Hmm also in the telegraph today is this:
^www.telegraph.co.uk/news/2023/05/28/terminally-ill-brits-deserve-access-to-experimental-treatme/?utm_medium=Social&utm_campaign=Echobox&utm_source=Twitter#Echobox=1685263871-1^
its about how terminally ill patients should get easier access to experimental drugs. It's concerning that it's raising its head as comment in the Telegraph today of all days.
Even more so this is slightly weird for me, as earlier this morning I was googling about quackery and came across an article talking about the Medical Innovations Bill in 2014 and what was debated in the Lord's about it. This bill which never passed was on exactly the same subject.
This is going off piste from the thread topic but I think the article is worth quoting because, I think you will see the parallels with concerns about the Tavistock and what has ACTUALLY happened with experimental treatment. If anything there is an argument to TIGHTEN our regulation.
https://www.theguardian.com/politics/2014/dec/12/quacks-charter-untested-medicines-bill
Dr Sarah Wollaston, who leads the Commons health committee, said the medical innovations bill proposed by Lord Saatchi would endanger patients and undermine genuine medical research.
The bill, which is being debated on Friday in the House of Lords, appears to have government backing but is opposed by a growing band of doctors and medical experts.
Wollaston said even the insertion of safeguards forcing new treatments to be approved by a qualified doctor was insufficient to improve the “very bad” legislation.
“Actually, the amended version says you only need one other doctor – it’s one or more other doctor,” she told the Today programme. “This is a quacks’ charter. It removes essential protections from patients. It actually won’t advance innovation at all, and in fact if anything it’ll undermine clinical trials.”
Dominic Nutt, a spokesman for Saatchi, said the bill would give “clarity and consistency and confidence to those doctors who seek to innovate but are nervous of doing so”.
He said untested Ebola drugs had been used on dying patients and the UK needed laws to allow the same to happen here. However, Wollaston said this could already happen in Britain when the medicines had a chance of working.
“That just makes the point,” she said. “They were allowed to use these treatments, and this is what so many people have lined up to say, is that you can already use these treatments in those kinds of circumstances, so you don’t need this bill.
“All this bill will do is introduce a Saatchi defence for quack doctors who are actually promising that parachute that has just been raised. It’s false hopes for people instead of evidence-based treatments.”
The bill was questioned in the House of Lords by Prof Robert Winston, a fertility expert, who spoke of how his father died aged 42 after a series of innovative medical treatments to try to cure what began as a minor infection.
The Labour peer said his father, Laurence Winston, died after an initial innovative treatment for a minor infection proved “quite inadequate”, and another innovative procedure led to the development of an abscess.
Winston said he had endured a sleepless night before speaking against the medical innovation bill, but said he was concerned that the proposals would allow irresponsible innovation
I think you probably get why I think it's worth highlighting both the old article AND the telegraph comment piece on this thread.
Why is it that procedures involving experimental treatment in physically healthy children appear to be more lax than those in place for terminally ill patients?