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Women's health

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I almost cancelled my Hysteroscopy due to Mumsnet.

87 replies

RedCheese · 20/08/2021 23:48

Last week I was booked in at the hospital to have a Hysteroscopy and I was nervous. Like most, my first reaction was to search Mumsnet for other people’s experiences of this procedure. What I found was many threads and posts saying how horrific it was. Words like a barbaric, agonising, and trauma inducing were shared, with many stating they wouldn’t do it without general anaesthetic. My nerves had now turned to terror. I phoned my best friend for reassurance, only to learn that she herself was booked in next week to have a regular smear test under sedation, due to suffering from anxiety and getting all tensed up. With the knowledge that I was having a Hysteroscopy with only a painkiller an hour before the procedure, I was seriously thinking what the Hell I was signed up for? By now I wanted to cancel my Hysteroscopy. How bad would it be to cancel... surely my gynaecology issues weren’t that serious? I phoned my 84 year old, severely religious friend and shared my fears. After listening to my worries, she asked the following question. If two women have penetrative sex with the same man, would they have exactly the same experience? After I got over my absolute shock that she used the words “penetrative Sex” in a conversation, I answered that no, of course not. One woman could be relaxed/experienced, there's different positions… there are too many entities to compare. Exactly she said, so why do you think other people's experiences of this procedure relates to you? Everybody is different and everyone’s southern region is drastically different to the next? She then went on to say that the worst reviews and forum posts are people who are upset and angry… happy people don’t always bother writing posts.

She was 100% right. I calmed myself and tried to bring logic to a situation where I’d shown none. In the past, I’ve had major surgery which took 8 months recovery time 5 times over, I’ve had 7 rounds of fertility without even blinking, as well as a c-section and this is what I panicked over. I phoned the hospital and asked to be the first in the queue that day to stop myself worrying while waiting to be seen. I decided I was going to ask the gynaecologist the following questions; can you use the smallest speculum as I’ve experienced pain when a big speculum was used. He said he wouldn’t use any speculum if that made me feel better. I asked how often he did this procedure – 5 days a week, I asked if he’d use water or air (water is better) – he said water. I asked, what if he found adhesions - he would bring me back for a spinal (I can’t have GA) and finally I asked if he needed to remove a polyp or when he did a biopsy, would it hurt – he said he’d stop if anything was getting painful and that I was in full control.

5 minutes later I was in theatre trying to relax “down there”. I was waiting for the tugging to start as fertility doctors have struggled to get a catheter in during IVF, one struggled for over an hour. The doctor stepped in front and I felt the first whoosh of water going in which was cold and strangely refreshing. As I looked to the screen waiting for the doctor to insert something, he said, there’s your womb on the screen. WHAT? I didn’t know he’d started. Where was this guy during my IVF struggles. I swear he must have had a GPS system down there as he arrived immediately at the destination and then spent the next 10 minutes looking around (no polyps thank God). Last few minutes, when he was moving to the furthest parts and taking a biopsy, it felt like a sudden period pain but not anything severe. I held my hands on my stomach and it was over in less than a minute. It was a walk in the park compared to a spinal.

When I read some of the posts relating to Hysteroscopy on Mumsnet, some offered little explanation as to the why it was difficult. Was it the speculum that hurt, the method used by the doctor or personal medical issues? I didn’t have any polyps removed so I have no experience of that but what I did have was a Hysteroscopy with a biopsy without ever having a vaginal birth which some have warned against. I should imagine that someone who has had a vaginal birth would have walked my experience of a Hysteroscopy, after all, they’ve already performed the hardest (and most amazing) procedure in the world already.

My reason for posting this is because not everyone is going to have an 84 year old friend to shock some sense into them. Female health is vitally important and I hope that no one will be reduced to my level of stupidity of almost cancelling a medical procedure because they scare themselves online. If you are going for a Hysteroscopy, ask the questions, request to be the first on the list and (the hardest part) try and relax.

Best wishes to anyone that’s booked in for this procedure, now or in the future.

OP posts:
Tiggerdig · 21/08/2021 10:26

Some harsh replies to the op who I think is sharing to genuinely reassure that it can be ok.

SpringSparrow · 21/08/2021 10:44

The op is strangely written. I don’t need her “to shock some sense into me”. I’ve experienced it, and it was painful. I know that now, and my gynaecologist has told me not to put myself through that again. They know it can be very painful for some women and you don’t know until you go through it. There’s nothing wrong with asking for anaesthetic.

Redannie118 · 21/08/2021 11:04

I had one two weeks ago. Grim and painful and i felt sick, wobbly and in pain for hours afterwards. Just got a letter from the consultant saying they didnt get enough cells so they have to do it again. So yeah im really looking forward to having it againAngry

AnyFucker · 21/08/2021 11:11

Never mind @Redannie118 all you need to do is compare it with penetrative sex (because a penis goes through the cervix, right ?) and look forward to the refreshing sensations

It’s easy peasy

TheCatsHaveEyes · 21/08/2021 11:15

Thank you op I've been referred for one and definitely have been horrified by the previous threads on it.

Ninkanink · 21/08/2021 11:16

Yes @AnyFucker that bit was just weird. I don’t need to consider penis to understand that women’s experiences of invasive procedures might be different.

We’re not all numpties waiting for instruction based on penetrative sex, thanks.

Ninkanink · 21/08/2021 11:22

I mean fair enough if the OP was genuinely trying to reassure. But it could have been done without all the extra claptrap.

Just say something like, I relaxed about it and my experience was fine. I know that many women suffer horrendously but I want to let you know that in some cases it can be easily managed.

GreyhoundG1rl · 21/08/2021 11:24

Well, none of it needed to be said, really. We all know being relaxed is likely to make any invasive treatment easier.
Nobody relaxes because a random on the Internet tells them to 🤷🏻‍♀️

Ninkanink · 21/08/2021 11:26

It actually felt quite creepy to me. Not at all convinced, tbh.

Abraxan · 21/08/2021 11:29

@megletthesecond

Or just let women choose anesthetic. Relaxing is bollocks.
This.

I've had two hysteroscopies, both under GA.

I'd had previous investigations which were agony, probably due to the specific issues.

It was suggested I had sedation initially, not GA. Luckily one of the medics there said no, it was likely to cause cervical shock and be more damaging not to. I had to have uterine adhesions laser Ed during my two hysterospies - just relaxing a bit wouldn't have cut it, I'm afraid.

longtompot · 21/08/2021 11:29

Mine wasn't painful as such. But it was the invasive nature of the procedure that made it hard for me. I felt really down afterwards. Was fine the next day after a good nights sleep. The drs were brilliant, but I had more people in the room than expected (four instead of three and all women) but the one doing it was being trained by the senior gynaecologist. The biopsy was the most painful bit. I was expecting the opening of my cervix was going to be the worst bit after how painful it was when the Mirena was fitted.

I'm glad your experience was a good one, op, but it isn't for all women which is why they post their experiences on here.

Abraxan · 21/08/2021 11:31

If two women have penetrative sex with the same man, would they have exactly the same experience

Are you, or your friend, seriously suggesting that having a hysteroscopy is in any way similar to having sex???

LEMtheoriginal · 21/08/2021 11:33

Incompetent dr fitting coil - agony

Hysteroscopy with competent gynae - uncomfortable but managable.

We are all different, but it is nice to hear of a positive experience.

I absolutely do not think that women should be offered a general anaesthetic just in case though. The anaesthetic risk does not outweigh the gain.

Elieza · 21/08/2021 11:40

I’m glad you took the time to post about your experience OP.

It may help some women to know how this procedure SHOULD be done (woman in control, surgeon listening and professional, not railroading her like a piece of meat) if a woman chooses (and she should get the choice) not to get a general anaesthetic.

I’ve only had a biopsy in an area where it was easy for them to do a local and stitch up after. And that was 100% fine. I hope if I ever need anything else the doctor/surgeon is that good.

oneglassandpuzzled · 21/08/2021 11:43

@LEMtheoriginal

Incompetent dr fitting coil - agony

Hysteroscopy with competent gynae - uncomfortable but managable.

We are all different, but it is nice to hear of a positive experience.

I absolutely do not think that women should be offered a general anaesthetic just in case though. The anaesthetic risk does not outweigh the gain.

I agree with you. My hysteroscopies are usually tolerable with just a bit of local anaesthetic to the cervix and some OTC painkillers (nurofen plus and paracetamol). I personally would find having a GA more of a nuisance, especially as I have had to drive myself to one of the hysteroscopies during lockdown when my husband was out of action.

Of course we should highlight the lack of choice, which is wrong, but some of the posts on some of the threads must really scare women who might not have any more than passing discomfort (mine is like strong period pains as the probe goes through the cervix. I don't feel the biopsies being taken).

What's important is that women know they can ask the doctor to STOP if it is unbearable or be offered gas and air or a GA at another date. I've had three different consultants and have always felt that they were very sensitive and caring. I trusted them and knew they would stop if I asked them.

It's different for all of us: we all have different medical histories.

TheFairyCaravan · 21/08/2021 11:44

I had a Hysteroscopy under GA in April. I have had severe SPD for 25yrs so I can’t keep my legs open long enough for them to do it. I was referred because I had post menopausal bleeding but because I needed the GA I was kept waiting 15 months.

They knew I had polyps and fibroids, that needed removing from an earlier ultrasound and I needed a biopsy. The male consultant, who I saw in clinic, tried his hardest to get me to have it done there and then. He told me it would be quick, it wouldn’t hurt and “most women cope.” It wasn’t an issue of not coping for me, it was I physically can’t do it. He made me feel like utter shit.

I had it done in a private hospital in the end. The consultant was lovely. If a woman needs an anaesthetic for any procedure she should be able to have one.

NewSchoolYear · 21/08/2021 11:48

Do all hysteroscopies involve taking a biopsy or sample? I was sent for one for breakthrough bleeding between periods and got results back saying no issues with my sample. I found the procedure slightly uncomfortable - the trans vaginal ultrasound probe was put in and I assume they took a sample of something while they were ferreting around. V I’m wondering whether some women have a more substantial sample or biopsy taken and that accounts for the different levels of pain?

I must admit reading the testimonies on here and feeling enormous sympathy but also having a sense that I maybe must have had a different procedure. I didn’t have pain relief but I think it should definitely be offered because there is obviously a potential for enormous discomfort or pain. I was lucky, as was the OP. I don’t think she meant to dismiss other’s pain but can understand how it must have come across to those women who had a different experience.

OnTheBrink1 · 21/08/2021 11:53

Give the OP a break for goodness sake!
OP, thank you for sharing your positive experience. Many women will have to have this done and for some it will be awful and some it will be not as bad. Yes of course women should be given more choices (gas and air as standard choice for a start) but this is not as easy to get as it sounds - not right but that’s the reality sadly.
So a positive take is needed against all the horror stories.
The same with birth. So many awful stories can frighten a women before they have even had the experience and in the case of birth this is actually a self fulfilling prophesy. If you are in a state of fear and stress, birth can often be harder. Men have made this situation of course 100 years ago by medicalising birth with little regard for the women in the process. But that legacy still had very significant effects even today

oneglassandpuzzled · 21/08/2021 11:53

Did you have a transvaginal ultrasound or a hysteroscopy?

If you had a hysteroscopy you'd have been sat up with your feet in a kind of stirrup arrangement. Fluid would be pumped into you. A long thin probe would be inserted through the cervix, not just into the vagina. There'd usually be a team of people in there: nurse at your head, possibly holding your hand, another nurse helping with the technology, a doctor actually doing the probing. Sometimes also another doctor being trained up too.

From memory, not as many people are involved in the TV ultrasound.

oneglassandpuzzled · 21/08/2021 11:54

Sorry that was for newschoolyear

megletthesecond · 21/08/2021 12:00

nink yes, proper weird post. I thought it was just me. Hence my polite response Grin.

Dozer · 21/08/2021 12:07

Weird OP and advice from your friend!

HildegardeCrowe · 21/08/2021 12:08

I’ve had 3 and just had a local and although I had to grit my teeth it was fine. I was grateful to have it done to investigate post-menopausal bleeding. I wouldn’t blink an eye if I needed another one. Not as bad as childbirth and much quicker.

JaneJeffer · 21/08/2021 12:16

I wish I had read the horrible stories before mine so I would have known what I was in for. It was absolutely awful.

CointreauVersial · 21/08/2021 12:16

I understand the reasons for your post, OP, and I'm glad it went well for you despite reading all the stories of painful hysteroscopies beforehand.

For me, it was the exact opposite. I guess I hadn't done my research, and all I had to go by were NHS leaflets breezily informing me that it might cause "slight discomfort", but a paracetamol beforehand would address that, no problem. I have a decent pain threshold, and had third baby on gas & air. I had no preconceptions or fears at all, and waltzed into my appointment without a care in the world.

Well, for me it was awful. Extremely painful, to the point that I was trying to climb out of the chair, screaming and begging them to stop. I managed to hang on while they did the biopsy, and the pain disappeared as soon as the procedure was finished, but it was one of the worst experiences of my life.

If there could be an upside to the subsequent hysterectomy (yes, turns out it was cancer) it is the fact that I'll never need another hysteroscopy.

For me, minimising the whole experience was just as bad as the doom scenario was for you.

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