Active discussions

Please or to access all these features

Talk
SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

ASD girls forum NOW OPEN

38 replies

lisad123wantsherquoteinDM · 28/01/2010 23:49

DH has finally finished (although he has a little bit left) our forum, so heres the link and hope to see you there soon

here

OP posts:
CardyMow · 29/01/2010 00:22

Having trouble with the confirmation code, have sight probs (not major, but am really struggling with this bit) and can't distinguish the letters from the background properly. HELP!

Original poster
lisad123wantsherquoteinDM · 29/01/2010 07:47

ok, can you forward it to me at minx101 at hotmail dot com, and I will email you back the code

OP posts:
CardyMow · 29/01/2010 08:33

ERR do you mean email the code to you?

Original poster
lisad123wantsherquoteinDM · 29/01/2010 09:45

just click forward on the email that you got with the code on, I can work out what it says and send you a readable one back
Does that make sense?

OP posts:
CardyMow · 29/01/2010 09:50

Sort of..... I am technologically inept! ( I only learnt how to send an email 6 months ago....) I shall have a go in a bit, need to get ready for my appt. at the school for the cafs form, DP is here as I have DD & DS1 off school with evil stomach bug/head cold combo...

lou031205 · 29/01/2010 10:10

Very pretty! DD1 is not ASD, so won't join. Could I ask why you felt the need to have a separate forum for girls with ASD?

Original poster
lisad123wantsherquoteinDM · 29/01/2010 10:21

because girls with asd are few and far between and most ASD support forums are aimed at or a lot of parents of boys with ASD. Girls can present completely differently to boys and the chagelles paretns fo girls face are not the same.
I think research suggest only 1 in every 15 children with ASD are girls.

OP posts:
lou031205 · 29/01/2010 10:52

Ok, but why do you not feel that the MN special needs group can offer that support, within a thread, or whatever? I am not challenging it, just wondering why you felt the need to separate the girls with ASD from other SNs?

Original poster
lisad123wantsherquoteinDM · 29/01/2010 11:10

Im not saying Mn cant, there are some wonderful ladies and men on this thread, and they have been a great support and i will continue to be here. I guess 2 reasons, one is because there is only some many times you can post pointless rants on here or talk though ASD, It has tended to taken over the SN boards and hence I think why TTR was created too.
Also because people asked for one.

OP posts:
lou031205 · 29/01/2010 11:14

Fair enough. It is a bit sad for someone like me though, because DD1 is not ASD, yet so many of her behaviours have an ASD trait to them. I feel that I can't join a forum for parents who have a child with ASD, because I don't have one, yet so much of what you discuss could be relevant and pertinent to my care of DD.

I suppose it is hard for parents like me, who have woolly dx for their children. We don't fit anywhere.

Original poster
lisad123wantsherquoteinDM · 29/01/2010 11:41

well we only have an informal DX of asd in DD1 and DD2 is just a ?. You are more than welcome to join, there is no rules and I know ladies that come along to groups in RL who dont have a dx yet. Please come over, we dont bite and hopefully it will be helpful. Im not asking for written reports at the door honest

OP posts:
Marne · 29/01/2010 12:26

Thank you Lisa and thank you to your Hubby, the site is great.

lou- i'm sure you will be welcome, there are so many with out a formal dx, dd1's dx took over 2 years to get and we were unsure if we would even get one even though she had ASD traits. And i am sure there are 1000's of girls that have never been diagnosed but their parents believe they may be on the spectrum. Girls are so much harder to diagnose as the learn to cover up their traits to fit in with others (dd1 has done this over the past 2 years).

backtolingle · 29/01/2010 13:10

would you be ok with me talking a look? I've got sons - it's more that I'm curious to see if some of the girls sound suspiciously like me as a child......!!!!

fanjoforthemammaries7850 · 29/01/2010 13:57

don't feel left out lou.

I am going to look in once I have sorted my head out a bit.

Waiting for tests this week on DD, just got letter through saying she has an "ASD-like presentation" but it is more consistent with a neurometabolic disorder than ASD.

So I don't fully fit in there either but I can see there is room for everyone.

Just a bit too stressed/upset to post anything interesting at the moment!

(shouldn't be Googling neurometabolic disorders).

lou031205 · 29/01/2010 14:02

Sorry, didn't explain myself very well. Hard week. Fed up with uncertainty. "won't cope with MS" "Too bright for special" - wish people would make up their minds where exactly DD does fit.

fanjoforthemammaries7850 · 29/01/2010 14:05

Yes, I know, it's hard isn't it.

Marne · 29/01/2010 14:52

lou- we have had the same with dd2 regarding schools, we have been told 'too bright for SN', we are putting her in MS with full support but i am so worried that i may have made the wrong choice (its such a hard one to make).

backtolingle · 29/01/2010 15:11

sorry to hear it's such a stressful time fanjo

fanjoforthemammaries7850 · 29/01/2010 15:16

Thanks. She was supposed to have the tests this week, but the hospital haven't rung. Am dreading them so sort of relieved the phone doesn't ring but know it's better to get them over with.

lou031205 · 29/01/2010 15:54

Marne - we were told that full support was not an option. We would have had to turn down the SS to find out what hours we would have been offered. Couldn't take the risk.

ArthurPewty · 29/01/2010 19:36

This reply has been deleted

Message withdrawn

Original poster
lisad123wantsherquoteinDM · 31/01/2010 13:32

thats great ladies, only thing is im talking to myself

OP posts:
TessTing · 01/02/2010 16:35

I do have an ASD DS but this thread had me thinking...

What are the signs of autism in girls or the differences between autistic boys and autistic girls? (except the obvious.)

Marne · 01/02/2010 18:05

TessTing - Girls tend to hide their traits making it harder to diagnose, my dd1(AS) traits are , non-stop talking, anxiety, sensory issues with food and change in routine (which may sound the same as a AS boy). She has hidden some of her traits to fit in with other girls at school, so she used to cry if she was last in a game but has now taught herself to keep quite even though she finds it painful being last. I think girls are less likely to be violent (but i maybe wrong), from what i have seen boys with ASD are more likely to get angry or lash out, dd1 would just stand on the spot and cry (gets upset but not angry).

My dd's are still very young but i can see there being different problems between boys and girls on the spectrum more as they get older.

amberlight · 01/02/2010 18:07

Generalising wildly, it's four times harder to spot in girls. Our obsessional hobbies are often seen as 'cute' or 'womanly'. Think of collecting every conceivable detail on My Little Pony, or lining up hundreds of different lipsticks or shoes in colour order, or knowing every single fact about Eastenders. No-one would bat a proverbial eyelid. Or cleaning things obsessively for hours or folding things to amazing precision - that's 'just fine'. All 'ok' for girls. And other girls can be better at looking after us, which means we can get by without anyone noticing that we're clueless about the social stuff too, and panic when put out of our routines.

We tend to be picked up because of OCD or anxiety or depression etc (often secondary symptoms through the relentless stress of living in a weird world).

It's more or less the same as for boys, but we're more girly with it, not as likely to be wildly outrageous when things go wrong, in other words.

There was a myth that women were more badly affected by autism - but that was only because they were only spotting the most severely affected of us.

Like I say, wild generalisation, but it's a start.