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Women's health

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I almost cancelled my Hysteroscopy due to Mumsnet.

87 replies

RedCheese · 20/08/2021 23:48

Last week I was booked in at the hospital to have a Hysteroscopy and I was nervous. Like most, my first reaction was to search Mumsnet for other people’s experiences of this procedure. What I found was many threads and posts saying how horrific it was. Words like a barbaric, agonising, and trauma inducing were shared, with many stating they wouldn’t do it without general anaesthetic. My nerves had now turned to terror. I phoned my best friend for reassurance, only to learn that she herself was booked in next week to have a regular smear test under sedation, due to suffering from anxiety and getting all tensed up. With the knowledge that I was having a Hysteroscopy with only a painkiller an hour before the procedure, I was seriously thinking what the Hell I was signed up for? By now I wanted to cancel my Hysteroscopy. How bad would it be to cancel... surely my gynaecology issues weren’t that serious? I phoned my 84 year old, severely religious friend and shared my fears. After listening to my worries, she asked the following question. If two women have penetrative sex with the same man, would they have exactly the same experience? After I got over my absolute shock that she used the words “penetrative Sex” in a conversation, I answered that no, of course not. One woman could be relaxed/experienced, there's different positions… there are too many entities to compare. Exactly she said, so why do you think other people's experiences of this procedure relates to you? Everybody is different and everyone’s southern region is drastically different to the next? She then went on to say that the worst reviews and forum posts are people who are upset and angry… happy people don’t always bother writing posts.

She was 100% right. I calmed myself and tried to bring logic to a situation where I’d shown none. In the past, I’ve had major surgery which took 8 months recovery time 5 times over, I’ve had 7 rounds of fertility without even blinking, as well as a c-section and this is what I panicked over. I phoned the hospital and asked to be the first in the queue that day to stop myself worrying while waiting to be seen. I decided I was going to ask the gynaecologist the following questions; can you use the smallest speculum as I’ve experienced pain when a big speculum was used. He said he wouldn’t use any speculum if that made me feel better. I asked how often he did this procedure – 5 days a week, I asked if he’d use water or air (water is better) – he said water. I asked, what if he found adhesions - he would bring me back for a spinal (I can’t have GA) and finally I asked if he needed to remove a polyp or when he did a biopsy, would it hurt – he said he’d stop if anything was getting painful and that I was in full control.

5 minutes later I was in theatre trying to relax “down there”. I was waiting for the tugging to start as fertility doctors have struggled to get a catheter in during IVF, one struggled for over an hour. The doctor stepped in front and I felt the first whoosh of water going in which was cold and strangely refreshing. As I looked to the screen waiting for the doctor to insert something, he said, there’s your womb on the screen. WHAT? I didn’t know he’d started. Where was this guy during my IVF struggles. I swear he must have had a GPS system down there as he arrived immediately at the destination and then spent the next 10 minutes looking around (no polyps thank God). Last few minutes, when he was moving to the furthest parts and taking a biopsy, it felt like a sudden period pain but not anything severe. I held my hands on my stomach and it was over in less than a minute. It was a walk in the park compared to a spinal.

When I read some of the posts relating to Hysteroscopy on Mumsnet, some offered little explanation as to the why it was difficult. Was it the speculum that hurt, the method used by the doctor or personal medical issues? I didn’t have any polyps removed so I have no experience of that but what I did have was a Hysteroscopy with a biopsy without ever having a vaginal birth which some have warned against. I should imagine that someone who has had a vaginal birth would have walked my experience of a Hysteroscopy, after all, they’ve already performed the hardest (and most amazing) procedure in the world already.

My reason for posting this is because not everyone is going to have an 84 year old friend to shock some sense into them. Female health is vitally important and I hope that no one will be reduced to my level of stupidity of almost cancelling a medical procedure because they scare themselves online. If you are going for a Hysteroscopy, ask the questions, request to be the first on the list and (the hardest part) try and relax.

Best wishes to anyone that’s booked in for this procedure, now or in the future.

OP posts:
bookh · 21/08/2021 12:40

The point is though OP we are all different.

I can barely even think about mine, it was out of this world painful, I collapsed and ended up in resuscitation and kept in overnight.

A spinal meanwhile, twice? Never felt a thing. Section, loved it.

Neither anything to do with relaxing or not, or 84 year olds telling you about sex or not, just that every human is different.

MountainDweller · 21/08/2021 16:27

I haven't had one but was referred for one a suspected polyp. I'm not in the U.K. The original gynae said she thought I'd need a hysteroscopy and biopsy. I asked if I'd be awake for it. The gynae looked horrified and said no, would I want to be? I assume the reason the NHS does them without GA is down to cost because many, many countries do not offer the procedure without it.

JammyDozen · 21/08/2021 16:36

Sick of women’s health procedures and experiences coming down to ‘it’ll probably be fine’ or ‘it’s fine for most/some people’.

It’s absolutely unacceptable.

I’m glad your procedure went well op, but it would not reassure me if and when I need to go through the same because I don’t believe the posters who have related distressing experiences are scaremongering or exaggerating and I have no idea how it would go for me. At least I know the score and can try for anaesthetic due to what I’ve read on here.

Topseyt · 21/08/2021 17:03

I've had two hysteroscopies. The first was under general anaesthetic so I felt nothing. A biopsy was taken and a large fibroid examined.

The second was with no GA and just ibuprofen an hour and a half beforehand. Another biopsy was taken and the fibroid again viewed. My experience this time around was similar to OP's. Some period type cramping whilst the samples were being taken, but manageable and it subsided within a couple of minutes.

I do agree that women should be given the choice of GA or other painkilling options, but there is no harm in pointing out that not all women experience total agony. We are all different. We are different sizes and shapes and have different thresholds.

I've been told that if my own issues (fibroids) do not resolve soon then further treatment will almost certainly involve general anaesthetic, and could very well be a hysterectomy.

Airpit · 21/08/2021 18:35

Stats for women, step in time.
Stats for women, step in time.
Never need a reason, never need a rhyme,
Stats for women step in time!

Nvm me. Just dreaming up my own campaign here.

PseudoBadger · 21/08/2021 18:43

I told my gynaecologist twice that due to past trauma (manual removal of miscarriage tissue whilst awake) that I could not have a hysteroscopy without a GA. She essentially told me I was being hysterical(!) so I told her I just wouldn't have it done then.

MrsPelligrinoPetrichor · 21/08/2021 19:01

Can you imagine anyone telling a man he was being hysterical about a procedure involving something being rammed up his knob? Just wouldn't happen would it?

AnyFucker · 21/08/2021 19:04

Nope

MrsPelligrinoPetrichor · 21/08/2021 19:05

For one thing, they'd wince and sympathise and find a way to make it as painless as possible- which would be a GA.

BrilloPaddy · 21/08/2021 19:29

That's really positive to have shared, OP.

I'm glad it went well.

I rarely ask for advice on the health boards to be honest as I think a disproportionately high amount of users on here have quite severe health anxiety.

Loubiemoo · 21/08/2021 19:36

I’ll take things that did not happen for 10 Bob.

You didn’t feel the speculum inserted into your vagina? You didn’t feel even a pinch from the tentaculum holding your cervix? You didn’t feel any cold sensation or pressure from your cervix being dilated?

I realise pain or discomfort is different for everyone, but to feel no sensation at all?

Airpit · 21/08/2021 21:58

So women not being stoic through pain inducing interventions is now a health anxiety.
Right...

RedCheese · 21/08/2021 22:39

I’ve been reading through the replies and have been surprised by how many have posted. It’s a difficult one to post as some have already aligned themselves to attack when my intentions were only to help anyone that was scared like I was.

This post was written to help anyone who was booked in for a Hysteroscopy and who had already decided to do it with painkillers rather than anaesthetic. This post was not written to undermine anyone who had already had a Hysteroscopy and had a horrific time but written for people who might, like me, be willing to have this with painkillers and wondering what the Hell they’d signed up for in the days leading up to it.

I was given choices (Local, Spinal or painkillers) for this procedure and I made my choice because it was the best choice for me with existing medical issues. It’s disheartening how many women state that a woman should be allowed to choose and then throw personal insults when a different choice to their own is made.

Thank you to everyone who shared their experiences, good and bad. I have gained so much from Mumsnet over the years as the advice shared by others, has for the most part, been kind and supportive.

OP posts:
adeleh · 21/08/2021 22:43

Ithink thisis a kind post.
I suspect it’s very variable. I had one recently and it really, really hurt. They said they’d givegas and air, but then it would have started from the beginn8ng again, so we just got it over with. I felt pretty shaky after, but it was over quickly at leadt.

LizziesTwin · 21/08/2021 22:51

Goodness me you had a different experience to me.

The OB/GYN and I had met for the first time and she tried to perform a hysteroscopy on me during the regular appointment, no chance to ask the surgeon to put me at the top of the list - I was simply in a room with a bed. No chance to have a pain killer first. I wasn't scared at all as I had never heard of a hysteroscopy until it was brought up in the appointment. As the OB/GYN said it might be a little bit uncomfortable I took her at her word and assumed that as I'd had 3 children without pain relief it wouldn't bother me.

I'm glad you had a good experience as I wouldn't wish my experience on my worst enemy.

user16395699 · 21/08/2021 22:57

Female health is vitally important and I hope that no one will be reduced to my level of stupidity of almost cancelling a medical procedure because they scare themselves online.

Your op started by calling frightened women stupid. You set the tone. You threw the insults about.

Your op absolutely does minimise other women's experiences, even if that was not your deliberate intention.

And if everyone on the list phones to ask to be first on the list for the day that's not going to work, is it? Especially if it's at a hospital that won't let patients make such requests.

PieceOfString · 21/08/2021 22:58

Great post op. Thanks for taking the time to write to such useful detail. Halo

RedCheese · 21/08/2021 23:02

Sorry to hear that LizziesTwin. The only time I've experienced real, fingernails digging into the bed type pain was when a nurse decided to use a large Speculum in a Smear test. It was one of my biggest fears going into a Hysteroscopy. Luckily the gynaecologist agreed not to use one thank God. I didn't even know Speculums came in different sizes, I thought it was a "one size fits all" type. If a big speculum had been used during this procedure, my post would have been drastically different.

OP posts:
AppleKatie · 21/08/2021 23:13

Anyone who starts a post by calling frightened women stupid, goes on to describe water up the vagina as ‘refreshing’ and also compares a medically invasive procedure to penetrative sex gives me pause. In my experience that’s not how women talk about their experiences.

It reads like a naive male med student who thinks he is developing an interest in helping nervous women through gynaecology.

Fwiw OP I don’t know who you are or what your agenda really is but if it was the reassure please rest assured that you’ve done the opposite.

MrsPelligrinoPetrichor · 21/08/2021 23:16

It reads like a naive male med student who thinks he is developing an interest in helping nervous women through gynaecology yes, doesn't it?

JammyDozen · 21/08/2021 23:35

This post isn’t going to help anyone who does have a bad experience, though, is it? The fact of the matter is that some people are ok, and others have a very hard time of it. It’s not stupid to worry about being in the latter camp ahead of time - because you absolutely could be. It’s not an irrational fear.

Women are chided for sharing their negative experiences because it might put other people off. When surely the answer that is staring us all in the faces is to recognise that gynaecological procedures and birth are often distressing and look at ways to minimise that, give women choices - and information. Instead, the popular response is to disapprove of certain information being shared while we cross our fingers and hope for the best.

And the suggestion that people have found this painful because they have health anxiety (read: their accounts are not reliable because they’re hysterics) is ignorant and insulting.

Ninkanink · 21/08/2021 23:41

@JammyDozen

This post isn’t going to help anyone who does have a bad experience, though, is it? The fact of the matter is that some people are ok, and others have a very hard time of it. It’s not stupid to worry about being in the latter camp ahead of time - because you absolutely could be. It’s not an irrational fear.

Women are chided for sharing their negative experiences because it might put other people off. When surely the answer that is staring us all in the faces is to recognise that gynaecological procedures and birth are often distressing and look at ways to minimise that, give women choices - and information. Instead, the popular response is to disapprove of certain information being shared while we cross our fingers and hope for the best.

And the suggestion that people have found this painful because they have health anxiety (read: their accounts are not reliable because they’re hysterics) is ignorant and insulting.

This.
Ninkanink · 21/08/2021 23:42

Oh didn’t realise I was quoting the comment directly before mine!

It needs repeating though.

BoredZelda · 21/08/2021 23:56

Or just let women choose anesthetic.

I wasn’t even given a choice. Where I am, the procedure is done under anaesthesia as standard practice.

Houseofvelour · 22/08/2021 00:12

I've had 2 hysteroscopys and both under GA with the same surgeon.
The first was part of a full investigative surgery so I needed to be knocked out as they went through my stomach and removed looooads of stuff.
The second was just a hysteroscopy, removal of womb lining and insertion of coil so they decided GA was the way to go again.
I quite like GA for some reason 😂 I find the feeling of disappearing really fascinating.

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