Mumsnet pages on SN: What links/other websites and organisations should we recommend?

[morningpaper]

I know it's been discussed before so I'm sure you've got lots of ideas about links that we can put up to signpost people to organisations that will be helpful in getting support.

In the toddler book we suggested these links, so we have these to build on:

BIBIC (www.bibic.org.uk)
Children's Social Services www.everychildmatters.gov.uk/socialcare/socialservices
Early Support (www.earlysupport.org.uk)
Face2Face Network
Homestart
I CAN
IPSEA
National Autistic Society
Parents? Centre (www.parentscentre.gov.uk)
Portage
Steps
Sure Start

Perhaps if we could compile a list to start with, then we could think about the best way to present the information.

Cooooolerama!

this is great, thank you. I am compiling the links section AS I TYPE

Peachy, I can't find the snap website - can you help me?

I can only find www.snapcymru.org/

I am looking at all these websites and blubbing at all the stories

there are so many great charities out there

I can't believe anyone gives money to donkeys, it's quite criminal

SNAP is a very common SN acronym if you google it, I guess because there aren't that many "happy" words that start with "SN". Plenty of others eg SNOT SNUFFLE SNEEZE SNARL SNOB SNEAK etc! There are also SNAP organisations in NI and Essex. As well as the obvious, ie SNAP childcare.

btw, I think CaF (Contact a Family) should be highlighted or at the top or something. It's an aggregation site with links to support groups of all the individual conditions they can find. And if they can't find a formal group yet, contact them and they will specifically look for other parents for you. As well as doing campaigning off their own back. In terms of "first contact" sites I think it's pretty much the best. That and Portage as the gap between diagnosis and school is often all doctors and no help iyswim.

What else

• RDA (riding for the disabled).
• Association of children's hospices. (children's hospices don't just support end-of-life families - any child with a life limiting condition, and increasingly many children with high medical need, can get support and respite when other facilities can't cope with very complex needs. They are often very happy places, not like you'd imagine at all.)

I would recommend the Child Growth Foundation www.childgrowthfoundation.org which deals in under- and over-growth conditions including Growth Hormone Deficiency, Russell Silver Syndrome, Sotos Syndrome, Turners Syndrome.

ooh donkeys morningpaper - have you got EST on there?
www.elisabethsvendsentrust.org.uk/

www.earlysupport.org.uk Lots of info and links on here, especially useful for anyone new to the world of SN and with a very small child (apologies if anyone else has already recommended it)

Probably the best current list is the one run by the government Office for Disability Issues which lists out the main charities, government departments and other links that may be of use to disabled people.

www.odi.gov.uk/resources/index.php
www.odi.gov.uk/contacts/links.php

Dogs for the Disabled
Hearing Dogs for the Deaf

www.direct.gov.uk/en/DisabledPeople/HealthAndSupport/DG_10016340

That's the government link to all the main assistance dogs charities

Not sure if you're still collecting. I have just finished the first draft of a website. It needs proofreading and further pics & links added, but it provides information and links on AAC. Will hopefully complete over the next few days.

interaction in mind

thanks for link saintly
thats one im going watch though ds is not on asd spectrum lot of it still apllys epecially communicationn

Thanks Phoenix. It's is bit barebones as the moment but is there. Fairly basic guide to each AAC technique but I want to make the links section really good (am working on it and on making that page more visual so easier on the eye). I don't want to spend ages summarising stuff that's already out there - but I do want people to be able to find those websites that took me years to discover quickly and easily and without having to google forever.

I'll probably put some visual links at the bottom of each page about the different techniques as well, so people will be able to find the key websites on each AAC system without having to go via the links page.

On a slightly different note ds1 actually bought me the speakers I've been using with our ancient iPod touch yesterday because he wanted to tell me that he liked trains! (I'd set up 'I like trains' as a phrase in it the day before).

MP this is SNAP I meant

Sorry

one more mp
crossroads

www.selectivemutism.co.uk