Mumsnet pages on SN: What links/other websites and organisations should we recommend?

[morningpaper]

I know it's been discussed before so I'm sure you've got lots of ideas about links that we can put up to signpost people to organisations that will be helpful in getting support.

In the toddler book we suggested these links, so we have these to build on:

BIBIC (www.bibic.org.uk)
Children's Social Services www.everychildmatters.gov.uk/socialcare/socialservices
Early Support (www.earlysupport.org.uk)
Face2Face Network
Homestart
I CAN
IPSEA
National Autistic Society
Parents? Centre (www.parentscentre.gov.uk)
Portage
Steps
Sure Start

Perhaps if we could compile a list to start with, then we could think about the best way to present the information.

Cooooolerama!

www.hanen.org.uk (Hanen are a canadian organisation specialising in language delay, NHS SALT departments often run their courses for parents of kids with language delays)

cerebra (has a useful guide to filling in DLA forms for kids witn sn)

YoungMinds

parent partnership

SOS!SEN are amazing, got ds3 his SNU place finally

I know the people with a child with cystic fibrosis find their society amazingly supportive, also the dows synbdrome equivalent.

If you have BIBIC you need braiwave and also the dyscovery centre as well; similarish and all good reps

Cerebra has the best DLA guide going on their website

Samaritans; I know its a bit noyt-just-SN but sometimes poeple just need someone to talk to when scared at 3am

SNAP has helped us lots )special needs education advice)

whizzkidz

Not a charity but useful- crelling harnesses

family fund

i found afasic more usefullthan i can as ds is non verbal

www.afasic.org.uk/

www.learningdisabilities.org.uk/

www.dwp.gov.uk/publications/dwp/dmg/ dla decision makers guidebook, got volume 10 on drop down menu

www.dyspraxiafoundation.org.uk

Hi - for parents with children with Down Syndrome-

Down Syndrome Association www.down-syndrome.org.uk
Down Syndrome Association Scotland www.dsscotland.org.uk
Down Syndrome Education Trust www.downsed.org.uk

ANd more generally, for those interested in makaton signing - www.makaton.org

Mainly for those with cerebral palsy + other brain issues:

BDF Newlife for funding of equipment
Cerebra - without a doubt.
Hemihelp - useful stuff for Hemiplegia and Cerebral Palsy.
Conductive Education

Contact A Family

Agree with Cerebra, great organisation.

As a family we got a lot of info from ASBAH, Hemihelp, Epilepsy Action and The Daisy Garland for our dd's particular difficulties.

Heartline.org.uk

For families of children with heart conditions.

National Deaf Children's Society have a great website

www.angelmanuk.org For Angelman Syndrome.

www.he-special.org.uk (since SN can lead to home education and this is a space to discuss whether to go for it or not.)

hemihelp www.hemihelp.org.uk for children with hemiplegia (a form of cerebral palsy).

www.climb.co.uk for children living with inherited metabolic conditions. And/or the Child growth foundation.

not that one, I'll find out the right one...

www.climb.org.uk

www.fledglings.org.uk

practical products and resources for children's special needs.

a littel bump

Unique - www.rarechromo.org

Ace support group for all rare chromosome disorders

I second the Dyspraxia Foundation site.

This teachernet page here has a useful guide for parents and carers, and the site also links to the DCFS SEN Code of Practice.

ADDIS for ADHD information www.addiss.co.uk