@InvisibleDragon
This was one of the cases where changing your sex to your gender identity on medical records nearly resulted in tragedy:
www.bbc.com/future/article/20200814-why-our-medical-systems-are-ignoring-transgender-people
In Whitley’s case, the problem was how the severity of kidney disease is assessed. The usual protocol is to calculate a patient’s “estimated glomerular filtration rate” (eGFR), which measures the amount of a certain waste product in their blood and therefore shows how efficient their kidneys are at filtering it out. If the eGFR is below a certain level, it’s an indication that their kidneys are failing and they are eligible for a transplant.
There are several different lower limits for an eGFR, depending on things like a person’s weight, age, gender and race, which are intended to reflect the natural variation in the human body. Based on the female cut-off, he would have been allowed a transplant immediately. But he’s registered as a man on his medical records, and this meant his doctors used the male eGFR level. He wasn’t put on the list until he reached it – a decision that ultimately delayed the surgery by over a year, and very nearly cost him his life.
"Consider this: if you were to look through every single medical record in the UK – all 55 million – you won’t find a single record labelled as belonging to a transgender person."
And whose fault is that, pray?!
"How does the NHS record information about sex and gender identity?"
Fair Play for Women
16th June 2021
Extracts
2014: The stealth introduction of the concept of gender identity, starting with HIV/AIDS data
2016: PERSON GENDER AT REGISTRATION (sex at birth) was dropped from the dataset at the request of the LGBT Foundation and ‘transgender community’. The Requirement Specification documentation suggested this was because they had been told it may not be legal to ask. This was clearly incorrect advice accepted without the necessary due diligence by the NHS.
Extract from Requirement Specification: “gender birth – work with the LGBT Foundation and the transgender community has informed that it is not good practice or possibly even legal to ask for gender at birth therefore we propose to remove this field from the dataset”
2018: a second dataset was updated to include GENDER IDENTITY CODE (SEXUAL HEALTH) and GENDER IDENTITY SAME AT BIRTH. This was the GUMCAD Sexually Transmitted Infection Surveillance System Data Set.
The Change Specification document states the reason for the update was to be more inclusive of trans and non-binary people.
2021: a third dataset has now been earmarked for updating. This time it’s the Mental Health Services Data Set. Changes will come into affect in October 2021.
PERSON STATED GENDER CODE will be replaced with GENDER IDENTITY CODE. This is currently marked in the NHS dictionary as ‘being used for development purposes and has not yet been approved”. Unlike GENDER IDENTITY CODE (SEXUAL HEALTH) it appears that this new category will not be restricted for use in specific medical areas (note that there is no GENDER IDENTITY CODE (MENTAL HEALTH) in the NHS dictionary. The creation of this generic category for gender identity may reflect a future intention to use it more widely across all dataset as and when they each get updated.
What is becoming clear is that over the last 20 years the ability to accurately record data on the material reality of sex has been slowly eroded within the NHS. The concept of gender identity is now taking its place. We have found no evidence that data experts or stakeholder representatives for sex-based rights have been consulted as these changes were introduced. Instead, it is LGBT representatives who have been influencing the decision-making about whether collecting data on sex is necessary or important. Our stakeholder experience with ONS regarding sex in census means it’s likely that no-one was considering or speaking up for the importance of accurate data on sex. The idea that sex should be replaced by gender identity has probably never been challenged within any of the working groups responsible for these changes, and it shows.
fairplayforwomen.com/how-does-the-nhs-record-data-about-sex/
This document demonstrates the determined sleuthing of FPFW and Dr Nic Williams's persistent badgering of statutory organisations to allow representation of the need to record biological sex in medical records to ensure patient safety.
NHS Connecting for Health Clinical Application and Patient Safety Project warned in 2009,
"This document describes the design guidance for the display and input of information about patient ‘Sex’ or ‘Current Gender’ status. It describes the area of focus, provides guidance and recommendations, and explains the rationale behind the guidance and recommendations.
The term ‘Gender’ is now considered too ambiguous to be desirable or safe because different locations and systems use it to mean different things. It is therefore desirable to use the two distinct terms ‘Sex’ and ‘Current Gender’.
webarchive.nationalarchives.gov.uk/ukgwa/+/http:/www.isb.nhs.uk/use/baselines/sexdesign.pdf
This advice was over-ridden by advice and incorrect information from the LGBT Foundation and the transgender community.
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See also:
Sex, Gender & the NHS part 2: Your Medical Record and your Ladybrain
Anne Harper-Wright
13 Nov 2018
medium.com/@anneharperwright/sex-gender-the-nhs-bb86b0c3ebb
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We can blame Stonewall for a lot of things but the total embuggeration of recording of biological sex in NHS Records is down to ideological interference by the LGBT Foundation based in Manchester:
LGBT FOUNDATION HISTORY
At LGBT Foundation we have a rich and passionate history of grassroots activism and community involvement, with a track record dating back to 1975.
As the needs of LGBT people have changed so have we, responding to an evolving landscape as well as to changes to health and support needs.
LGBT Foundation (and it’s predecessor The Lesbian & Gay Foundation) formed out of the merger of two community groups, both initially serving LGBT people in Manchester.
Manchester Lesbian & Gay Switchboard Services (MLGSS) began life 45 years ago, on 2 January 1975. Following the decriminalisation of homosexuality in 1967, six gay men came together in a back bedroom to provide an information and support service for the growing number of men starting to come out. To this day, the Helpline remains a vital part of the Foundation’s work, delivered by both staff and trained volunteers.
In 1994, our current Chief Executive Paul Martin OBE became one of the founder members of Healthy Gay Manchester, having arrived in Manchester in 1989. The charity was formed in response to the HIV epidemic and was dedicated to improving sexual health amongst gay and bi men.
In April 2000 the two charities merged, becoming the the UK’s largest health and community charity for LGBT people, yet retained its community activism origins. In 2015 we became fully trans inclusive and changed our name to LGBT Foundation.
lgbt.foundation/about-us/our-history
Oh look! After messing up NHS records over many years the LGBT Foundation says next on our agenda is Trans Status Monitoring working with NHS Digital! How lovely!
lgbt.foundation/news/sexual-orientation-monitoring-if-were-not-counted-we-dont-count/126
They seem to have received quite a lot of funding from the NHS, not all for giving misleading advice and messing up the recording of sex in NHS Records of course:
lgbt.foundation/about-us/our-impact-accounts
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Meanwhile, Fair Play for Women relies entirely on Crowdfunding and personal donations!
"We receive no formal or government funding for the vital work we do. We rely completely on donations made by our supporters."
Same as all the other groups of women campaigning, researching and lobbying to protect women's rights, official recognition of the reality of biological sex and, in this case, patient safety in the NHS
(FFS!!! 
)