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Whole families on UC, PIP, DLA and carers' allowance for each other?

580 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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Busybeemumm · Yesterday 09:05

ThingsAreNotWhatTheyWere · Yesterday 09:01

Agreed. We seem to flip flop between blaming immigrants and sick/disabled people for all the country's ills and it seems to be the turn of the sick and disabled...

And yet we have PP including myself who have had direct experience of generational reliance on benefits and joblessness. Both can be true.

eleventybillionpillsisntenough · Yesterday 09:05

Why have you written this like an excerpt from a book?
so much waffle. Make your point clearer because it’s not.

I see you saying disadvantaged kids (for many reasons) have disadvantaged parents.

no shit.

you sound incredibly smug

Bunnie007 · Yesterday 09:07

See it all the time in schools - obviously not everyone on benefits is like this by any means but there are a definite group that I feel have been let down by society and as you say it’s become a generational cycle - no aspirations, poor mental health etc

Theroadt · Yesterday 09:08

Maybe the OP is “offensive”, unrealistic, lacking in empathy - I don’t know. Equally, lots of people really do need help, and it shouldn’t be a struggle to access or dealt out with patronage. All I will say is that we have massively increases numbers & cost in relation to benefits since Covid and we need to get back to pre-Covid levels ASAP. As a country we are failung in griwth and can’t afford to continue the way we are. Open discussion is an essential start to this process.

emuloc · Yesterday 09:09

ThingsAreNotWhatTheyWere · Yesterday 09:01

Agreed. We seem to flip flop between blaming immigrants and sick/disabled people for all the country's ills and it seems to be the turn of the sick and disabled...

It is cyclical. It was single Mothers at one point, who faced disgusting scrutiny. The thing that these groups who are being attacked have in common, is that they are vulnerable people.

LakieLady · Yesterday 09:10

EvieBB · Yesterday 02:35

Yes it really does rile me when I couldn't get pip for an actual real disability (chronic fatigue and anxiety) for a number of years....and yet some people really do know how to play the system. I genuinely couldn't work, but didn't get anything and therefore just had to suck it up and live extremely frugally. Thankfully DH had a half decent paid job and cost of living was cheaper and our dc were younger as not as expensive as now. Mercifully I'm now well enough to work....but it galls me that I wasn't supported for a genuine illness, when many others get paid for sod all!

I'm surprised you couldn't get PIP, I've got it for at least two clients with exactly those diagnoses. One of them was initially declined, but we appealed and won.

Pleased to hear that your health has improved, it's a horrible combination to endure.

PollyBell · Yesterday 09:12

Bunnie007 · Yesterday 09:07

See it all the time in schools - obviously not everyone on benefits is like this by any means but there are a definite group that I feel have been let down by society and as you say it’s become a generational cycle - no aspirations, poor mental health etc

And people who cant stop having children when they shouldn't be

EmeraldShamrock000 · Yesterday 09:13

This is more common in working class areas. Not bashing, it is a reality for some households, sometimes the children are diagnosed as having educational difficulties due to their home life.
They never had to play by the rules before starting school, home life can definitely stunt development.

It won’t be a mumsnet majority experience, when you live in an area like I do, where benefits pay more than working it happens, life can become boring small and lose meaning, they trade tips for application forms outside of the school.

I know a few families who are in this situation. Sadly addiction creeps in when life is dull, whether it’s food, Netflix, drink, or drugs.

ThingsAreNotWhatTheyWere · Yesterday 09:13

Busybeemumm · Yesterday 09:05

And yet we have PP including myself who have had direct experience of generational reliance on benefits and joblessness. Both can be true.

I don't think anyone disputes that it can happen, it's the stated prevalence and the inevitable smearing of whole groups of people that people like myself fond upsetting.

dizzydizzydizzy · Yesterday 09:14

Nowdontmakeamess · Yesterday 08:20

They aren’t bashing everyone on benefits, just a specific group of people that have no motivation or need to push themselves or their children towards a life where they don’t need them. You can’t seriously believe they don’t exist - generations of people on benefits, living in council houses, not valuing education - I know plenty in the area I live. They are a drain on society, not contributing anything positive.

I take issue with the OP thinking she knows what people are claiming PIP for (anxiety and MH she says). I doubt she knows them in that much detail. Apart from anything else, the threshold for receiving PIP for these issues is extremely high. My psychiatrist describes my anxiety as ‘severe’ and yet I did not get a single point on PIP for issues created by anxiety or MH. I expect lots of people I know well assume I am receiving PIP for anxiety and mental health. I am not. I am receiving it for invisible physical health conditions.

She also seems to think she knows what these people do all day in their own home/ (game and watch Tv). I really doubt she actually knows.

C152 · Yesterday 09:17

This is the biggest load of self-serving do-gooder tosh I've read in quite some time.

As you well know, DLA is hard to get, as is PIP. UC isn't that easy either, comes with obligations, and isn't actually enough to survive on (without the housing element; not sure if that makes it any easier). I would never go to what sounds like an appalling and badly run type of 'presentation' you got so much out of it. (By the way, why was the TA making coffee for everyone? Surely her time would be better spent elsewhere? Buy a big water heater and have paper cups out and a jar of nescafe for people to make their own coffee.) Why do people like you look at someone struggling, broke, unable to work or pursue further education due to caring responsibilities and say, 'I know what she needs? A parenting class! That will fix it all!'

Benefit did NOT make these parents the way they are. How about looking at some research identifying approaches other countries have (successfully) tried and working out which elements would work here?

TreatYourKiwi · Yesterday 09:17

dizzydizzydizzy · Yesterday 09:14

I take issue with the OP thinking she knows what people are claiming PIP for (anxiety and MH she says). I doubt she knows them in that much detail. Apart from anything else, the threshold for receiving PIP for these issues is extremely high. My psychiatrist describes my anxiety as ‘severe’ and yet I did not get a single point on PIP for issues created by anxiety or MH. I expect lots of people I know well assume I am receiving PIP for anxiety and mental health. I am not. I am receiving it for invisible physical health conditions.

She also seems to think she knows what these people do all day in their own home/ (game and watch Tv). I really doubt she actually knows.

I do have to dispute this. I know a few people with private diagnosis for various conditions, when you are paying you can often get the doctor to write / say whatever you want, make amendments, pay them to write letters and other documentation, which can then be submitted to DLA and PIP.

It’s an uncomfortable truth but a truth nonetheless 🤷🏻‍♀️

emuloc · Yesterday 09:18

EvieBB · Yesterday 02:35

Yes it really does rile me when I couldn't get pip for an actual real disability (chronic fatigue and anxiety) for a number of years....and yet some people really do know how to play the system. I genuinely couldn't work, but didn't get anything and therefore just had to suck it up and live extremely frugally. Thankfully DH had a half decent paid job and cost of living was cheaper and our dc were younger as not as expensive as now. Mercifully I'm now well enough to work....but it galls me that I wasn't supported for a genuine illness, when many others get paid for sod all!

It sounds like you should have been able to claim something, when you were ill. The fact that you could not, has no bearing on anyone else who does. The PIP process is not interested in what your illness, or disability is. It is about how an illness, and disability impacts a person's life. If that is not communicated on the form properly, then the claim is likely to be denied. Nobody is getting paid PIP for 'sod all'. That is unfair, and untrue to state so.

Octavia64 · Yesterday 09:19

Happytaytos · Yesterday 08:06

It's a Personal Independence Payment.

There are plenty claiming who can walk and speak. Look at the claimants with MH issues. It'd do a lot of people good to be up, dressed and out of the house for 9am daily, engaged with other people for part of the day and doing something worthwhile, instead of sat rotting inside on Netflix.

If it is completely impossible for you to work, there can be exceptions. But the majority on PIP can do something.

The majority on pip would like to do something.

wheelchair accessibility in the current society is appalling. I get pip following an accident which means I use a wheelchair full time.

I go to a lot of disability social groups now (don’t work any more as medically retired) and honestly the majority would love to work.

but employers don’t want someone in a wheelchair who physically can’t access most of the shop/museum/workplace.

it’s a bit better now as working from home is more accepted so some more of my friends have got part time jobs.

it would genuinely cost an absolutely insane amount of money to get everyone on pip working. Think about the limited possibilities - the jobs most easily available are care, teaching assistant, retail. Someone who is blind can’t work as a carer in a care home without having a 1:1 to support yuem.

i used to teach (from a wheelchair) and my school once assigned me to a school trip out to support another lad in a wheelchair. I’m in a wheelchair myself - I can’t assist him with toileting or help him move.

asking people on pip to do free work would have a massive take up (see the occasional internships for disabled people the government runs - horrendously oversubscribed and very hard to get on) but cost an absolute bomb.

AGlessandahalf · Yesterday 09:25

Shall we go back to having workhouses and orphanages??

Palomiino · Yesterday 09:25

ExpectMore · Yesterday 08:57

It goes back into circulation, having been taken out of someone else’s pay packet. That’s the issue: those people whose pay packets are reduced are questioning why, and it’s surely right for them to do so as everyone should surely want to ensure their money is being spent correctly and effectively.

So whilst I agree that we as a country need to (do better to) support those needing additional assistance, society (those paying, those getting: to put it bluntly to make a point) needs to accept a conversation on what’s reasonable, what’s a correct use, and how best to leverage the money spent.

I find it incredible that as soon as someone questions what money is spent on benefits (in order words: applies some critical thought), they’re immediately jumped upon by the mob.

Why should people with disabilities be treated like second class citizens and have to justify what they spend their money on when they already struggle in a world that wasn’t designed for them?

I can always tell which people have no idea what it’s like to raise disabled children or how much more they cost than non disabled children when I read comments like yours.

My friends disabled child is out of school atm because schools are shite thanks to many years of austerity and she’s paying £90 per hour for her child to have a SEN tutor.

If you want a two-tier system of treatment for humans then there is a word for that - fascism.

emuloc · Yesterday 09:26

AGlessandahalf · Yesterday 09:25

Shall we go back to having workhouses and orphanages??

That would please some people, make no mistake about that.

bababamama · Yesterday 09:27

Unfortunately op what you witnessed is identical to my personal observations. I feel sorry for the kids to be honest. This isn’t benefit bashing, it’s an observation that the cycle of low expectations, mental health problems caused potentially by lifestyle then going forward Sen caused by parenting. I suspect that in time we will realise these cyclical cases have underlying genetic conditions hence multiple generations.

kids do break out of the cycle but typically it takes dedicated teachers and other adults in their lives who demonstrate another pathway. I know a lad who has (neither parents nor grandparents worked) hes a computer coding person of some description.

NotPerfectlyAdverage · Yesterday 09:27

I have three kids with ehcps who get dla or pip. Imagine my surprise to be in this situation as a STEM graduate from a corporate role.

I have met hundreds of other SEN parents. I'm also a SEN school governor.

What I have learnt? Lots of parents also have undiagnosed SEN symptoms. Some have grown up with no support to escape their own lack of support / diagnosis/ education in some cases.

Gobsmacked you haven't seen this.

How many people on the prison system have ADHD? You should know that % as a professional.

I have been to parenting classes and thought it's a load of bollocks. Because I have yet to find one that shows me how to "cure / fix / remove the sysmtoms that get my kids diagnosed" .

What's the answer? Remove dla, pip, carers allowance? Without those I'd struggle to house my severely disabled son at times and would certainly have to think hard about a residential setting for him.

Spoiler, I'd not be paying for that and it's more than his DLA.

Remove diagnosed? Let's all the kids get expelled to a pru? Then drop out of education? Find jobs for kids who grow up with no gcses? You want to employ those kids as adults? No? Want to pay their benefits? No? Want them living rough on your high street? No?

Give me the perfect solution whee no one pays for anything and SEN kids grow up educated and able to fully contribute to society. Because you have the golden bullet right there.

After that give me a answer to stop heart disease and cancer to save the nhs. Unfortunately it's not just fat lazy smokers who get heart disease or cancer. So it's a bit more tricky to say they are just lazy bad spongers.

Itchthescratch · Yesterday 09:28

Palomiino · Yesterday 08:29

So you are jealous of your disabled siblings? Lovely.

Comments like this are ridiculous.

If you are working FT in a job you hate and can barely afford to keep a roof over your head then of course you will begrudge people going on multiple holidays year and enjoying a higher standard of life than you all at the cost of the taxpayer. It isn't equitable and it will drive all sorts of perverse behaviours.

Disability and ill health is nowhere near as black and white as you and many others suggest. Many of us are slogging away at work with chronic conditions and poor health. Over three quarters of people over 45-64 have a chronic health condition and lots of these will make working harder. We can't all claim benefits and stop working. Very little help and support is available because guess what, there is no money. Yet someone pointing out that some on benefits shouldn't be on effectively tax payer funded holidays and you get called jealous. It's like the ultimate playground taunt. If you don't like something and think it's wrong then you must be jealous... We need to be able to have nuanced debate without resorting to lazy tropes like calling everyone jealous or benefit bashers.

ElefantAndCastle · Yesterday 09:29

GreatWideOcean · Yesterday 08:35

I don't work due to caring for people with disability (and don't claim welfare). If my household income wasn't too high, I'd get carers payments for sure. It's too unpredictable for me to easily work, so I don't. However, there is no actual reason I couldn't work if I relied and welfare and they made me. Then I'd pay tax. Then I'd have to use government funded services to do the work I'm doing for free that the government doesn't currently pay for because of me doing it. That would vastly exceed anything I'd pay them in tax if working part-time. Cutting welfare for carers may often be short sighted.

I would rather that UK paid for these services than forking more or less random out.

It seems to work a lot better in other countries not to have all these paid family members. One benefit would also be useful to hand out. My native country it's a benefit a bot more than minimum wages. Not a open pot of money. At all.
No pip no extra money for being your partner's or mum's carer. No first to council housing. Not all that fuss.

BadBadCat · Yesterday 09:29

I think I can see where `OP is coming from.

But having children with disabilities is a bit of an anomaly; the sort of people she is describing exist without DC with disabilities and plenty of people with are not like the families she is describing.

I think there is a real problem with multi-generational and whole families claiming benefits. I know families through my work who fall into this category and it's a cultural issue rather than genuine needs.

Pandersmum · Yesterday 09:30

AmnesiacsDream · Yesterday 02:01

I think it's often forgotten that the demands of the workplace now are far higher for low level work than they used to be. Healthy and safety requirements, tight scheduling to eek out waste, emotional labour demands, etc. lift jobs that used to be fairly low demand and accessible for people with many mental health conditions out of reach. This increase in demand has created an unemployable class.

Possibly, intense intervention could help some gain the skills needed, but we don't provide that as a matter of course and it's not something people are generally able to access for themselves, especially if they haven't been exposed to the idea it's even possible in a way they trust.

Of course there will be a few people who play the system, but when countries with welfare states do cut benefits to people in these situations, they don't tend to find that there are suddenly masses more people working in sustained employment who had been on benefits before. They find people in states of desperation. Pinging from one job to another. Relying on family, friends and charity. etc.

Edited

This. The low power level jobs that were once available are now very hard /impossible to find. As an employer, employing people who cannot regularly turn up and do the job that they are paid for is a significant management challenge that doesn’t grow the top line / makes the business thrive.

It’s ‘easier’ all round for people to live off benefits and they have a better quality of life than working as they have more disposable income and more time.

The harsh reality in the business I work in, is that trying to employ an unskilled worker, on a salary under £45k is just not attractive to someone in a rented house with children as they are better of claiming a variety of benefits.
Someone will say then pay them £45k per year to do an unskilled job but the reality is our customers will not pay higher prices and the business will close. Why should business owners work really hard to make no profit?
if they make no profit, they also pay no corporation tax which means less money for benefits.

ElefantAndCastle · Yesterday 09:31

Palomiino · Yesterday 09:25

Why should people with disabilities be treated like second class citizens and have to justify what they spend their money on when they already struggle in a world that wasn’t designed for them?

I can always tell which people have no idea what it’s like to raise disabled children or how much more they cost than non disabled children when I read comments like yours.

My friends disabled child is out of school atm because schools are shite thanks to many years of austerity and she’s paying £90 per hour for her child to have a SEN tutor.

If you want a two-tier system of treatment for humans then there is a word for that - fascism.

A lot of people om minimum wages are being second class. Work hard only getting by.

Palomiino · Yesterday 09:31

TreatYourKiwi · Yesterday 09:17

I do have to dispute this. I know a few people with private diagnosis for various conditions, when you are paying you can often get the doctor to write / say whatever you want, make amendments, pay them to write letters and other documentation, which can then be submitted to DLA and PIP.

It’s an uncomfortable truth but a truth nonetheless 🤷🏻‍♀️

You saying this does not make it true. Actually it’s bollocks. There is no doctor who would be stupid enough to risk their reputation and credibility (not to mention being struck off) by faking a diagnosis for money.

And yes, the NHS does outsource diagnosis assessments to doctors doing independent work nowadays because the NHS has had money stripped away from it for years.

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