Mounjaro - Possible blindness

[R95]

My pen is in the fridge yet to start it I’m so scared of waking up blind. I wear glasses and have long standing floaters I don’t know if this increases my risk 😣 I’m not diabetic btw x

accidental double post.

Are you referring to the very rare condition called NAION, or are you referring to diabetic retinopathy?

Regardless, neither is a demonstrable risk as a result of taking Mounjaro. You aren’t diabetic so diabetic retinopathy isn’t a concern for you. There has been one study in the US of people who took semaglutide or tirzepatide (Wegovy/Ozempic and Mounjaro/Zepbound) that showed that there were a tiny number of people who experienced NAION, but that is not sufficient to say that there is a definitive risk. There has been nowhere near enough research to show that WLI cause an additional risk of NAION. The numbers were tiny, less than 10 people out of tens of thousands, and it could have been just a random fluctuation or caused by other factors in the population studied that aren’t at all to do with using WLI.

But, you don’t have to take any medication you don’t want to, that’s absolutely your choice.

I've been on Mounjaro for over 3 months and have a history of posterior vitreous detachment which is an elaborate term for floaters to get a bit awry. I referred to it as my 'blob' in one eye . It eventually settled and I'm aware of a rare side effect.
I haven't suffered any eye problems since being on the jabs and I'm not concerned.
I wasn't aware of any possible side effects of Mounjaro.

im just very anxious 🥺 that’s the only side effect im scared of x

Why don't you speak to your pharmacist prescriber about it?
There's not much we can say other than seek medical advice if you are at risk but it does sound like it's fears taking over.

I was prediabetic and mounjaro is the best thing I've done. Almost 11 months on its resolved my high blood sugar, high blood pressure, IBS and all symptoms that went along with these.
In the 11 months I've been on it I've been on mumsnet and two mounjaro related Facebook groups and I've never seen one post about blindness or it affecting eyesight. Most of the side effects are GI related from a high dose or eating food that is too fatty or carby.

I can deal with gastro side of things I think it’s deffo fear taking over! X

@R95 this is a very good video to watch
https://m.youtube.com/watch?v=2UGPH7rFIbc

Dr Susan Brian is an endocrinologist who specialises in GLP1 research and menopause, by using trial and study information, so proper science, this video talks about the risks associated with GLP1 and blindness (which seem very small).

Hopefully this may reassure you, I follow her on Instagram to keep myself updated with all thing WLI related.

However if you have a serious anxiety it may be difficult to overcome.

Good luck with whatever you decide.

NAION can be caused by high blood pressure, diabetes, sleep apnea which are all things that an overweight person taking MJ may be more likely to have.

Luckily my blood pressure is usually fine, non diabetic but I think it’s just fear x

I am diabetic with early stage diabetic retinopathy and a long sordid history of eye problems that have left me severely visually impaired in one eye, and I am prescribed MJ by the NhS diabetes team.

The risk of NAION is very very low, I’m screened regularly for diabetic retinopathy and there’s been no progression since going on MJ, I’m actually due a screening soon so will be able to confirm hopefully no further progression.

The group of people taking MJ are a group who are at higher risk of developing NAION because we are obese, have high blood pressure, high cholesterol, high sugar levels……. It’s kind of like polling an athletics club for clothing size and then trying yo apply the average size on that group to the population as a whole.