Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Educational psychologists

61 replies

SpicedGerkin · 10/03/2010 10:12

What exactly do they do please. I was told on here that i should get the Ed Psyc involved but have now been told by the school that the Ed Psych isn't 'interested' as if his problems are ASD related she has nothing to do?

She has no plans to assess him even. Though i have said i want him assessed, and fully plan to follow up the request with one in writing just so they can't magically forget i said it!

As an aside, who is on our side? When everyone else wants to do as little as possible and ignore what is going on because to admit it would mean more work for them?

I have on here thank god, but what if i didn't have online?

What happens to those kids whose parents take the first no as gospel?

OP posts:
claw3 · 17/03/2010 11:25

Sent

SpicedGerkin · 17/03/2010 11:28

Thanks claw, got it.

Thanks to you all, i don't know what i'd be like without you guys.

OP posts:
StarlightMcKenzie · 17/03/2010 11:29

This reply has been deleted

Message withdrawn

claw3 · 17/03/2010 11:38

Try not to worry and remember they might be experts, but you are the expert on your ds, not them! Good luck.

claw3 · 17/03/2010 16:27

Wondering how your appointment went Spiced, please do let us know when you have time.

SpicedGerkin · 17/03/2010 17:43

Sorry i took so long, my car broke down, spent all afternnon getting that sorted.

The meeting went ok i think. Not a lot went on really as it was a cancellation and so a different paed.

She listened to what i had to say, pretty much said it was par for the course.

She told me that they were looking down the asd route despite the impression the other paed gave, they are slightly concerned (not quite the right word) that the SALT and various others didn't see it/ have concerns, when i pointed out the limited time they spent with his she conceded this may have something to do with it.

She also said what i've been through is pretty much par for the course.

She explained a few things and is goint to send me and the school a questionare which can help point to asd?

She also wasn't sure why the school had nopt been copied in on the letters but she was going to make sure they were from now on, with something to say we had been meeting previously with the paeds.

School got the OT report and seem to have changed their tune a bit, which is hopeful. I think it helped that he is borderline for OT input. They have to be below 15% of average and he's 16% typical!

Thanks again for the reassurances, and TY claw for the mail, i'm going to do something similar myself, it should help.

TBH i'm not sure what i think or where we are at!

OP posts:
StarlightMcKenzie · 17/03/2010 17:58

This reply has been deleted

Message withdrawn

claw3 · 17/03/2010 18:28

Bloody hell car broke down, you have had an afternoon of it!

Dont worry if its all a bit of blur at the moment. Paed should follow up your appointment in writing, stating what was discussed and what action she plans to take (if any) you should receive this in a week or 2.

example from my paed of what they should send. (shortened, obviously)

Problems

  1. concern regarding interaction and social skills.
  2. Delay in play skills.
  3. Delay in speech and language.
  4. Feeding difficulties.
  5. Sensory dysfunction.
  6. Poor sleep pattern.
  7. Soiling.

I was happy to meet with ds and his mum on date. Mum has lots of concerns in different areas, as follows.

Then 2 pages with sub headings of the 7 above, elaborating on what the difficulties are and including who he has seen for what.

Then impression and plan. Ds is 5 and half year old boy who seems to have difficulties in different areas of his development. These difficulties are likely to related to ASD. I have agreed with mum the following plan.

  1. referral to feeding clinic.
  2. Melatonin etc.
  3. I will send an ASD questionnaire to school
  4. I will send ds for thyroid function testing, chromosomal daryotype and fragile x syndrome. Also full blood count to include blah, blah

5 Movicol for soiling

  1. I would like to discuss ds at next MD ASD meeting in Jan.
  2. Refer to CAMHS for x reasons.

Paed's can make things happen just like that, if they choose to.

Anyhow, put your feet up and have a cuppa!

SpicedGerkin · 17/03/2010 18:51

She seemed it Starlight. I do now have a notebook and have written something in it, that was a concern that i'd forgotten about.

It has been some day tbh!

Apparently here cahms has an extremly wrong waiting list so they aim to avoid it if they can?

That is good to hear regarding the letter, thanks.

OP posts:
claw3 · 17/03/2010 19:23

Spiced CAMHS are well known for not accepting referrals and having a long waiting list. Depends what you are being referred for?

Avoiding CAMHS is a great idea if you can (in my experience of them so far anyway!)But did the Paed offer an alternative to avoiding CAMHS? (not much point avoiding them, if no alternative is available iyswim)

SpicedGerkin · 30/03/2010 15:41

A very productive meeting with the school at least in the sense that i feel they are now taking me seriously!

The covering paed also sent them a kick ass letter, so i feel that we are actually moving forward now!

There is indeed light at the end of the tunnel, even if it is far far in the distance!

OP posts:
New posts on this thread. Refresh page