why do you do it, you know it will hurt and consume you

[2shoes]

but still you allow yourself to do it.....
yes you
you continue to post on that thread, even though you know you will never win, the same people will still post "oh i aggree with ££££" even if they han't really got a clue.
so come on why??

14%, yes. Of any sort.

poor old wannabe, imo she made a very valid point.

Oh you know what MN is like- once someone has misread and misinterpreted that outrage grows. Even though you've never meant or said what everyone is up in arms about.

lots of us defending wannabe, actually

but you know what it's like, when someone is in a bad place- like flappy clearly is- posts will seem aimed at you even if they are actually about something totally different (I'm sure many of us have been guilty of that)

well tbh the debate is impossible anyway. As soon as you say you present the positives about disability people assume you're a raving pro lifer judging everyone who has ever had a termination.

TBH I couldn't care less what decisions people make for themselves - am just interested in correcting the misinformation about LD's which seems to present people with LD's as being burdensome vegetables who could never possibly have a good quality of life and in the process will destroy the lives of their entire family.

If I'd had a termination based on the assumption that I could never work again with a child with MLD's I would have been devastated had I gone onto have a child with a disability and discovered the truth.

Had I understood the reality of disability and decided I wanted a termination then obviously I wouldn't have been devastated. I would have thought the reality of people's lives would be of interest to those making decisions.

Thats the difficulty though isn't it. I want to be able to post that our lives living with ds2's syndrome are good and not be considered anti-abortion or insensitive. It is an impossible debate and I do thank God that I don't encounter this sort of debate in RL.

I want to do that too slightlycrumpled

but I also want to be able to post that dd's disability is crap without feeling that I am failing to accept her for who she is

can't get any of it right really

And I want to be able to post about the difficulties of childcare without then having to justify how I work full time.

I suppose for those of us living it disability is complex. It's not some 2 dimensional feature that exerts a dreadful effect over everything we do. It's brought us some dreadful times and some absolutely wonderful times. I have cried more than anything over ds1's disability and also laughed more. But if you've had a termination you're not going to want to hear about the good stuff I suppose. In writing something honest that might be helpful for people who want to personalise their situation you I guess will upset people who might want to depersonalise their experiences.

So it comes down to impossible.

Oh the 'us' with the wonderful times there was our family- not speaking for anyone else!

I know it's crap. If someone came up to me tomorrow and said we will inject the missing part of his gene, it's all safe etc, etc I'd snap it up, I truely would. I sometimes look at him and wonder how life would be different for him if didn't have di-george syndrome or if he feels a bit of him is missing. I know that sounds silly.

In no way though does that mean I want him to be a different child, a new child because I don't I want him to be him without the syndrome, if I can't have that then him being how is with di-george syndrome is okay too.

Do you think we are all too guarded on here?

X posts mrsT.

I know I have cried untill I thought I would snap in two, but everyday he makes me really, really laugh.

True tis impossible.

I think we have a right to be honest on here and have it accepted that you can have a crap life and a good life at the same time. That the bad times don't negate the good times and the good times don't negate the bad times.

Yes. I've also learned than a relatively easy life doesn't make people happy any more than a more challenging life makes people miserable.

TBH the issue that has the potential to make me miserable is finances - it's the one thing I get stressed about and the one thing that has the potential to keep me awake at night. It would be the same if ds1 wasn't disabled.

but if you have a sn child you get loads of perks

and the epilesy don't for get that