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Children's health

Please help..

82 replies

tinajayne1993 · 27/01/2017 21:41

Hiya I'm a first time mum to a beautiful boy and need some help. Since birth every time he eats he is really unsettled and was being sick afterwards. He also hated being put down flat to sleep. He also has had gunky eye since birth. we went to the doctors who said he had conjunctivitis so gave drops and he said he sounded like he had reflux and colic so gave use gaviscon to put in his bottles we also used infacol with every feed it seemed to help for a couple of day with the quantity of sick but not the discomfort after eating e.g Tensing up ,legs pulled up, grunting and crying this was at 3 weeks old after a week I went back to the doctors also by this pointed when he was sleeping he stop breathing and then gasp for air and had blood in his poo twice. I thought I'd hit the jackpot when I got a female doctor thinking she will be more understanding but I was totally wrong. I explained to her what was going on she checked him over and said he was fine and that baby's are sick and they will cry and to deal with after braking down crying and getting no where with her I explained about his breathing and she said his lungs sounded fine and he wasn't doing it now so he was fine and that I should be speaking to my health visitor about all this. I did and she said go to the doctors. I truly had enough and walked out as she was not understanding at all and made out that I was a hypochondriac. I phoned my health visitor to come out and watch a feed to witch she did and she could see his was in really discomfort. She said to try colief so I did for a week and still it did work so I phoned the doctors and asked if it would be okay to change his milk to comfort and they said they couldn't see any harm. So he has been on comfort for a week and a half now and even though he doesn't bring his legs up and tense as much his still got the following symptoms ; Gulping air and coughing/spitting food out whilst feed
Tensing after feeds and making grunting noises and wriggling and throughing head back even when sitting up straight
Fleming/wezzing breathing
Sqwelling after feeding and random times through the day
Holding breath Tensing and going bright red and grunting numerous times of day
Gasping for air when sleeping
Sqwelling and grunting and wriggling about when put down to sleep and going bright red half hour after feed
Being sick hour / hour half after feeds
Hiccups all the time
Sneezing and coughing frequently
Blood in poo twice
Rashes on arms chest and neck
Rashes on side of head
Glupping alot after feeds
I feed him sitting up, i also keep him upright after feeds for 20 - 30 mins, I have put books underneath his moses basket, I have changed his Tits size, I burp him 3 times in a feed I have tried everything I can think of I have a doctors appointment on Tuesday again because I know something not right. Sorry about the long post just hoping some one can help me with handling all this and wondering if anyone else's baby was like this and what was the out come. Thanks you

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mrsBeverleygoldberg · 27/01/2017 21:46

Some of the symptoms sound like reflux and colic.
You need to see a different doctor for sure. Some of the symptoms sound like lactose intolerance.
But I'm not a doctor. You need to see a different one as I agree with you that it's not right. Mums know their babies best. The doctors you've seen so far are crap.

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Heirhelp · 27/01/2017 21:49

Some of it sounds like reflux. Gaviscon is the first medicine given as it is the cheapest but it is not the best. Randitadine is the next step in r flux treatment.

Are you breast feeding or formula feeding?

Blood in poo suggests allergy.

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tinajayne1993 · 27/01/2017 21:50

I have a appointment with a diffrent doctor on tuesday but I am really scared about being told his baby and this is normal, it's really getting me down to the point I am crying all the time over it cos I know something wrong but no one's listening or will to do anything about they have even got me second guessing my self.. thank you so much for a reply I just don't know what to do anymore..

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howtheheckdoidealwiththis · 27/01/2017 21:50

Hi. Didn't want to read this and run although I don't have any real ideas. If I were you I would ask GP firmly for referral to a paediatric doctor as the rashes & bloody poos would really worry me. Poor little thing sounds really uncomfortable. Do you have a local walk in to get a referral this weekend if he gets worse? Good luck x

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JennyOnAPlate · 27/01/2017 21:51

My first thought is allergy. Can you see a different doctor?

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tinajayne1993 · 27/01/2017 21:52

I am bottle feeding him. He is gaining weight so they don't seem to be bothered about him crying and what I would say him being in pain. I knew when I was pregnant that It would be hard but he never seems happy or content and it breaking my heart.. thank you for the reply heirhelp

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Gileswithachainsaw · 27/01/2017 21:54

Allergy/intolerance

Not normal.

Sounds alot like dd2 as a baby. They tried to fob me off with reflux too.

Funnily enough everything went away with a prescription of aptimil pepti

It's expensive they don't like to prescribe it ajd they'd send you home with buckets of gaviscon before entertaining the idea it's something else.

I had to pretty much demand it

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JeffreySadsacIsUnwell · 27/01/2017 21:56

Can you video some of the symptoms on your phone?

We did this (severe reflux amongst other things) and it was helpful in getting a diagnosis (though not quite as helpful as DC1 projectile vomiting 360 degrees in the consulting room...).

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tinajayne1993 · 27/01/2017 21:57

Howtheheckdoidealwiththis no I live in Scotland we have nhs24/7 to phone but I've phoned and they say to go to my doctors. I am 23 so when I go to the doctors I just feel like I get treat like I'm young and I should just listen to what they say I tried last time to be so firm but she just broke me down. I see a different doctor on tuesday so hopefully she will be more understanding cos all I'm getting now is his a baby and my hv says what upsetting his tummy now might not next week jennyonaplate

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HelsBels5000 · 27/01/2017 21:58

Cranial osteopathy - its expensive, but it works very well for babies with reflux, silent reflux etc

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NotAUserNumberSoNotATroll · 27/01/2017 22:00

My DS had all those symptoms due to cows milk protein allergy - all disappeared after keeping him dairy free

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tinajayne1993 · 27/01/2017 22:02

Gileswithachainsaw did you have to try anything else before they would give you when I spoke to the doctor on the phone about changing his milk I explained everything and he said he would not prescribe anything but gaviscon cos his so young I feel like I get no where with them. Jefferysadsaclsunwell I have started to because every time I see the doctor or hv they catch him when his in deep sleep or acting like everything is fine and I'm just crazy haa I feel that way some times

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CatsCantFlyFast · 27/01/2017 22:02

The difference between gaviscon and ranitidine in simple terms - gaviscon makes the milk in the stomach more solid, preventing vomiting. But it doesn't stop the acid coming back up which causes the pain. Ranitidine works to neutralise the acid so reduces the pain, although it mightn't stop the vomiting - but generally, assuming no big weight loss, vomiting isn't an issue

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tinajayne1993 · 27/01/2017 22:03

Helsbells5000 how do I go about to get that?
Notausernumbersonotatroll did you bottle feed or breast? If you don't mind me asking.

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tinajayne1993 · 27/01/2017 22:07

Notwithoutmymerkin that's good to know Yeah his a wee chunk he was born 8 pounds 11 and is now 11 pounds 13 and his 6 weeks on Saturday. He eats 8 oz bottles I have tired giving him less but more often but he is grumpy because he wants his food now not later I tried to give him his dummy till his next feed but he would scream the house in and still doing everything on my list even if he only get 4 Oz so I don't know what to do and don't have anyone to ask about this stuff..

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mycavitiesareempty · 27/01/2017 22:11

How old is your baby?? Sorry if I missed this in your original post.

What Giles... and jenny.. said, with knobs on. Allergy makes a lot of sense and if so, It'll be to the Cows' Milk protein, not the lactose, that's the problem.

There are of course other things that could be going on, Has he had pyloric stenosis ruled out? Floppy larynx? Poor suck-swallow pattern? Tongue tie?? there will be something underlying this, it honestly doesn't sound normal and I know how very hard it can be to get a resolution with young babies. People tend to put it down to the baby being just a baby, but us mums (and dads) have a good idea of what's in the realms of normal I reckon.

If you are really really desperate you could go into boots tomorrow and buy a tub (subject to your finances and their stock) of either:

Aptamil Pepti 1
Nutramigen
Nutramigen AA
Neocate

These are all anti-allergy formulas, with Nutramigen AA and Neocate being the least like actual cow's milk. Pepti might be sufficient and is more palatable and cheaper to buy OTC than the others, if I remember rightly. For some babies however, Pepti isn't suitable as it's not broken down enough and you need to try something else.

LOTS of doctors do not know about milk allergy and intolerance. Even our excellent GP took a lot of persuading and a letter from a Paed before putting the hypoallergenic formula on repeat.

this link might help

Good luck.

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empirerecordsrocked · 27/01/2017 22:13

It sounds like reflux based in my experience and he needs to be properly medicated - we had gaviscon, ranitidine and domperidone although I don't think they recommend domperidone anymore. Omeprazole can also be used.

Can you video the episodes and show them when you see he next doctor.

If they say no to reflux I would be investigating cows milk protein intolerance.

In my experience god don't have great knowledge of reflux. Is there any chance you could pay to see a paed?

Dts had reflux of prematurity, slightly different but same symptoms, when they got worse the gps had no idea that you had to increase dose with weight gain.

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LanaJH3393 · 27/01/2017 22:14

I had the same kind of problem with my daughter when she was a few weeks old - She would tense up after being fed although she winded ok, and had blood in her poo

the reason for this was because i couldnt breastfeed so i had to put her on formula - I started her on SMA and she would cry for hours in discomfort - i took her doctors and they dismissed me the same as you - only for me to realise that the SMA i was feeding her was for COMBINATION feeding which means you are breatfeeding AS WELL AS bottle feeding - as a result of this she wasnt digesting it properly - which meant she got blocked up from being constipated (when she did poo 3 days later it was hard solid pellets which made her bleed when she passed them) which resulted in the crying and discomfort.....as soon as i realised my mistake i put her on SMA COMFORT and within 2 days she was pooing (which was a lot more wet but not runny) and seemed alot more relaxed and even started sleeping through the night- sorry for the essay i hope this helps!

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LanaJH3393 · 27/01/2017 22:16

it is also very common for babies to hiccup quite alot when they are young - just make sure the teat is filled at all times so they dont take down any air Smile

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tinajayne1993 · 27/01/2017 22:22

Mycavitiesareempty he is 6weeks on Sunday. No he has been tested for nothing no has even mentioned anything like that to me so I will have to look into them. I have changed his milk once and got told not to do it to often he is on cow and gate comfort that is partly broken down and hasnt seem to help much.. I'm gona have a look at the other ones cos I will do anything to help him out.. empierecordsrock I have started to record them so they can see. Do you know ruffly how much a private paed would be I will do anything to help him..

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empirerecordsrocked · 27/01/2017 22:24

I don't know I'm afraid because my daughters were prem we were under consultant care automatically mostly.

I hope you get it sorted.

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tinajayne1993 · 27/01/2017 22:29

Empirerecordsrocked oh okay dokie thank you very much for your advice it has helped.. lanajh3393 his on cow and gate comfort to see if that help and when the blood was in his poo it was the normal poos. I do try but sometimes he drink the full bottle so it does get to the point where he might get a bit of air when he has the hiccups I give him gripe water as this seems to stop them straight away thank you for your advice :)

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Heirhelp · 27/01/2017 22:31

I suggest you go to see another dr with a list of the problems and say you know this is not normal and ask what treatment they recommend. Find your inner 'tiger mummy'. Testing for cow milk allergy and reflux are both treat and see. With blood in poo I would think allergy would be their first thought.

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tinajayne1993 · 27/01/2017 22:34

I know I have to cos he has no voice to tell them so I know I have to push for him it's hard cos I second guess my self and don't like confrontation. Hopefully the doctor is good on tuesday if not I'm going to have to change doctors as my doctors only have a couple of doctors in. Thank you for your help heirhelp

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Gileswithachainsaw · 27/01/2017 23:13

I was sent home with movical twice Hmm

Because of all the straining and grunting

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