this is the support thread away from the other as its negativity is becoming quite damaging

[bubblagirl]

thought i would steer away from the other thread as its becoming negative

anyway attitudes have changed and we should continue supporting each other without hearing them words

my ds says he has aution and nunny is happy i think that speaks volumes we have struggles it s harder some days than others

but most of all my ds is a joy and i love watching him progress even the smallest thing is huge to me

so sending virtual hugs to all needing one and lets just start another thread and continue supporting each other

oh another break through for ds he is no longer afraid of the bath he had 2 in one day the other day and every day he wants to soak in the tub hooray for him lol

what other?

Can you get your DS to have a word with mine about baths please!

My DS1 describes DS2 as being autismic. Makes him sound like a superhero .

sorry the my name is autism thread its left alot of negativity on the sn forum so thought id try and get a happier one going and let the other one fade out

lol 5inthebed

ds heard me reading dp poem yesterday and hi have told ds he has autism not that he understands but so many people talk over him and the word is used so many times professionals etc i thought its best he knows

he said to me yesterday bubblaboy has aution and mummy happy [he says nunny] yeah yeah its so cute

found if i said to ds i wont get your hair wet he'll happily play in the bath if i ask him to flatten his hair he'll put water on his hair to flatten it down good enough for me

lovely idea!

i want to say that DS5 has opened a door to a new wonderful world to me that i probably would never have opened if he had not shown me the way. I believe that had i not stepped into this wonderful place that i would not be as accepting, understanding, more compassionate and as open minded as I am. He is only 2, and has changed my whole outlook on life.

How strange that it took my nonverbal little dot to show me? how can i have not seen it before? how many people will never know this world? how much shall they miss...?

too true when ,my ds was 2 he was non verbal too and just one look at his cheeky chops would melt my heart now the change in him over the last 2 yrs is unbelievable and every day he never ceases to amaze me

just a minute ago he decided to keep throwing his plastic car at the door in protest as i went for wee instead of putting his space tunes video on but he held perfect eye contact while searching for a reaction from me he didnt get one so gave up lol

nice idea. have steered off the other thread as feel as with not having an ASD DX it's kind of not my place to comment. Do hope Amber is feeling a bit better.

me too thats why i wanted to get another post going so it can feel supportive to her again and not a negative place to be thats not what the sn thread is about

i never even new your ds had ASD riven xx

LOL Riven

lol bless him

No, Amber isn't feeling better. She's and feeling very shaky inside.

oh well i really hope you can see that that poem really has no relevance and dont let it affect you xx

It does affect me , unfortunately. It's my job to be an autism adviser, you see. And this poem and others like it are still being sent out to people. So people may read it or the things like it, and then hear that I am turning up to have a meeting with them as a person on the autism spectrum...

...and I have to wade through their reactions of what they now understand should be disgust and embarrassment and pity before they will take me seriously.

End result, they cancel the meeting, refuse to meet me, I've even had people send me hate mail, ban me from going to stuff, exclude me from the meetings. And anything I try to say to help people with any form of autism goes unheard.

It does affect me. Both as an individual and as someone who is trying to help others but finds it hard enough without people rewriting lies and misrepresentations about us. It makes it harder than I can cope with.

Ds (9 LD/ASD) has humanity aplenty! He would give his favorite conker or stone to a crying child as it would make him happy to receive such a gift. He covered me in a blanket to keep me warm when I collasped, but did not wake daddy as he was tired!

oh magso that bought tear to my eye bless his heart xx

Amber, I'm sorry that you're still upset by the horrible poem. I hope you'll take some comfort from this thread as it's positive and it's how we feel about things x

Magso what a sweetheart x

I haven't left mumsnet, no. Or this board. But people have to realise that I push myself to and beyond my limits just about all the time I'm on here, checking and rechecking that I've got things right. And some days I just have nothing left to give, especially nights with so little sleep and such sadness.

Our brains may only have the most basic of wiring to the 'people bit', so if one person writes that we're X or Y, by the time the fear has set in, it fries every bit of the people-circuits in the brain and it becomes absolutely overwhelming. It's why I try so hard to get people to write and say things that are not hugely negative about us - it can cause absolute havoc for us and there's nothing we can do to stop it. Others with an ASD may have a bit more brain wiring than me to those bits, or maybe a bit less. Either would give them more protection from this stuff than I have, I think.

But for me, it is scarier than hell and I can't make it stop. I have to have help, and go through so many strategies...and it takes time. Please forgive me..

I read it yesterday...and it just disgusted me. It's just vile.
but then i thought about it...and realised Amber is right ... it is a 70's throwback..it disgusts me in the same way that anti-black or anti-gay rants from that time would disgust me. It's full of anger and ignorance and ...it don't know...it's just not at all clever is it?.

I have decided to file under 'crap' in my brain and pay it no more attention and hope it disappears down the threads soon.