ASD girls forum??

[lisad123wantsherquoteinDM]

right lovely ladies, DH has started to build this forum now and hoping to be live by the end of the month
He has asked me to ask you what rooms we would like? Welcome and General ASD rooms are already there, what else? Do we mind having a for sale board? what about a services in your area? let me know
TIA

Hmm..Education, Diagnosis, Treatment?

meet-a-family, so you can meet someone local to you?

Wouldn't mind a For Sale board at all

do you think dx, education and treatment all need seperate? or maybe just under general but maybe having treatment seperate? Would too many rom be confusing?

Agree with meet a family

Maybe a room to discus DLA (help with filling in forms).

Behaviour?

Education?

Sleep? (most of our asd children have sleep issues)?

Agree with help with DLA. And where's this site going to be, how do I find it?? you have a taker here already!

Dd1 would like a pen pal so maybe it would be good if we could have a section for pen pals?

great something that excludes people like me

The more information out there the better surely - it's not excluding people just focussing in on one specific area.

that is just an awful thing to say, would rather my DD didn't have ASD so i was "excluded"..

..and if you started a group for girls with CP it wouldn't enter my mind to feel "excluded" as DD has different SN to yours..

x-posted with cyberseraphim there

sorry that sounds harsh, but I believe we should all support each other and not make others feel bad about finding support any way they can .

i do run a support group, it is open to all regulars on the sn board whatever the dx.
I do apologise though, I shouldn't have posted my ire on here. I hope your forum is very sucesful and you all get the support you need.

Well, that's great, and I don't see why there isn't room for a general group AND a more specialised one, people can post in two places at once you know.

Don't really see why you should have "ire" tbh.

I think it's just that, as I've found, a lot of the asd help that's available is often more tailored to boys. I have found I've been offered twice as much help/advice etc for DS2 than I have for DD. And he's half her age.....

i don't think we should have to defend ourselves, tbh

Ikinda see where 2shoes is coming from, in that its nice ifpeopletry TTR- we're not all only boy related you know, I have a stonking AQ of 40 (!!!!) and quite a bit of awareness therefore. there will be bits you miss out if you limit it and thats a simple truth.

OTOH sometimes its nice to restrict things to a narow group soI wish you luck.

ok ladies thanks for great suggestions. I didnt mean for anyone to feel excluded, but like the other ladies here alot of the support forums are families with boys and girls with ASD present so differently from boys, most of the time. Anyone is welcome but i am aware there is quite a few geberal asd forums out there already.

Loudlass, my DH is building it all together at the moment, and once its all together it will go live. We are aiming for the end of the month as we have to buy webspace too and theres not any money in the pot till then.

Now heres a question co.uk OR .com??

org.uk for a support forum Lisa, usually the way.

ASD does definitely opresent differently ing girls yes, thats very true,I was writing on that yesterday- many girls never see a dx becuase of that,nobody knows if it is a different genetic schema,presentation or many think becuase girls nurture in childhoodmore than boys and therefore effectively offer therapy toeach other in a way boys do not. That makes a lot ofsense I think.

Its is very intresting, but there is always going to be holes in that i think because girls with full ASD (eg no language, LD ect) are so like the boys but girls with HFA or Apsie tend to be missed. I know DD1 wasnt dx informally till 6 and now we are going for formal now she is 7 because things are fast going downhill. However, DD2 has a large amount of ASD traits, much worse than DD1 ever was but she is only, but will have to watch this space on her

If people want to email me minx101 at hotmail dot com and then i can let you all know about the site and its going live date?

HFA and Aspiea relikely to be dropped as diagnostic catregories, and funnily enough there is research suggesting (can get link tomorrow ifyou want) that suggest outside of language severity of symptoms does not vary between autioismand as necessarily.

But youre right about being picked up; I think its because there has to be a key 'thing'that sticks out: if someone has language deficits then that is quite obvious really, but if femaleasdis mitogated by another factor (and its probably many, not just one) then that sticking out may not be as obvious as with the boys because the abseline with girlson many things is different.

Which isnt to say it is less serious- of course not, many a girl with an undiagnosed asd has folloowed my path through ED etc for a start!. It's as serious but maybe not as externally obvious if that makes sense? The way it presents doesnt stick out from the sopcietal norm as much as with boys.

Don't worry, will go away now and make risotto.

FanjoForTheMammaries I did apologise.
but you have chosen to ignore that, If people choose to set up a just for one dx forum thier choice.

I find it very intresting, and have spent hours wondering. I know the HV we saew this week for DD2 kept asking if there was any language delay/issue and its very clear there is, she is a wonderful talker. BUT on the plus side she did her behaviours there, the spinning, the car up and down the slope and growling at herself in the mirror. HV seemed very intrested in the fact DD2 loved the mirrow, not sure why? is that another ytrait??