@Tibtom
I notice autism is also becoming much more about self identifying (not even self diagnosing) as autistic. And these can then become the loudest voices in the 'Community' pushing self identity more. The 'Community' also seems to speak with one voice which is often at odds with the more nuanced voices of individuals I know.
To begin with I think the self diagnosis was to do with difficulty getting a diagnosis and not wanting to exclude people who couldn't get referred onto a diagnostic pathway. But lately memes I've seen circulating are specifically rejecting the 'medical model of autism' in favour of a self-defined autism identity.
I agree.
I'm autistic. I was diagnosed 5 years ago. I have a similar story to others who sought diagnosis later in life.
I only spoke to one friend in real life about it before my diagnosis. I kept notes and researched. I kept quiet because I didn't feel I could tell.peippe without a diagnosis.
Imagine my surprise when I realised that you don't have to be autistic; or believe you are autistic; or have any traits (OK, being a bit socially awkward helps) to be a member of the autistic community. You can just 'identify as' one.
Be one.
Self diagnose as one.
Self identify as one.
It's like a 3 tier system and the self ID lot fight far more loudly to he heard etc than the diagnosed or self diagnosed. Most diagnosed as adults autistics will go through a period of self diagnosis which is what gets you to the actual diagnosis. Years of confusion and difficulty and wondering why you are getting life so wrong and why you felt like you're speaking a different language to everyone else - they don't get you; you don't get them... until you realise and the relief is huge.
It actually became 'exclusionary' to refer to a diagnosis in a couple of online support groups I joined) largely because the self ID lot been very prominent, very vocal, very loud. It's hard to explain but, if you're autistic, you still just do life. You don't spend the whole time talking about being autistic or how this person looked at you funny today because you're autistic or whatever. Because autistic is just what you are. It's your normal. You don't need to keep reminding people of it. You just get on with it (I have aspergers, I know this wouldn't be relevant to some autistics).
The self ID autistics are very loud and vocal and 'in your face' precisely because they are not autistic.
'Self identifying' as anything is ridiculous.