Prolapse again after hysterectomy and repair :-( TMI

[Holycrappamoly]

Anyone else had more than one repair?

Had vaginal hysterectomy and anterior repair 2 years ago, but now waiting to find out what damage I've done, lifting more than I knew I was capable of. Feeling such an idiot.

Not sure it's that huge a prolapse, it's not even affecting my ability to wee (yet!) but it's currently enough to ruin my sex life, just when I thought I was ready to go out dating again and look for a new relationship. Beyond gutted.

This is the TMI bit - I'm alarmed and slightly freaked out that it appears to have affected my clitoris. I love my clitoris! But now it just hurts inside and out. I'm so sad.

This happen to anyone else? Feeling like I can't justify surgery just for my non-existant sex life.

Bump :-(

Didn't want to read and not comment.
I have prolapses that I haven't had repaired yet, so I understand your pain to an extent. I'm sorry it hasn't worked out for you.

Getstraight back to gp. I don't have prolapse but have rectocele so sympathise

There is a broken Fanjo thread somewhere .......

Ah thank you all

Broken Fanjo thread sounds like the place for me! I will do a search, thanks.

I've been seen by my GP, waiting for scan and referral appt now. Overthinking it all like crazy probably but can't bear the thought of more surgery. But then can't bear the thought of a broken fanjo for ever either. It sucks

Hi the threads are called Any Old Prolapse....and there is a whole series of them. Lots of useful information and support.
I have had two repairs now. I am trying to be careful, but sometimes life gets in the way.
Best of luck.

Thanks Greentea. I was doing so well, and for so long too, and then started to try and be normal. Won't be doing that again

I had a rectocele repair and perineoplasty 3 years ago. It failed within a year and I also got a cystocle and urethrocele. Lucky me. Sorry to hear yours has failed too. It really sucks. I’m Going to have mine repaired again but keep putting it off. Mainly because I’m so afraid of it failing again and then that is it as they will have run out of tissue to repair with. It’s scary.

Good luck!!

Also how long has it been feeling weird for? When I overdo it I feel horrific and falling out for a few weeks but then it settles down again so yours could feel better

Can I hop on board please?
I had a rectocele repair 7 1/2 years ago which failed some time ago (also had a hysterectomy and cystocele repair four months prior - long story!)
Like you, not causing me major issues (some, which I won't go into).
I don't want to touch mesh, but wondered if anyone has ever had pig tissue?

God Riding that sounds pretty horrendous - poor you! I do know what you mean about that heavy feeling where it lasts a couple of weeks then gets better. Sadly this has been for longer and now there's this sense of pulling down from the front area, and pain, which I've never had there before. Expecting cystocele or urethrocele tbh.

Sure you can join in mine - the more the merrier! (Sorry, you'll have to forgive my sense of humour - definitely a matter of laugh or cry here atm!). But seriously, more than happy for this to be a mutual support thread for those of us currently going through it (again!).

I've not heard about pig tissue though! What's that all about?

I know it was used before mesh became 'fashionable'. I wouldn't touch mesh with a bargepole, and given my repair has broken down again (there is a major gap between the muscles in the back wall and it was done by the hospital's senior gynaecologist, so if I get it done again, I want to know it has a good chance of lasting - I had no idea the repair could break down - naive me!) Sorry that sentence is so long....
I just want to know if I go through it all again (I did everything right, got someone in to help as I was on my own, etc, etc) that this time has a good chance of being the last.
I am hypermobile though, and now understand that this makes me more susceptible to problems like these (I didn't know when I was younger).
Sorry for the ramble.

And yes, laugh about it if you can.
When I was having my ops, I wasn't shy about it. If people wanted to know, I told them (some of them regretted it possibly! )
Some of the highlights were my oldest asking me 'if there was anyone who hadn't seen my fanny' and me perched on the contraption with things up both passages so the urodynamicist could check out how my bladder worked, oh and the glory of having a catheter with a tap on the end of it - I now have an understanding of how it feels to pee like a man. The glamour!!!

Bugger, sending hugs. I’ve got an A’s-yet unrepaired cystocele (grade 2) and uterine prolapse (don’t know the grade: cervix is looooow but nurse suggested it’s partly my bladder distorting things rather than my whole womb dropping. Who knows?!)

I’m putting off surgery as long as possible because of the failure rate but have noticed a significant improvement to my symptoms using electrical stimulation of my pelvic floor (or ‘the fanny zapper’, as it’s known in our house). Got it through NHS nurse but you can buy them online as well.

@Verbena87 really? I'd did wonder if they actually did anything I'll have look at buying one - any tips on what to look out for?

@mine I have hypermobile ehlers danlos. I think it does make us predisposed to these things. I was diagnosed after my first repair. And subsequently found out it would never have held as they need to use a totally different technique when you have a connective tissue disorder. I’m now seeing a specialist, maybe it would be worthwhile for you too..

@cupoteap I still have a big old bulge, but the sensation of heaviness/falling-out-tampon is pretty much gone and my pelvic floor is stronger. I was given it because I also have nerve damage from my labour, so was struggling to recruit my pelvic floor muscles properly for levels, and because I need to run for my mental health so the nurse says we’re aiming for the strongest pelvic floor possible.

It’s called a neurotrac continence, but the hospital have programmed it with a custom session for me, so it might be worth asking for a referral? Otherwise I know kegel8 do them with prolapse cycles.

Anyone got any experience of using a pessary? I’m waiting to get fitted, just to use for exercise.

Yes I tried the rings in varying sizes but they damaged the skin and caused pain from rubbing. Did help a bit with symptoms thought but I couldn’t continue. My urogynae suggested a cube may be better but these need to be removed daily and I got uti symptoms every time I removed the ring so that was a no go too. Think I’m in the minority though.

is there anyone who hasn't seen your fanny pmsl! (We're allowed to on this thread!!). Aren't kids great.

Thanks Verbena for the tips, maybe a fanny zapper is the way forwards. Think I saw a link to a French website on the Gynae AMA thread with loads of different types on there - but don't really speak French so wasn't much cop for me!

Thanks gravytrain that’s helpful to know/watch out for re skin damage and UTI symptoms. I’ve used a diaphragm for contraception and a mooncup for periods pre-prolapse with no problems, so fingers crossed I’ll be ok but will pay close attention - skin damage on an already scarred-up vaginal wall is not what I need!

holy while it has helped a lot, it’s not fixed it and you have to do it every day at first - I’ve got an 11 month old and enjoy the excuse to lie still doing sod all in (admittedly slightly electrocuted) peace for 20 minutes a day, but I guess that might be a drawback for some.

Oh yes, we're definitely allowed!

Advice on the best / NHS approved fanny zapper?