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Weight loss injections/treatments

Discuss weight-loss injections and treatments, including personal experiences. Mumsnet hasn't checked the qualifications of anyone posting here. You may wish to speak to a medical professional before starting any treatments.

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Mounjaro on the NHS

17 replies

Ezlo · 15/01/2025 19:24

My mum is type 2 diabetic and I've been reading that she can get mounjaro on the NHS. Are there any other type 2 diabetics on mounjaro? Do you have the injection in the doctors office or do you take it home?

OP posts:
SilenceInside · 15/01/2025 22:16

Ezlo · 15/01/2025 19:24

My mum is type 2 diabetic and I've been reading that she can get mounjaro on the NHS. Are there any other type 2 diabetics on mounjaro? Do you have the injection in the doctors office or do you take it home?

You might have more responses if you post in the Weight Loss Injections/Treatments board rather than here. I know there are several posters there who are diabetic and take Mounjaro, some via the NHS and some who have a private prescription.

If your mum was prescribed Mounjaro, she would take the injection pen home and would self inject with it. It sounds more complicated than it is.

DawnMumsnet · 16/01/2025 09:41

Hi, we're moving this thread to our Weight Loss Injections/Treatments topic

TeenLifeMum · 16/01/2025 09:48

You do the injection into tummy or thigh and it’s a really simple pen style which is easy to do at home. The needle is small and thin so you hardly feel it. Doing the first one is the hardest. I’m not diabetic (just over the bmi) so buy mine online and I’m happy to do that as it’s made such a difference. There’s other options too and often gps will pick cheaper options like tablets (friend of mine takes these and they work for him).

Lola3034 · 16/01/2025 09:57

There are a few lucky ones here, who get their Mounjaro on NHS. Hopefully you'll get some answers here about the ins and outs of getting it on the NHS from them very soon 😊.

SilenceInside · 16/01/2025 09:59

Your mum should contact whoever it is that manages her diabetes and ask them if it's possible for them to prescribe it to her.

Oblomov25 · 16/01/2025 10:19

Yes, 2 x type 2 diabetics I know are on MJ from their GP practice.

stealthsquirrelnutkin · 16/01/2025 14:13

Yep, I was on liraglutide for years, lost 10kg when I started on it and was able to stop taking insulin, then stayed more or less the same morbidly obese weight, which was a change because once I started having to inject insulin I had been gaining steadily each year.

In September 2023 the local NHS chemists were unable so source liraglutide from any of their suppliers. They told me to phone the diabetes clinic for advice. The diabetes nurse said she wished they'd stop telling people to do that, because she'd had people crying, swearing and threatening her several times a day for the past three weeks when she had to explain that the only available option she could offer was to avoid eating carbs and go back to counting every eaten carb and injecting the corresponding amount of insulin.

I'd been following the Zoe project for 18 months by then and had got used to losing around 3kg/month while eating 2500 calories/day. (Having started with a BMI of 59.5) So it was grim to have to go back onto insulin, I struggled with constant hunger for an entire month and only managed to lose 100g after all that hard work, when all the previous weight loss had been bafflingly effortless.

In January 2024 when the diabetes clinic were still telling me there was no liraglutide or semaglutide for them to prescribe on the NHS, I got tired of living with constant gnawing hunger and signed up with Voy to pay privately for semaglutide/wegovy. The diabetes nurse had told me that I'd be prescribed mounjaro as soon as it became available for them to prescribe, so I switched from Wegovy to Mounjaro at the end of June last year.

At my diabetes appointment in August the consultant started me on 2.5mg of mounjaro, increasing it to 5mg the following month. 5mg is the maximum dose they are allowed to prescribe for diabetes under the NHS prescribing guidelines for diabetes.

So I currently pay Voy to send me a 7.5mg pen and inject from that pen and the 5 mg NHS pen at the same time. The diabetes consultant is fully on board with this and only regrets that NHS prescribing rules limit him to prescribing a maximum of 5mg when higher doses that would be beneficial to his obese patients.

Today for the first time since the mid 1980s my BMI has finally hit 29.9 making me officially no longer obese! People no longer stare at me in the streets, and I don't have to worry about being unable to use safety belts in the back seats of taxis.

To keep the weight loss going I have had to gradually reduce my daily calorie allowance. It was already down 2000 calories at the end of last year (from a starting point of 3000 - 3600 in March 2022 when I started an online food diary), but after gaining 200g over Christmas (first time I'd not lost even a tiny amount since I started eating to pander to my gut microbiome in February 2022) I readjusted it down to 1700 kcal/day and three weeks later I have lost another 4 kilos.

I realise that it's going to get more difficult to shed the remaining 14 kgs that stand between me and the upper limits of the healthy BMI range. I'm resigned to having to go down to the 1600 kcals/day that google considers an ample sufficiency for a 67 year old woman. I do also have the option of increasing to a 10 mg pen from Voy bringing my total weekly dose up to the maximum 15mg/week to get me over that final hurdle, though if I continue to have a good response to 7.5 + 5 mg I won't bother.

Once I do reach that target, which for the first time in over 40 years it seems possible and sustainable, then I can cancel the Voy subscription and remain on the 5 mg diabetic dose from the NHS to keep my diabetes in complete remission.

Your mum might be interested to hear that my HbA1c is down from 94 mmol/mol to 39 mmol/mol. My time in range on the continuous glucose monitor is 98% (better than most non diabetics because I do all my eating within a 6 hour time period). Weight down from 160 kg to 80.5 kg. Average blood pressure (taken 3 x morning and evening for 7 days) down from 155/88 to 110/65 (I had to come off blood pressure tablets because the diastolic pressure was falling below 60 after the first 18 months).

A lot of the health benefits come from allowing the gut to remain empty for several hours overnight, so that the bacteria that start to proliferate once the last of the food has passed through (which takes between 10 and 12 hours after the last meal) can get to work repairing the mucus membrane on the inside of the intestine. They nibble away at it which stimulates the gut lining to become healthier and less prone to leak, then they excrete short chain fatty acids which are very important for a shedload of metabolic functions and have miraculously improved my diurnal rhythm, mood, and levels of chronic inflammation. My asthma has gone, and I no longer need the CPAP machine to breathe for me at night.

It's the high levels of chronic inflammation that triggered my 6 different autoimmune conditions, and caused them to flare repeatedly. Being crippled by a bad bout of rheumatoid arthritis was what got me interested in following the Zoe food science recommendations. Best thing I ever did, only regret the information wasn't available in the early 90's when I was first diagnosed with diabetes.

Redlightbulb · 16/01/2025 14:31

stealthsquirrelnutkin · 16/01/2025 14:13

Yep, I was on liraglutide for years, lost 10kg when I started on it and was able to stop taking insulin, then stayed more or less the same morbidly obese weight, which was a change because once I started having to inject insulin I had been gaining steadily each year.

In September 2023 the local NHS chemists were unable so source liraglutide from any of their suppliers. They told me to phone the diabetes clinic for advice. The diabetes nurse said she wished they'd stop telling people to do that, because she'd had people crying, swearing and threatening her several times a day for the past three weeks when she had to explain that the only available option she could offer was to avoid eating carbs and go back to counting every eaten carb and injecting the corresponding amount of insulin.

I'd been following the Zoe project for 18 months by then and had got used to losing around 3kg/month while eating 2500 calories/day. (Having started with a BMI of 59.5) So it was grim to have to go back onto insulin, I struggled with constant hunger for an entire month and only managed to lose 100g after all that hard work, when all the previous weight loss had been bafflingly effortless.

In January 2024 when the diabetes clinic were still telling me there was no liraglutide or semaglutide for them to prescribe on the NHS, I got tired of living with constant gnawing hunger and signed up with Voy to pay privately for semaglutide/wegovy. The diabetes nurse had told me that I'd be prescribed mounjaro as soon as it became available for them to prescribe, so I switched from Wegovy to Mounjaro at the end of June last year.

At my diabetes appointment in August the consultant started me on 2.5mg of mounjaro, increasing it to 5mg the following month. 5mg is the maximum dose they are allowed to prescribe for diabetes under the NHS prescribing guidelines for diabetes.

So I currently pay Voy to send me a 7.5mg pen and inject from that pen and the 5 mg NHS pen at the same time. The diabetes consultant is fully on board with this and only regrets that NHS prescribing rules limit him to prescribing a maximum of 5mg when higher doses that would be beneficial to his obese patients.

Today for the first time since the mid 1980s my BMI has finally hit 29.9 making me officially no longer obese! People no longer stare at me in the streets, and I don't have to worry about being unable to use safety belts in the back seats of taxis.

To keep the weight loss going I have had to gradually reduce my daily calorie allowance. It was already down 2000 calories at the end of last year (from a starting point of 3000 - 3600 in March 2022 when I started an online food diary), but after gaining 200g over Christmas (first time I'd not lost even a tiny amount since I started eating to pander to my gut microbiome in February 2022) I readjusted it down to 1700 kcal/day and three weeks later I have lost another 4 kilos.

I realise that it's going to get more difficult to shed the remaining 14 kgs that stand between me and the upper limits of the healthy BMI range. I'm resigned to having to go down to the 1600 kcals/day that google considers an ample sufficiency for a 67 year old woman. I do also have the option of increasing to a 10 mg pen from Voy bringing my total weekly dose up to the maximum 15mg/week to get me over that final hurdle, though if I continue to have a good response to 7.5 + 5 mg I won't bother.

Once I do reach that target, which for the first time in over 40 years it seems possible and sustainable, then I can cancel the Voy subscription and remain on the 5 mg diabetic dose from the NHS to keep my diabetes in complete remission.

Your mum might be interested to hear that my HbA1c is down from 94 mmol/mol to 39 mmol/mol. My time in range on the continuous glucose monitor is 98% (better than most non diabetics because I do all my eating within a 6 hour time period). Weight down from 160 kg to 80.5 kg. Average blood pressure (taken 3 x morning and evening for 7 days) down from 155/88 to 110/65 (I had to come off blood pressure tablets because the diastolic pressure was falling below 60 after the first 18 months).

A lot of the health benefits come from allowing the gut to remain empty for several hours overnight, so that the bacteria that start to proliferate once the last of the food has passed through (which takes between 10 and 12 hours after the last meal) can get to work repairing the mucus membrane on the inside of the intestine. They nibble away at it which stimulates the gut lining to become healthier and less prone to leak, then they excrete short chain fatty acids which are very important for a shedload of metabolic functions and have miraculously improved my diurnal rhythm, mood, and levels of chronic inflammation. My asthma has gone, and I no longer need the CPAP machine to breathe for me at night.

It's the high levels of chronic inflammation that triggered my 6 different autoimmune conditions, and caused them to flare repeatedly. Being crippled by a bad bout of rheumatoid arthritis was what got me interested in following the Zoe food science recommendations. Best thing I ever did, only regret the information wasn't available in the early 90's when I was first diagnosed with diabetes.

Edited

My 74 year old mum really struggles with her weight and is desperate to loose it.
She was diagnosed years ago as a type 2 but then later got re-diagnosed as type 1.5
She was also prescribed Liraglutide (Victoza) but was only on it for a few months before the shortages begun. She has now been without it for a long time and I have heard the the manufacturer has pulled the plug and will no longer make it.
I think the patent may have recently expired as it has been officially licenced for generic use in the USA. It will still be a while though before it comes over here and even then the NHS has to approve it.

Trouble is that most of these jabs are not officially licensed to be used by type 1.5's or 1's so to get an alternative prescribed has been really difficult.
We did consider going private for Mounjaro but they will not approve if a type 1.5 or 1 diabetic.
Her diabetic nurse has now thankfully prescribed Trulicity (dulaglutide) but I don't know if this jab suffers shortages as well. We should know within the next few days if the pharmacy cannot get it.

You are doing fantastic by the way.

Musicaltheatremum · 16/01/2025 14:53

@stealthsquirrelnutkin what a fantastic story. You must feel amazing and what health benefits. Well done.

stealthsquirrelnutkin · 16/01/2025 16:26

Eating to improve my gut microbiome has been a game changer. I lost 10.5 kg the first month when the myfitnesspal food diary kept warning me that I'd weigh 3 kilos more if I ate the same amount every day for the next 5 weeks. I ordered new batteries for the bathroom scales, because I was sure they must be on the blink, and by the time I'd installed them a month later I'd lost another 9.1 kg. All while continuing to eat more than 3000 calories per day!

Of course it's easier to lose weight when your BMI is nudging 60, but compared to how much effort it took to lose 10kg by following weight watchers or slimming world, (hours, days, weeks and months of 24/7 willpower - only to gain it all back as soon as the willpower ran out), there really is no comparison.

I'm so much better at adding things to my diet than I ever was at avoiding them. By the time I've had my kimchi, sauerkraut, kombucha and kefir, 25g of nuts, fresh or dried fruit, berries, as many different plants as I can squeeze into a week (yeah for green nori sprinkles, frozen okra and bitter gourd!) and hit my protein and fibre targets for the day I'm more well nourished than I have ever been in my entire life, and I can't see myself ever wanting to go back to how I ate before.

Not eating after 4pm saves me from having to wrestle with constant urges to snack. If I really fancy something I just tell myself that I'll have it after breakfast the next day, by which time I have usually lost interest. If I still fancy it I add whatever it is to my online food diary, and tweak the remaining meals to stay within the allocation.

I'm quite evangelical about the benefits of doing right by your gut bugs, and have managed to convert a lot of people. Including the diabetes consultant, who was so impressed by the changes after the first year that he spent most of the appointment pumping me for information and vowing to give it a go. When I saw him again a year later his little pot belly had vanished and he was lyrical about how much better he felt with a 14 hour overnight fast and more gut friendly diet. I just hope he is passing the information on to all his new patients, because the "how to eat when you have diabetes" advice is in desperate need of an update to reflect recent advances in food science research.

skyeisthelimit · 20/01/2025 11:27

I asked my GP last week if I could try it, I have T2 diabetes and am overweight.

He said no because I am on metformin for the T2 diabetes and my sugar level has come down and they are not allowed to prescribe it for weight loss. This could vary across NHS areas though.

It's annoying because my nurse would have put me on it back in 2020 but they couldn't get the supplies then.

Shrinkingrose · 20/01/2025 11:37

skyeisthelimit · 20/01/2025 11:27

I asked my GP last week if I could try it, I have T2 diabetes and am overweight.

He said no because I am on metformin for the T2 diabetes and my sugar level has come down and they are not allowed to prescribe it for weight loss. This could vary across NHS areas though.

It's annoying because my nurse would have put me on it back in 2020 but they couldn't get the supplies then.

Mounjaro was only approved in the uk in march last year for diabetes, so you’ve not missed out.

shrinkingthiswinter · 20/01/2025 12:36

@stealthsquirrelnutkin wow, your story is hugely inspiring!! Could you possibly start a thread about gut biome in combo with the injections? It would be really useful for those of us starting out to know more about how to improve our diets

skyeisthelimit · 20/01/2025 12:54

Shrinkingrose · 20/01/2025 11:37

Mounjaro was only approved in the uk in march last year for diabetes, so you’ve not missed out.

substitute "mounjaro" for ??, I was offered something in 2020 and now they won't let me try anything including mounjaro. he just said a blanket no they couldn't prescribe it, when I asked if they could put me on an injectable.

Witchlite · 20/01/2025 13:15

I’m T2D too. A lot will depend on the rules within the health area your DM lives in.

Generally, it may depend on.
Insulin injection or Metformin and is sugar steady?
co- morbidity eg fatty liver, uncontrolled blood pressure.
BMI

I had been working very hard to loose weight before I started Mounjaro. I had lost some weight and got my BMI down to 35.6 and made sure I ate the right thing to control blood sugar using Metformin. During a phone appointment about something else, I asked whether I would qualify for Mounjaro … “oh yes, but it will be prescribed by a clinic at the hospital, I’ll refer you. What’s your latest BP and weight? Oh you have done well! I’m afraid you are now below the referral criteria”.

it is currently being “gate kept” beyond the nice guidelines, as the NHS can’t afford the staff time or the money to give it to everyone who it should help. Different areas have different restriction levels.

Still worth it. It took me 6months of yo-yoing to lose 12lbs without Mounjaro and 3months to lose 28lbs with it. Absolutely try your GP and depending on your DM’s health, you might be lucky. If not, and you can afford it, do it anyway.

My GP has promised me that as soon as she can, or if she can, she will switch me to Mounjaro. It is likely that when the weight is lost, I can switch all 5 of my current daily tablets to a weekly shot of Mounjaro in the future.

Papergirl1968 · 20/01/2025 13:45

Yes, I’m a type 2 diabetic although at the lower end of the range and controlled by metformin, and my GP offered Mounjaro when I went about something else.
I started it in about May and am currently on 10mg, having lost about three stone.
Ironically I dread reversing my diabetes as I would no longer qualify for it and couldn’t afford to buy it.
You just have the prescription sent to a pharmacy as usual. The GP has been happy to increase mine from the starting dose of 2.5mg to my current dose of 10mg every month or two. I just had to have one quick phone call appointment and to let them know my weight loss when I went up to 10mg.
I’ve been very happy with mounjaro. There are side effects of nausea, diarrhoea and indigestion/heartburn if you eat too much or too late especially if it’s something fatty, but I feel better, have more energy and my clothes are hanging off me.
I do think I will be one of those people who are very prone to banging the weight back on if or when I stop taking it though as in all honestly I don’t eat healthier, just less. And I don’t really exercise more although this is something I want to work on.

Mindovermatter45 · 07/02/2025 11:16

skyeisthelimit · 20/01/2025 12:54

substitute "mounjaro" for ??, I was offered something in 2020 and now they won't let me try anything including mounjaro. he just said a blanket no they couldn't prescribe it, when I asked if they could put me on an injectable.

Know I'm late here I remember the same type of conversation in summer 2020 it was actually the diabetic nurse suggesting Trulicity at that time that got me looking into the pens.

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