Wow, moose. That sounds like a very real possibility... I think I would be pushing for a referral on that basis in any case, if you can fight for the Dc's you can fight for yourself, too, (and not forgetting the genetic links and the fact that some symptoms can be easily traced right through). Such a lot to think about, you must feel like disappearing to bed and pulling the covers over your head for a week... Definitely call your neuro and ask for referral though, if your mum's private consultation goes ahead that will be a bonus. Your neuro might be able to send your MRI results off to the EDS team in the first instance, to see if they recognise the pattern? It would be a real breakthrough... And at least you would know what you are dealing with, rather than the 'probable MS'...
Brownie camp next weekend, so am up to my eyes in shopping lists and planning. This weekend (and yesterday) was dd1's last dance competition, so I was away in the city. We also had a huge snowstorm, but it only lasted about 12 hours and then melted.
she did v well, and came back with 3 golds and a high gold, and the teachers picked up two choreography awards for the routines as well. A nice way to round off dance season! Just the end of year show to go, now, but that's not until next month.
Diet has completely gone to pot as we are so skint, so I am basically eating my way through the freezer... Ds had a really carb heavy day on Sunday and was absolutely foul, with really upset tummy, so am now wondering again about foods.
He had paed appt today, and she wants us to try enuresis alarm again, but in conjunction with the psych. And he has to have another compulsory toileting time in his daily routine... That said, he went to the loo whilst we were waiting for the doc as she was running late. He had a bit of a panic about him, and asked if we could go home. I said no (had no idea what he was on about - it's not like he's never had to wait for a doc before!) but then he asked if there was a toilet he could use. Result! (until we got home, obv, and because we've tinkered with his routine he's been hideous tonight and refused to eat (there was a small piece of tomato skin in his pasta sauce), and went to bed in a strop)
Dd1 and I went to visit the school she wants to attend today as well (honestly, I think i want to go to bed for a week) and it seemed really nice, tbh. They were v cagey though, and kept making 'not sure if we have room' noises. (Tis a catholic school and we aren't, but neither are 50% of their students). They were also at pains to assure me that if they found dd1 a place but not dd2 (we don't want to move her anyway) it would be for space reasons, not disability..... They encouraged me to go home and talk it through (obviously so that they could discuss if they want her lol) and call tomorrow. Dd1 and I laughed about it n the way home - she's quite old enough to understand that 'we don't want you' has to be niced up to 'we don't have any space' if they decide our faces don't fit! She will be gutted if they say no, though.
Right, have to go back a bit further as I must have missed ages!
I might even weigh tomorrow... I was so busy all weekend that i didn't bother! 