I'm not sure I'm getting the point but it does seem to be a parent blaming thread with the generational low aspirations? Do you not realise that those parents you're referring to are more likely to have their own learning difficulties/ND which makes it difficult for them to engage with training and impacts their executive function? I'm sure most of them are doing all they can for their DC but they don't all have the same level of capabilities that you do.

Edited

This!

also when you have a child with a serious disability it is harder to have a job, because it isn’t like you can ask a mum from the school if she will mind him/ her for 4 hours so you can work late on a project.

when people have typically developing kids they get to see light at the end of the tunnel re childcare. It is easier to accept you are paying massive proportion of your salary because it doesn’t last long.

that said I don’t have any first hand experience and know very few families in this situation, but the two I know very well are. It like you describe.

Newstartplease24 · Yesterday 09:43

anecdotal stuff may be true on an individual, case by case basis but it doesn’t help anyone understand what the big currents / trends / society wide picture is. On threads like this you just get individuals sharing their experiences, and others wirh fewer direct experiences deciding on emotional bases which is probably representative.

can anyone point us to a good up to date book or source which gives an academic but general-reader-friendly account of the issues in this thread?

EvieBB · Yesterday 09:45

LakieLady · Yesterday 09:10

I'm surprised you couldn't get PIP, I've got it for at least two clients with exactly those diagnoses. One of them was initially declined, but we appealed and won.

Pleased to hear that your health has improved, it's a horrible combination to endure.

Thanks for your kind words. What is your job please?....I was navigating the claim on my own. I think I was too exhausted and overwhelmed to appeal tbh and absolutely didn't know the system having never claimed anything before....and was so disheartened and upset at the decision that I didn't pursue it. I wasn't given any advice about how to respond and didn't realise that I might have won on appeal. It was such a difficult and distressing time. I was told that because I could get dressed within 15 minutes I wasn't unwell enough! The fact was that I had energy for about an hour (max two hrs per day) but that was it. It certainly wasn't enough to be a mother, housewife and hold down a job. Yes I'm super grateful and relieved to have seen a private functional doctor who helped me enormously with my health 🙏🏻

Ponoka7 · Yesterday 09:45

What all these posts are showing is that early intervention, children's centers, famliy support etc was very much needed. We were getting there under, 'Every child matters' and 'Every disabled child matters', but the tories won't fund services, especially those for poor families. Special needs schools went, health services went, community privision went. Austerity, welfare cuts, bedroom tax etc all added to the shit show many areas are now living in. Reform are going to decimate the services remaining. Punishing people won't work. We are were we are, things won't get better and it isn't the fault of many individuals.

Owninterpreter · Yesterday 09:46

707,000 jobs vacancies. 2.5 people looking for work per job. Thats before we get to economically inactive disabled people which is the group a lot of you feel should be working too.

BillieWiper · Yesterday 09:46

But what you described is people who don't do much with their lives. Maybe it's because they're lazy, maybe it's because they're in pain or depressed or have ND, but how would you know if they're on PIP or UC or not? And why do you care?

Why mention those benefits at all? Why not just say some people are generationally low aspiration and ability and don't seem to have much motivation to change. Not that that's a particularly astute observation about society at large.

ExpectMore · Yesterday 09:49

Palomiino · Yesterday 09:25

Why should people with disabilities be treated like second class citizens and have to justify what they spend their money on when they already struggle in a world that wasn’t designed for them?

I can always tell which people have no idea what it’s like to raise disabled children or how much more they cost than non disabled children when I read comments like yours.

My friends disabled child is out of school atm because schools are shite thanks to many years of austerity and she’s paying £90 per hour for her child to have a SEN tutor.

If you want a two-tier system of treatment for humans then there is a word for that - fascism.

You validate my point entirely, likely without realising, by calling me a fascist.

Thanks for the contemporaneous evidence.

Ethelspagetti · Yesterday 09:52

Palomiino · Yesterday 08:29

So you are jealous of your disabled siblings? Lovely.

Knowing something is wrong is not the same as jealousy. I’m surprised you’ve assumed such a thing. Next you’ll be telling me I’m jealous of overweight people because they have access to more food or of tall people in front of me blocking the view, because they can see better! Your comment actually made me and my husband laugh! Thank you for that laugh! Tax payers money should not be spent on luxuries but on keeping people afloat during a time of need. It is not “free money” it comes from workers salaries through tax.

itsgettingweird · Yesterday 09:52

Ermmm - your experience is different to mine.

I have a disabled DS, I’m a LP, I work in a school doing what you’re doing by the sounds of it - pastoral support (which encompasses everything!)

We do a lot of parent engagement sessions and have an amazing turnout.

We do parent and grandparent lunches, fairs, federation days etc.

All attended really well, our parents are engaged and those who have had a poor upbringing really want to break the cycle.

This year from feedback we’ve realised a lot of soreness feel like they are missing out because they work during the day and can’t attend. Therefore we are doing an evening session. I have said I’ll facilitate as I a) get it as a working parent and b) can have TOIl for my own kids hospital apts!

Maybe the actual truth is that you’re getting it wrong as a school.

Parents who feel isolated may not have the confidence to make the teas and coffees or help themselves to biscuits.

Parents who are isolated may need to step out frequently for gag breaks because being around others is something they’ve lost the skill for.

Parents who talk about going home to watch Netflix may not have access or know how or where to access other opportunities? Does your school do craft sessions or a book club or a coffee morning - ours does.

Maybe if instead of judging people for their circumstances and making assumptions you need to look at how you can further support them to make heh changes they obviously want to make - or they wouldn’t have turned up in the first place.

it’s very obviously a benefits bashing thread with plenty of judgement baked in - because that’s not your experience.

Scamworried · Yesterday 09:52

marvelousmarmaladian · Yesterday 07:00

soul* sorry but you said you were an education professional.

Yes an educated professional who was typing extremely sleep deprived as my child doesn't sleep.

NorthXNorthWest · Yesterday 09:52

SkinnyCigarette · Yesterday 02:26

What you’re describing is normally found in extremely deprived areas. There are no jobs. No opportunities. Generations of the same families relying on the welfare system, because that’s all they’ve ever known, as there are no jobs and support. Kids behaving poorly in education, that’s if they even make it in.

Many users (not all) of Mumsnet generally don’t experience this life style or have ever come across it.

The ones that have and who share their experiences are generally dismissed and the hard work and any obstacles they have overcome to break the cycle is written off as luck.

itsgettingweird · Yesterday 09:54

Working in special education is a privilege that comes with a lot of responsibility for supporting families as a whole.

20 years in and I wouldn’t do anything else.

OneLilacHedgehog · Yesterday 09:57

Johntaylorschin · Yesterday 01:55

I have met a few families like this but they are the exception, they have multiple disadvantages, parents have often have undiagnosed learning difficulties and had poor childhood experiences themselves, they have children with disabilities and life is tough, they do not have the resources themselves to fight the system, take children to extra curricular groups or community resources as they often have depression, anxiety and difficulty interacting with others.

These families are trapped on benefits, they claim what they are entitled to, why not? However if you have a parent claiming PIP for themselves, DLA for 2 children, UC, carers allowance, child benefit and housing benefit, they could be receiving the equivalent of someone earning around £55,000 a year, they would never be able to earn that, and when the children become adults and benefits reduce they experience a huge income drop.

Yes it's important it's not a pittance.

ForGreenHedgehog · Yesterday 09:59

I can see your point but not sure it’s been put across clearly. I work in an area with high levels of deprivation with many, sometimes large families who claim the mentioned benefits. Within this we have many many families who work hard and are striving to do their best for their children and deserve every penny and more and I can see why many people feel offended! However we do also have a great many families who claim a lot of money in benefits but are unmotivated and do not give their children the care that they need. sometimes this is due to their own learning or health issues, sometimes there is substance misuse and sometimes they just cannot be bothered and are playing the system - with children ending up with special educational needs due to neglect / environmental issues ( think Maslow hierarchy of needs) rather than any other reason. There is a lot of professional support in place to try and improve outcomes for those children, however even with this it is hard to break generational norms.

rememberingthem · Yesterday 10:01

OP you are fighting a losing battle with posters on here, the perpetual victims will not accept that the system is being played and there are people/whole families who earn way more on benefits than they ever would from working! They KNOW how to play the system and get literal thousands into their bank accounts every month and lets be honest why would they bother working when they can get more doing this!! This all started with Blair and Browns welfare reforms and it’s slowly gotten worse with successive governments since! Everyone these days has a “ problem or disability” and i say that as a mother of two children with neurodivergence. When my elder one was diagnosed over 20 years ago i had never even heard of his issue and there was only two other children in his primary school with similar issues. Now every other child has a some kind of diagnosis while all the adults have mental health problems etc!

normanprice62 · Yesterday 10:01

Talking utter garbage op

Fluffypuppy1 · Yesterday 10:02

LaurieFairyCake · Yesterday 08:41

And yet when Rowntree did their research very few families (VERY few) had generations of joblessness.

We all THINK it’s happening because of our right wing media but the actual fucking REALITY of research doesn’t bear it out.

Same as small boats, you’d think we were being ‘invaded by brown rapists’ but the reality is what a tenth of numbers 15 years ago under a Conservative government 🤔

Again, facism at work. We’re getting poorer, let’s find some brown people to blame.

The Rowntree research was discredited years ago as it only looked at a very small area of the country, then claimed it represented the whole of the UK.

OneLilacHedgehog · Yesterday 10:02

Itchthescratch · Yesterday 09:34

It's isn't an anomaly in some communities. It's very hard to distinguish disability from the impact of a chaotic and often quite traumatising childhood. This isn't controversial. Lots of studies show this.

https://pmc.ncbi.nlm.nih.gov/articles/PMC9796059/
ADHD is only diagnosed when traits reach a certain threshold. It's easy to see how these environments are pushing children across the threshold.

Yes. And giving large amounts of benefits money does not improve the situation

Itchthescratch · Yesterday 10:05

BillieWiper · Yesterday 09:46

But what you described is people who don't do much with their lives. Maybe it's because they're lazy, maybe it's because they're in pain or depressed or have ND, but how would you know if they're on PIP or UC or not? And why do you care?

Why mention those benefits at all? Why not just say some people are generationally low aspiration and ability and don't seem to have much motivation to change. Not that that's a particularly astute observation about society at large.

Benefits are relevant because they're an enabler to lazy and unmotivated people. This doesn't mean that everyone on benefits is lazy and unmotivated but let's be honest, if benefits didn't exist then it would be a lot more difficult and unpleasant to be lazy as you would end up without the basic essentials. You don't see many wild animals too lazy and unmotivated to hunt for their own food do you?

It's also relevant because you're right that rich people can also be lazy and unmotivated but if they're not claiming benefits then at least they're not asking the rest of us to fund them. Lots of us don't want to fund lazy and unmotivated people. I think that's fair enough, don't you?