Labrythithis

[Loword]

Hi
Hope I’m doing this right!!
I have been suffering for 4 weeks with vertigo on and off.
Attacks seem to be in the morning or in the night when rolling over in bed.
However I am on betahistine after being on steroids, antibiotics and other ant dizzy tablets.
The last week every other day I’ve been feeling dizzy and lightheaded(am able to do housework etc and not throwing up light I was with previous vertigo episodes)
Just wondering if anyone has had anything similar as really low in mood with this as unable to work or drive or do anything normal it seems!
Have had mri and waiting results and been so go and a&e department and no one really seems to know. Hence coming on here after Googling!!
Thank you

My mum something to do with crystals in her here, I can't remember the name but had to for manipulation a couple of times to reset them. It was horrid and she had to sleep upright for three days following the procedure.

I've had labrynthitis. It's caused by a virus so there's not much you can do but wait it out. There's some evidence that not taking medication is actually better as then your brain amd vestibular system can relearn how to do everything. It took about 8 weeks for mine to get better and about 16 weeks before it completely went away, sorry.
It's such a frightening feeling isn't it? And no one can tell anything is wrong with you either so it feels very lonely!
I would suggest just going about your life as normally as you can and it will just fade away with time.

Have you done the Epley Manoeuvre? It's to put the crystals in your inner ear canals back into the correct place. A bit like those children's puzzles where you have to get the balls in the holes. You can do this yourself, but it is better to get someone else to do it, preferably an ENT specialist, but the waiting times to see one is over a year on the NHS.

It feels awful whilst it's being done, not painful, just disorientating, but when it works, you feel fine.

I had it years ago and I still cannot tilt my head back without sometimes getting dizzy.

It doesn't last forever and you will feel better soon.

While you both had labrythithis did the dizziness come and go towards the end?
As it’s every other day that I’m dizzy/lightheaded now. I can still do things it’s just a horrible feeling

@Whatamesssss
I have heard of that manevour and tried to do it at home. And after doing it the dizziness feels better for a few minutes but I guess I need a specialist to do it

I think people are confusing labyrinthitis with BPPV. Different conditions, similar symptoms.

Yes it was intermittent.

At first it was constant but then started improving and I would get good days and bad days. I found using screens were a big trigger so I couldn't scroll through my phone or anything like that.

Did you still have bad vertigo attacks on and off? Sorry lots of questions

Could it be vestibular migraines?

I have tinnitus and slight hearing loss too

I have occasional bouts of labrynthitis so I sympathise - it’s so disorienting and miserable.
I find that my attacks come on after cold sores - my gp said it is triggered by a virus. They last for several weeks/months and I start to give up hope and then all of a sudden it goes away.
The last time I had it I got worried about how long it was lasting and the gp said that it is totally normal for it to last several weeks.
I have vertigo as well.
Fingers crossed yours lifts soon.

tinnitus and hearing loss? Have you been to ENT?

Been to ent
But they are unsure
Do labrythithis symptoms come and go?

Inwas told I had labrynthitis a few time. It wasn't so I've never actually had it to know.

I had it for the first time when my eldest was six weeks old. It was awful. I literally couldn't sit up for long enough to feed her, and I have never felt so constantly and horribly nauseous. Luckily I was expressing so I could do that laying down on my side and DH could bottle feed. He had to take a week off work to look after us and then my mum came for a few days when he went back to work. I truly couldn't walk. I stayed on the sofa or in bed for pretty much ten days. Hideous.

Mine went of it's own accord in the end but it took me a month to feel comfortable to drive. I've had it again since a few times (five years on) but never anywhere near as bad or long lasting as that first attack. Usually for a day or so, and much milder. Recently had it and I was just a bit lightheaded when I laid down or turned my head quickly for a day. I have read that it's never as bad again as the first time so maybe that's common.

You have my sympathies it is horrible.

@Helenahandkart
Do you have tinnitus with it too? Do the vertigo symptoms come and go in the weeks you have it with some days feeling ok?
I’m so stressed with it and desperate to get back to a normal life! 😔

I'm going through this now.

It started on Sunday and has got worse as the week has gone on.

Sometimes I'm fine then I'll just feel so lightheaded and dizzy. I've been given some anti dizzy stuff and done a blood test. I can't take the medicine though as it knocks me out and I've two young kids to look after.

No signs of infection so doctor said vertigo and see what happens.

I'm so over it now though.

I've had it and was treated by a specialist who did the Epley manoeuvre on me. It randomly came back after my first Covid vaccine and my partner you tubed and did the Epley again and thankfully it worked!

@Twizbe oh it’s awful isn’t it!
I’ve had it on and off for a month whatever it is.
I get mri results tomorrow so hopefully they can do something
Hope you get sorted soon. I have a daughter, and I just feel so bad for her

@yougottasmilesobright what we’re your symptoms? Episodes of vertigo? Tinnitus?
Glad you got it sorted ☺️

A month? Christ I can't do this for that long.

I often feel better when I'm walking but not sure why

[quote Loword]@Helenahandkart
Do you have tinnitus with it too? Do the vertigo symptoms come and go in the weeks you have it with some days feeling ok?
I’m so stressed with it and desperate to get back to a normal life! 😔[/quote]
My vertigo occurs constantly, but only when I’m walking down steps/escalators, looking over balconies/cliffs, or watching things like that on telly. So I don’t know if it’s connected to the labrynthitis.

I have permanent tinnitus anyway. Too many live gigs in my 20s.

When I have the labrynthitis I find walking and standing really difficult, and stagger sideways constantly, but feel completely normal when I’m sitting. It doesn’t affect me at all when I’m driving, so I feel very lucky in that respect. It’s worse when I’m tired. I think it’s fairly constant for a few weeks and then it’s gone.

You will feel better, it will end, but I know it doesn’t feel like that while it’s happening.

Perhaps mine is not labrythithis as yours seems consistent and mine comes and go @Helenahandkart seems never ending, so low and spend most evenings crying ☹️

Labyrinthitis is NOT treated by the Epley manoeuvre. The Epley manoeuvre is where the head is moved in a specific way to shift crystals in the inner ear (the cause of BPPV). This is completely different to the treatment for labyrinthitis.