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Immune/NK issues - aka Pred Thread no. 21!

(998 Posts)
Tee4me Mon 04-Sep-17 15:17:11

Roll call for all moony faces!! 🌝🌝🌝

Waiting for our rainbows πŸŒˆβ€οΈπŸ’›πŸ’šπŸ’™πŸ’œ

Age: 34
TTC DC#2 since December 2015
x2 MCs (second was 'missed')
DS turns 5 this month 😱
Seeing Dr Shehata - diagnosed with Hypothyroidism and aggressive NK cells
Currently on cycle 2 of Pred and week 6 of Thyroxine
CD10, expecting to ovulate at the end of the week 🀞🏻🀞🏻🀞🏻

JustLa Mon 04-Sep-17 15:45:39

Thanks Tee!!

Hope all the moonface Wobblers make it over 😊

Age 38 DH 35
Ttc on and off for past 5 years
3x MC's - 1 chemical 5-6 weeks, one missed completed naturally at 11.5 weeks, 1 missed completed with ERPC at 9-10 weeks. HB never seen before now.

Currently on Mr S plan for sticky blood (APS) and high NK cells- pred, Cyclogest, fragmin, aspirin, and right now I'm 14+2 weeks pregnant, yayyyy!

Hoping my first little squidger will be born in Feb 2018 ❀️

Best of luck to all our fellow pred heads in here πŸ’•πŸ’•πŸ’•

Drttc Mon 04-Sep-17 16:16:06

Thanks Tee!

Age 30
4xMCs all by or before just over 6 weeks
1 Pred baby (DS) born in 2016. Used everything- pred, regular acupuncture, gluten free, caffeine free, tee total, Super Ovulation with trigger shot, cyclogest, fragmin, aspirin, hydroxychloroquine for 6+months, ubiquinol, folate, vitamin B6, NAC, wobenzyme

8 weeks + 6 days pregnant with a miracle drug free pregnancy!

harrietm87 Mon 04-Sep-17 16:28:31

Yes thanks tee

harriet, age 30.
3 mcs (2x natural at 5 weeks, 1 mmc which stopped at 5 weeks but found at 7 weeks, MVA at 9 weeks in April).

Have hypothyroidism and aggressive NK cells. BFP cycle 2 on pred with Mr Shehata and now 8+4 (I hope...scan on Wednesday)

Love this thread and all our lovely moonfaces!

Seekingmiracles Mon 04-Sep-17 16:32:32

Thanks for the new thread!!

Age: 33
4 mc (5 weeks, 8weeks,4 weeks & 9weeks)
Under Dr Shehata for High NK Cells and Prothrombin Gene Mutation.
On pred, cyclogest and Fragmin.
1 DD, on Mr Shehatas protocol
Currently 11+6 with #2, on same protocol as before.

Take4 Mon 04-Sep-17 20:31:16

Thanks Tee!

Age 43 - hopeful but realistic

3 miscarriages since Sept
1 x 8 wks (D&C at 10 weeks) - partial molar. Grateful for all clear relatively quickly.
2 x natural @ 5 weeks

Dr S treating me for High NK cells.
On pred and Hydroxychloroquine started 2nd round today.
If not preggers this month will start Super Ovulation due to age and time constraints.

Love this thread.

Over and out.

sunnyday01 Mon 04-Sep-17 21:22:28

Thanks tee!

Age 35
3 x MC, 8 weejs, 5 weeks and 5 weeks (3rd MC on Mr s treatment plan)

On Dr s complex programme p for high nk and high cytoxicity nk cells - pred, hydroxy, intralipids etc.

1 x DS - took 8 months to concieve once starting treatment. Was in a pred break so started at bfp

Currently 35 weeks with ds2 - was a 'surprise' so started treatment at bfp and didn't have hydroxy this time!

Sheepy1980 Mon 04-Sep-17 22:24:51

Sheepy aka Katie
TTC #2 already have a DD 18 who is off to uni
Have got 14 angel babies
Awaiting my appointment with Professor Quenby who is like Dr S but even more of a God!
I have Fibro & Lupus so I take a cocktail of meds
Along with 20mg predisnolone a day which I have been told by the recurrent miscarriage nurse to constantly take along with 300mg Asprin a day. I am constantly hungry or weepy
Welcome to all newbies

PoppyJ1 Mon 04-Sep-17 22:40:11

Hi all,

TTC no 1. Age 35, DP 36 with existing kids from previous relationship. 1 chemical Nov '16, 1 incomplete miscarriage Jan '17. High ovarian reserve and progesterone, underlying endocrine condition with slightly increased MC risk. On Pred full time since March to help next pregnancy, trying again since April but missed a couple of windows due to DP being out of town for work!

Fingers crossed for September.

SophS88 Tue 05-Sep-17 07:40:24

Thank you for the new thread,

I'm Sophie, 28.

MC Feb 6w
MMC May 8w (HCG levels hadn't doubled correct rate when tested at 6w, to our surprise saw baby with heartbeat at 6w scan, 7w scan all seemed great, 8w no HB. D&C)
Early MC 4ish weeks June
Started of Mr S complex plan for high NK cells. Pred, intralipids and all the usual prenatal stuff he advices.
Currently on 2nd cycle of pred. Check up on a week if not pregnant this cycle.

Still skeptical and not sure what to believe but reading all your stories is a huge help.


harrietm87 Tue 05-Sep-17 11:20:50

Where's our moony luna? @LunaB hope you find us!

How is everyone doing? I've started to feel really quite nauseous (finally breaking through the pred!) which I'm taking as a good sign though still bricking it about scan tomorrow.

Also wondering how amy is doing on Mr S's controversial advice. Well I hope.

LunaB Tue 05-Sep-17 12:07:52

HELLO beauties! Found you! Thanks @harrietm87 ! πŸ’“

I've literally screen shotted all your updates for my records! So many of you have progressed so much from the start of the last thread! ☺️

Age 35
3 MC (1 natural @ 7w, then DS born naturally, then 1mmc @ 9w (ERPC), then a natural @ 5w)
Cycle 2 of Pred for Dr S Complex NK Cells (regular amount of cells, but aggressive baby eating bastards)

Have fully swapped real friends for this group πŸ˜‚ Love ya, bearded fat moon wobblers πŸ¦πŸ·πŸŒπŸ’ƒ

LunaB Tue 05-Sep-17 12:09:01

Soz you're feeling rough Harriet, but also glad ☺️

Yes I wonder how our Amy the Aussie is doing!?

JustLa Tue 05-Sep-17 14:41:30

I was waiting for Luna and Amy too! Glad you found us Luna.

Just looking through everyone's history and journeys so far... it's incredible- and you are all amazingly tough women! (Am I the over emo one of the group?!) So glad we found each other anyway πŸ’•

Oh bummer Harriet, is it weird that I quite enjoy the nausea as part of a 'normal' pregnancy?
Small but often eating, salt and vinegar crisps and especially sparkling water really works for me.

2 more days of Pred and it's just Cyclogest, Heparin, Aspirin and the other vitamins to take. Trying to eat healthily so I decided baking a massive chocolate cake was a great idea- Thanks for that 'Great British Bake Off' 😬🍰


LunaB Tue 05-Sep-17 14:55:26

Wow just! It's almost over!! How long do you take the progesterone for? I bet you can't wait to be done with the Heparin - but a little longer to go on that one!!!

Tee4me Tue 05-Sep-17 16:30:27

Ah wow Just! How exciting. I know what you mean about enjoying the nausea in a weird way. I loved having some symptoms with my 2nd bfp in 2016. I would take any symptom under the sun right now if it meant a healthy bubba.
So I'm CD11 and opk is snowy white. Usually get my raging peak on CD12, so definitely looking like I might be in for an unusual wait for the egg this cycle, I usually have very visible lines by now. I know someone on here warned about Pred interfering with ov.
Take & Soph, did either of you ovulate later this month compared to last?

SophS88 Tue 05-Sep-17 16:42:36

Hi Tee, so far it hasn't effected my ovulation days. The longest was cd13 but that was after my last mc and then the three in between have been around cd 11/12. My strong positive OPK's have been lasting a good day even 2 days though- before it was a very short surge. So I've started temping too to try and help pin point it. Hope yours doesn't keep you waiting much longer 😘

Amy2017 Tue 05-Sep-17 16:44:38

Hi folks! Found ya!

I'm Amy, 36 and I've had 2 MC over the past 11 months. BUT! I'm 5 weeks pregnant today. Crossing EVERYthing. Fingers, legs, eyes smile

I'm heterozygous for prothrombin gene mutation, so I'm taking daily Fragmin 5000 for sticky bloods. I had been advised to go on Mr S complex plan, but got pregnant in the mean time so to my surprise, he's paused it as I hadn't taken the pred since ovulation.

Thanks ladies for asking after me Harriet and Luna! I felt a bit of a intruder posting when I'm not currently suffering a moonface alongside you, but so nice to keep up with your news.

I've been on a rollercoaster with my treatment and emotions, as you all know! Aside from last weekend in a Champneys spa, that was wonderful ;).

I've been bravely jabbing these daily Fragmin injections (I usually HATE needles) and man do they bruise you and burn afterwards. Was it you Just that told me that would happen!? You're so right.

I'm still terrified I'm going to lose this one. This morning I did another preg test - the digital one with the weeks indicator. It flashed a bit and told me I was 3+. WTF!? 3+!? I was supposed to be 5 weeks today! Tears started to flow, certain this was an indication my bean is not developing properly. Then I read the test properly: it only indicates weeks past ovulation, and that was the highest you can get, bang on schedule. PHEW.

I have my first scan with NHS next Wednesday, at which point I'll be 6+1, then with Mr S on Thurs. There's literally nothing I can do but wait, and try to relax.

I'm supplementing the treatment with 2 week visits to my Naturopath (who also does a creepy, awesome thing called BodyTalk to me) and my acupuncturist. Throwing in some yoga, walks etc. too. I'm trying to keep negative thoughts at bay is tough when you've been through what we've been through.

I'm trying to harness the power of The Secret, Poppy!

Big love to you all. And welcome newbies! You've come to an awesome place xx

Amy2017 Tue 05-Sep-17 16:49:26

And Just! Amazing that you're nearing the end of the pred. Must feel great smile X

LunaB Tue 05-Sep-17 18:42:10

Amy, we are all moonfaces in spirit my dear - including you and Drttc who are both Pred free smile) Glad you are doing so well at being healthy in mind, body & soul - can't wait for your scan poppet πŸ’“

I'm concerned re late ovu too Tee... I'll start testing on Sunday and am curious to see if Pred had interfered with me 😩 I might start temping if I think I'm loosing the plot

Seekingmiracles Tue 05-Sep-17 18:48:18

Sorry your feeling rough Harriet, hopefully it's just a random wave and won't last too long!! Scan tomorrow isn't it??

Just... YAY to being off pred!! You'll no longer be in the moon face gang!! You'll have a skinny face again in no time!!

Amy glad you're feeling positive! Sounds like you're doing all the right things!! And it's great that the test is progressing through the stages. Fingers crossed for next Wednesdays!

I'm officially now weaning off pred so hopefully no more fat face in a few weeks!! Yay!! Already sick of the bruises of the injections but hey ho... if it gives me my healthy baby!! I'm off on holiday in a few weeks, I'm going to look like DH has been beating me!! Lol!!

JustLa Tue 05-Sep-17 19:23:26

Amy, you're a moon face and a wobbler! We don't discriminate here! You've been through the shit, like all of us so we have a special common understanding. It does feel nice to be taking one less drug fo-sho!
With the Fragmin, I've found pinching and inch for 5 or more seconds helps with needle, but running up and down stairs with affected leg leading each step works a treat! I feel it disperses the burning quicker πŸ‘πŸ» I also look for blue capillaries and avoid those. Good luck for weds, and also good to remember a HB doesn't always show at 6 weeks so try not to 'wobble' if you don't see one. Great news on the home test result!

Luna, I think progesterone is until 16 weeks but think I will take until pack is finished.... just to be safe, Lol. Fragmin is until 6 weeks after birth! Ouchy. I think your ovulation will be perfect this month, and you can 'force boink' your heart out ❀️

Soph, hope the temping works for you this month!
You too Tee, hope you get the flashy face in next few days 🀞🏻I feel same about symptoms, love them (although some of the pull/tug feelings in abdomen and cervix freak me out lol)

Seeking, I have a double chin... with a blonde beard. I basically look like one of the Hairy bikers or Santa, haha. All worth it though so not complaining πŸ˜‚
Mum asked me to go swimming, I said no way, people will stare! Joked with hubby about featuring on naked attraction right now as screen goes up... they would see burnt calves from turning trousers up and avoiding sunscreen parabens followed by bruised covered thighs, then big bloated belly, then acne chest and face- winning!!
Again, totally not complaining 😊

Big love to my mooners and shakers


PoppyJ1 Tue 05-Sep-17 19:24:39

Amy, well done. I'm going to dig out the book again and try to get my mind properly on board for next month!

Has anyone noticed their hair (on the head) grows more with Pred? I'm getting loads of new growth all over, including my cows lick and just behind the sideburns. It's good cos it's making my hair thicker!

JustLa Tue 05-Sep-17 19:59:13

I haven't noticed that Poppy but I'd say it's probably happening considering all the other extra hair I'm cultivating. You're thinking positively already with the hair thing, go you!

PoppyJ1 Tue 05-Sep-17 20:15:28

Just, just realised it could be the prenatal vitamins!

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